Pulmonary Fibrosis Foundation

Pulmonary Fibrosis Foundation

非营利组织管理

Chicago,IL 5,881 位关注者

关于我们

We imagine a world without pulmonary fibrosis. The Pulmonary Fibrosis Foundation is focused on our mission to act as the trusted resource for all who are affected by this disease. Our signature programs include: PFF Care Center Network PFF Patient Registry PFF Patient Communication Center PFF Ambassador Program An international network of support groups and online communities The PFF Summit Comprehensive disease education materials Our expert Medical Advisory Board and the biennial PFF Summit allow us to maintain an ongoing dialogue with physicians, researchers, industry representatives, and the patient community. This creates a collaborative environment that will help us achieve many of our goals. Our peer-reviewed research program supports projects that improve understanding of pulmonary fibrosis and will lead to successful therapies. We have developed significant relationships with industry partners and upheld our position as the honest broker to inform those affected by pulmonary fibrosis of important scientific breakthroughs.

网站
https://www.pulmonaryfibrosis.org
所属行业
非营利组织管理
规模
11-50 人
总部
Chicago,IL
类型
非营利机构
领域
Research、Advocacy、Education、Awareness和Patient Support

地点

  • 主要

    230 East Ohio Street

    Suite 500

    US,IL,Chicago,60611

    获取路线

Pulmonary Fibrosis Foundation员工

动态

  • 查看Pulmonary Fibrosis Foundation的公司主页,图片

    5,881 位关注者

    ???? November is a time to show support for caregivers during National Family Caregivers Month. Whether you’re a spouse, partner, child, other relative, or friend, caring for someone living with a serious illness is a substantial responsibility. If you manage your loved one’s medications, talk to doctors and other healthcare providers on their behalf, help bathe or dress them, or take care of household chores or bills, you’re a caregiver. Get the official guide to caregiving for a loved one with PF at https://lnkd.in/dxRG9nr

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    5,881 位关注者

    ?? ?? Review before you renew! Despite some positive changes coming to Medicare, it is more important than ever to review the changes to your plan for the coming year before you renew. Though your premium may be the same or lower, it’s very likely there will be changes to your plan’s coverages. You may have already received information from Medicare that provides a summary of these changes. In the newest blog post by Jennifer Simokaitis, Manager of the PFF Help Center, we talk about some of the things you need to know before you renew your coverage. https://lnkd.in/gebJaVBW

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    5,881 位关注者

    Now open! The PFF is seeking letters of intent for the PFF Scholars grant award. All LOIs will be collected through the ProposalCentral application portal with a deadline of Monday, December 2, 2024 at 5pm ET. PFF Scholars research awards are $100,000 over a two-year period. The PFF Scholars program is designed to help talented researchers obtain independent funding to continue their studies. The PFF aims to support projects that offer a high likelihood of improving the understanding of pulmonary fibrosis in the areas of basic science, translational research, clinical research, epidemiological research, and health services research. ???? Mark your calendars and review the full Guidelines here: https://lnkd.in/gvb4yz2T

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    5,881 位关注者

    Numerous community walk events have occurred nationwide this year in various areas, including Tampa, FL; Chaska, MN; Denville, NJ; Atlanta, GA; and Boston, MA. Collectively, these community walks have raised over $75,000 for the Pulmonary Fibrosis Foundation. We extend our heartfelt gratitude to all the community walk leaders for their extraordinary efforts, which will significantly impact our programming and help in the search for a cure for pulmonary fibrosis. If you're interested in hosting your own community walk in 2025, we'll help you get started at https://lnkd.in/grucnHS7

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  • 查看Pulmonary Fibrosis Foundation的公司主页,图片

    5,881 位关注者

    ???? Have you gotten your flu and updated COVID-19 vaccines yet? ?? It’s that time of year again. While respiratory viruses are around all throughout the year, infections increase in the fall and winter as people spend more time together indoors. This is also a good time to check that you are up-to-date on your other vaccines. Whooping cough (also known as pertussis) has been circulating at high rates this year. Talk with your healthcare team to make sure you have a recent Tdap (Tetanus, Diphtheria, and Pertussis) vaccine, and any other recommended vaccines.

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  • 查看Pulmonary Fibrosis Foundation的公司主页,图片

    5,881 位关注者

    As the PFF Walk season comes to a close, we would like to thank every one of you who joined us as we walked together toward a cure for pulmonary fibrosis and idiopathic pulmonary fibrosis in 2024! We welcomed more than 2,780 individuals and collectively raised a record-breaking $1,175,021 and counting to accelerate research, enhance care for those living with pulmonary fibrosis, and provide unmatched support and educational resources for patients, caregivers, family members, and healthcare providers. Your commitment and dedication make the work of the PFF possible. Thank you! We look forward to walking with you again in 2025. ???? #PFFWalk #TogetherTowardACure #PulmonaryFibrosis

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    5,881 位关注者

    Are you looking for a way to make a difference this Giving Tuesday? Creating a personal Facebook fundraiser is an excellent way to get involved during the season of giving! Leverage the power of your social media network by using Facebook fundraising to inspire others and raise funds and awareness for the PF community. This simple action can significantly impact our efforts for Giving Tuesday as we highlight the experiences of patients and caregivers affected by the disease. It's easy to do, and if you need help creating a Facebook fundraiser, you can click the following link to our instructional video. https://lnkd.in/g5SV_GXp

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    5,881 位关注者

    ????Returning for one night only!???? ‘Broadway Belts for PFF!’ makes its return to Sony Hall in New York City on Monday, March 10, 2025, and you’re invited to join us in-person or virtually! Get ready for an unforgettable night of music, laughter, and inspiration. Join us in person or virtually for the ultimate Broadway experience of the year. Your favorite Broadway stars will take to the stage in a once-in-a-lifetime celebration exclusively for the pulmonary fibrosis community. This joyous event will have you singing and dancing in your seats! ???? There are two ways to attend: ?? Attend at Sony Hall in New York City Tickets include access to the pre-show cocktail reception, a three-course seated dinner, the performance, and an after-party. ?? Be our guest and live stream the show! We're inviting the entire PF community to join us for a once-in-a-lifetime night on Broadway. Complimentary virtual tickets are now available — secure yours today! ?? Get your tickets NOW at: https://lnkd.in/gbvkUMCH!

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