Pulmonary Fibrosis Foundation

??? ?? ?? Wednesday! This online session will cover the highly requested topic of nutrition, discussing general tips, dietary supplements, and nutrition-related side effects from medications. Additionally, causes and impacts of frailty, which can affect up to 50% of interstitial lung disease patients, will be discussed in detail. Join presenters Sarah Pavelka, RD, LD, CNSC and Dr. Meenakshi Sridhar to learn more about this topic. If you cannot attend the live webinar, register anyway. The session will be recorded and available on the PFF’s YouTube channel at a later date and we'll send it to you when it's available. ?? As a reminder, this webinar takes place at 12 p.m. CT /1 p.m. ET /11 a.m. MT / 10 a.m. PT on Wednesday, March 26 https://lnkd.in/eBM_m-cX

??? The surveys are officially open. The PFF Community Registry is seeking your responses to questions about what it’s like to live with pulmonary fibrosis. The Registry is a series of surveys for anyone who has been impacted — patients, caregivers, and family members. It takes place twice per year. Your responses will go straight to researchers, who will use the data in the quest for new treatments and a cure. ?? https://lnkd.in/gZtCVDpk

We wish to extend a very special thank you to our sponsors for this year’s ‘Broadway Belts for PFF!’ We are grateful for your partnership and support! ?? https://lnkd.in/gme8tYzk #BroadwayBeltsForPFF #PulmonaryFibrosis

Crisio Villarroel started 2025 thinking he had a common cold or maybe COVID-19 as he had shortness of breath and dizziness. But as his symptoms persisted, he could hardly walk up the stairs without needing to rest. He was diagnosed with pulmonary fibrosis. Read his story to learn about his struggles, and his eventual lung transplant. https://lnkd.in/gpsUWBgx

Thank you for your participation in PFF Hill Day 2025! Your dedication to the PFF’s advocacy efforts made the day a success. Last week, 76 participants from 29 states met with 108 congressional offices to spread awareness on the Foundation’s policy priorities. Together, we highlighted the importance of strong federal funding for PF research by requesting appropriations report language for the National Institutes of Health (NIH) and asking to maintain PF as a topic area in the Peer Reviewed Medical Research Program (PRMRP) within the Congressionally Directed Medical Research Programs (CDMRP). We also brought awareness to the need for reform to patients’ access to supplemental oxygen by requesting cosponsors for the Supplemental Oxygen Access Reform (SOAR) Act. The SOAR Act will ensure that anyone who requires supplemental oxygen can access the most appropriate type of oxygen for their needs. The Foundation is very appreciative of your time and hard work to move these items forward. Connecting with elected officials is the key to jumpstarting legislative change. Our work is not done. We need your continued support to ensure the policy priorities of the PF community are heard and protected!

Thank you for supporting ‘Broadway Belts for PFF!’???? We've raised a record-breaking $559,101 and counting! ?? A special thank you to all who sponsored, raised their paddle, and gave virtually for making this milestone accomplishment possible! Your contributions will significantly support our efforts to accelerate research, to enhance care for those living with pulmonary fibrosis, and to provide unmatched support and educational resources for patients, caregivers, family members, and healthcare providers. On behalf of the Pulmonary Fibrosis Foundation, thank you for your support! We look forward to seeing you next year! ? To access images from the event, please click the link here: https://lnkd.in/gYa8Wwja #BroadwayBeltsForPFF #PulmonaryFibrosis ??: @rebeccajmichelson

To download this FREE guide to learn how to care for a loved one with PF, visit https://lnkd.in/dxRG9nr

?????? It’s Pulmonary Rehab Week! Are you familiar with this? Pulmonary rehab is an exercise program, but it’s specifically designed for people with lung conditions. It’s an excellent treatment for people with pulmonary fibrosis — it’s been shown to have terrific physical and mental benefits. Usually, it includes exercise training; breathing exercises; anxiety, stress, and depression management; nutritional counseling; education; and more.

?? Tune in TONIGHT for Broadway Belts for PFF! ?? The wait is over! ? Join us tonight, March 10 at 8:00 p.m. ET for an unforgettable night of Broadway brilliance at Broadway Belts for PFF! Stream the live show here: https://lnkd.in/g3PgcY-f #BroadwayBeltsForPFF #PulmonaryFibrosis

???? Call your members of Congress TODAY to protect critical medical research! For years, Congress has provided millions of dollars of research funding for pulmonary fibrosis and other diseases through the Congressionally Directed Medical Research Programs (CDMRP). As early as this Tuesday, the House will be voting on a continuing resolution to fund government programs through the end of fiscal year 2025 (FY25). The legislation slashes FY25 funding for the Department of Defense’s Congressionally Directed Medical Research Programs (CDMRP) from $1.509 billion to $650 million – a 57 percent cut from last year's funding level. We need your voice to ensure that CDMRP is protected, allowing funding for pulmonary fibrosis research to continue through this program! Link: https://lnkd.in/gbb7cGBA We ask you to call your members of Congress to share with them how important CDMRP is to their constituents. Use the drafted phone script and customize with your story as a member of the PF community. ?? More background on the CDMRP: Funding through the CDMRP accelerates research into pulmonary fibrosis, which affects veterans at a disproportionate rate – likely due, in part, to exposures to toxins on the battlefield. In addition to burn pits, there is a high level of fine dust and pollution common in Iraq and Afghanistan that may pose a greater danger for respiratory illnesses in service members. The CDMRP was designed to be more adaptable to urgent needs than traditional federal biomedical research and funds high-risk, high-reward research aimed at a specific problem. In the last two fiscal years, $15.48 million in total funding has been provided to PF grants through the CDMRP. Protect this vital program for research of pulmonary fibrosis by calling your members of Congress today!