Pulmonary Fibrosis Foundation

?? ?? Review before you renew! Despite some positive changes coming to Medicare, it is more important than ever to review the changes to your plan for the coming year before you renew. Though your premium may be the same or lower, it’s very likely there will be changes to your plan’s coverages. You may have already received information from Medicare that provides a summary of these changes. In the newest blog post by Jennifer Simokaitis, Manager of the PFF Help Center, we talk about some of the things you need to know before you renew your coverage. https://lnkd.in/gebJaVBW

Now open! The PFF is seeking letters of intent for the PFF Scholars grant award. All LOIs will be collected through the ProposalCentral application portal with a deadline of Monday, December 2, 2024 at 5pm ET. PFF Scholars research awards are $100,000 over a two-year period. The PFF Scholars program is designed to help talented researchers obtain independent funding to continue their studies. The PFF aims to support projects that offer a high likelihood of improving the understanding of pulmonary fibrosis in the areas of basic science, translational research, clinical research, epidemiological research, and health services research. ???? Mark your calendars and review the full Guidelines here: https://lnkd.in/gvb4yz2T

A new drug has been shown to potential improve breathing for patients with pulmonary fibrosis, and next year, it's going to the FDA for review. Researchers would not have been able to do this without patient participation in clinical trials! https://lnkd.in/gjzArSuW

Numerous community walk events have occurred nationwide this year in various areas, including Tampa, FL; Chaska, MN; Denville, NJ; Atlanta, GA; and Boston, MA. Collectively, these community walks have raised over $75,000 for the Pulmonary Fibrosis Foundation. We extend our heartfelt gratitude to all the community walk leaders for their extraordinary efforts, which will significantly impact our programming and help in the search for a cure for pulmonary fibrosis. If you're interested in hosting your own community walk in 2025, we'll help you get started at https://lnkd.in/grucnHS7

???? Have you gotten your flu and updated COVID-19 vaccines yet? ?? It’s that time of year again. While respiratory viruses are around all throughout the year, infections increase in the fall and winter as people spend more time together indoors. This is also a good time to check that you are up-to-date on your other vaccines. Whooping cough (also known as pertussis) has been circulating at high rates this year. Talk with your healthcare team to make sure you have a recent Tdap (Tetanus, Diphtheria, and Pertussis) vaccine, and any other recommended vaccines.

As the PFF Walk season comes to a close, we would like to thank every one of you who joined us as we walked together toward a cure for pulmonary fibrosis and idiopathic pulmonary fibrosis in 2024! We welcomed more than 2,780 individuals and collectively raised a record-breaking $1,175,021 and counting to accelerate research, enhance care for those living with pulmonary fibrosis, and provide unmatched support and educational resources for patients, caregivers, family members, and healthcare providers. Your commitment and dedication make the work of the PFF possible. Thank you! We look forward to walking with you again in 2025. ???? #PFFWalk #TogetherTowardACure #PulmonaryFibrosis

A special thank you to our PFF Education Symposium sponsors! We appreciate your partnership in making this program possible!

Are you looking for a way to make a difference this Giving Tuesday? Creating a personal Facebook fundraiser is an excellent way to get involved during the season of giving! Leverage the power of your social media network by using Facebook fundraising to inspire others and raise funds and awareness for the PF community. This simple action can significantly impact our efforts for Giving Tuesday as we highlight the experiences of patients and caregivers affected by the disease. It's easy to do, and if you need help creating a Facebook fundraiser, you can click the following link to our instructional video. https://lnkd.in/g5SV_GXp

????Returning for one night only!???? ‘Broadway Belts for PFF!’ makes its return to Sony Hall in New York City on Monday, March 10, 2025, and you’re invited to join us in-person or virtually! Get ready for an unforgettable night of music, laughter, and inspiration. Join us in person or virtually for the ultimate Broadway experience of the year. Your favorite Broadway stars will take to the stage in a once-in-a-lifetime celebration exclusively for the pulmonary fibrosis community. This joyous event will have you singing and dancing in your seats! ???? There are two ways to attend: ?? Attend at Sony Hall in New York City Tickets include access to the pre-show cocktail reception, a three-course seated dinner, the performance, and an after-party. ?? Be our guest and live stream the show! We're inviting the entire PF community to join us for a once-in-a-lifetime night on Broadway. Complimentary virtual tickets are now available — secure yours today! ?? Get your tickets NOW at: https://lnkd.in/gbvkUMCH!

?? What is interstitial lung disease? Pulmonary fibrosis (PF for short) is a disease process that causes lung scarring. This scarring of the lungs blocks the movement of oxygen into the bloodstream. PF isn’t just one disease. It’s a family of more than 200 different lung diseases that all look similar. The PF family of lung diseases is part of an even larger group of diseases called interstitial lung diseases (also known as ILD). Interstitial lung diseases include all the diseases that cause inflammation and/or scarring in the part of the lungs called the air sacs (alveoli), and the tissue surrounding the air sacs. Some interstitial lung diseases don’t cause lung scarring. When an ILD does include scarring in the lung, we call it pulmonary fibrosis.