PatientsLikeMe

We have more important #rarekidneydisease stories to share from our friends NephCure! Watch Sean's experience with IgAN and learn what you can do to help. There is still time to make a difference this #KidneyMonth! https://lnkd.in/emQS-UBr

This Kidney Month, meet Joshua, whose journey with a rare kidney disease (FSGS) reminds us why awareness matters. Behind every diagnosis is a person navigating complex treatments, difficult decisions, and uncertain futures—often without the spotlight that more common conditions receive.? ? PatientsLikeMe Inc?is proud to partner with?NephCure?—the only organization exclusively focused on rare kidney diseases like FSGS and IgAN.? ? Rare doesn't mean alone. Through education, support, and community, we're working together to create a future without RKD. You can get involved and help! See how?https://lnkd.in/emQS-UBr

We are kicking off Kidney Month with our partners NephCure to raise awareness about rare kidney diseases. Unlike CKD, rare kidney conditions require specialized care and early diagnosis. We have teamed up to shed light on RKD by comparing symptoms, progression, and treatment options for these often overlooked conditions. Find support and learn more -- you are not alone! https://bit.ly/3FyMpwU #KidneyMonth #RareKidneyDisease #RKD

In honor of Kidney Month, PatientsLikeMe and NephCure are proud to join forces in the fight against rare kidney diseases,?driving awareness, advancing research, and empowering patients for a healthier future. For more information, visit https://lnkd.in/emQS-UBr

PatientsLikeMe Inc is breaking the silence on menopause! Our recent study with 196 women revealed what many don't say out loud: 60% found menopause "very difficult" despite having neutral expectations going in. Here's the truth - you're not alone, and you don't have to suffer in silence. Learn more about what we found: https://lnkd.in/eRHW-Ajc We're committed to changing the menopause narrative. Join our community to connect with others who understand your journey and find resources to navigate this phase of life with confidence. https://lnkd.in/eTDDCSXe

Ivy Watts, MPH offers invaluable tools for managing stress in honor of Black History Month and Heart Month. She reminds us that we are worthy of the same love and care we freely give others. ?? ? Join her for a moment of mindfulness ?

PatientsLikeMe continues to partner with authentic voices who deeply understand our community's experiences and provide meaningful support. Ivy Watts, MPH, PLM advocacy board member, offers insightful guidance for those affected by the LA fires, addressing the emotional toll of grief and providing practical support for anyone navigating loss or catastrophic events. Watch the full video: https://lnkd.in/eM7NbzCT If this message resonated with you and you're seeking further support, Ivy also offers personalized 1:1 grief and healing coaching. Learn more at https://ivywattsspeaks.com.

?? PatientsLikeMe knows this time of year is filled with excitement and joy, but it also comes with a host of complex emotions that are not easily managed alone -- and why we are so thrilled about our partnership with Alma to make it simple to access affordable, high-quality mental health care right from your home! Read more: https://lnkd.in/e77cFJzk Together, we're removing barriers to mental health support by directly connecting our members with trusted professionals who understand their unique needs. This collaboration ensures our community has access to the care they deserve when they need it most. Wishing you peace and well-being this holiday season. Let's light the path to better mental health support together in 2025. #MentalHealth #AffordableCare #HolidayWellness #PatientsLikeMe #Alma?

???Exceptional patient engagement meets powerful real-world evidence: Showcasing groundbreaking results from our MDD Study ? PatientsLikeMe recently presented at #PsychCongress2024 and #NEI2024, highlighting our successful partnership with Takeda Pharmaceuticals in a landmark decentralized study of Major Depressive Disorder (MDD). ? The study demonstrated our unparalleled ability to drive participant engagement: ???95% completion at Week 12 ???90% completion at Week 24 ???Up to 99% participation in goal setting ???70%+ weekly goal tracking ? ???Study Overview: Our 24-week real-world study followed 503 individuals with MDD, comparing experiences with Trintellix (vortioxetine) to other standard treatments while tracking weekly goal engagement. The results revealed meaningful insights about treatment outcomes, cognitive function, and quality of life impacts. ? Key Differentiators: ?? Deep patient insights through longitudinal data capture ?? Rich comparative effectiveness data ?? Outstanding participant retention rates ?? Comprehensive goal-setting and tracking capabilities ? These results showcase PatientsLikeMe's unique ability to accelerate real-world evidence generation through superior patient engagement and robust data collection. ? Interested in learning how PatientsLikeMe can transform your real-world evidence strategy? Let's connect. #RealWorldEvidence #ClinicalTrials #PatientEngagement #MentalHealth #Pharma #DecentralizedTrials #MDD See full poster: https://lnkd.in/edBaJDcq Picture 1 - Psych?Congress, @Michelle Kirby, Jeoffrey Bispham and Sara Sarkey, both from Takeda Picture 2 -?NEI, Christopher Blair, Director, US Medical Clinical Research- Medical Engagement & Innovation at Takeda

?? The momentum continues! As part of our growing network of strategic partnerships, PatientsLikeMe and Genome Medical are joining forces to bring genetic healthcare directly to patients. Enabling them to: ?? Understand their genetic health profile ?? Access expert guidance from home ?? Make informed decisions about their care ?? Take proactive steps in their health journey By combining PatientsLikeMe's patient engagement platform with Genome Medical's genetic expertise, we're breaking down barriers to specialized care and empowering patients with knowledge that can shape their healthcare decisions. Learn more about how genetic counseling and PatientsLikeMe can support your health journey: https://lnkd.in/e4uVDQxC #HealthcareInnovation #PatientCare #GeneticCounseling #DigitalHealth