Oxalosis and Hyperoxaluria Foundation

?? ?? Today is Rare Disease Day! ?? ?? Together, we stand with the 300 million people worldwide living with rare diseases. In uniting on this day we can raise awareness, advocate for change, and promote a more equitable future! Let’s use this moment to recognize and highlight the voices and stories of the rare disease community. Share your story. Share your advocacy. Share your voice. To learn more: https://lnkd.in/gk6hbAF https://lnkd.in/dXEFg9xD #RareDiseaseDay #LightUpForRare, #Hyperoxaluria

?? ?? Today is Rare Disease Day! ?? ?? Together, we stand with the 300 million people worldwide living with rare diseases. In uniting on this day we can raise awareness, advocate for change, and promote a more equitable future! Let’s use this moment to recognize and highlight the voices and stories of the rare disease community. Share your story. Share your advocacy. Share your voice. To learn more: https://lnkd.in/gk6hbAF https://lnkd.in/dXEFg9xD #RareDiseaseDay #LightUpForRare, #Hyperoxaluria

Rare Disease Day 2025: Shining a Light on the Unseen Today, on Rare Disease Day 2025, we come together to raise awareness, amplify voices, and advocate for those living with rare diseases. For the millions affected worldwide—including families, caregivers, researchers, and medical professionals—this day is a reminder that no one should face a rare disease alone. The Oxalosis and Hyperoxaluria Foundation (OHF) is committed to patients and families around the globe, working tirelessly to advance research, improve treatments, and provide support. Rare Disease Day is a powerful reminder that raising awareness can drive meaningful change. Why does Rare Disease Day matter?? ?? 1 in 10 people worldwide are affected by a rare disease.? ?? Many conditions, like Primary Hyperoxaluria (PH) or Enteric Hyperoxaluria (EH), are often misdiagnosed or diagnosed too late, leading to limited treatment options.? ?? Raising awareness helps drive research, funding, and policy changes that improve lives. Today, we ask you to stand with us—share, learn, donate, advocate—because every voice matters. ?? Join the movement. #RareDiseaseDay #ShowYourStripes #PrimaryHyperoxaluria #OHF?

Breaking News! ???? Exciting developments for families and children living with Primary Hyperoxaluria Type 1 (PH1)! A newly published study is now available on PubMed, shedding light on critical insights that could make a difference in the lives of those affected. ?? Read more here: https://lnkd.in/eyVrfxjm Let’s continue pushing forward for better treatments and brighter futures! ?? #PrimaryHyperoxaluria #RareDisease #MedicalResearch #PH1 @ohfoundation

Breaking News! ???? Exciting developments for families and children living with Primary Hyperoxaluria Type 1 (PH1)! A newly published study is now available on PubMed, shedding light on critical insights that could make a difference in the lives of those affected. ?? Read more here: https://lnkd.in/eyVrfxjm Let’s continue pushing forward for better treatments and brighter futures! ?? #PrimaryHyperoxaluria #RareDisease #MedicalResearch #PH1 @ohfoundation

UAB named OHF Care Center for excellence in rare kidney stone disease research and clinical care https://lnkd.in/e_BwJcHd #GoogleAlerts

Incredible first step that could change the lives of patients living with PH1. https://lnkd.in/eeWK7biW

Let's get this to the finish line to help all children living with a rare disease!

https://lnkd.in/evuVYGac

Tune in to witness the incredible journey of one of our most resilient Hyperoxaluria warrior families!