Open Medicine Foundation (OMF)

"The Water Will Always Be There" by Claire In her personal reflection, Claire invites us to join her on a journey of rediscovery, finding peace and meaning in the process of reconnecting with the world around her.???? ?? https://lnkd.in/dXzrFMju “I want to be open to everything. I want music and dancing and crying. I want to sit on the couch with my family some nights, instead of being so tired I need to be alone in my room. I want to write, and hang pictures on my wall, and learn to prepare more of my own food. I want to talk to new people, and have more deeper conversations with my friends, and ask for more hugs.” This Triple Giving November, you have a unique opportunity to multiply your support and help us move closer to a future where #MECFS and #LongCOVID no longer destroy lives. Donate now for a 3X match ?? https://lnkd.in/e7tPrNtx

??Assessing Neuroinflammatory Involvement in ME/CFS via MRI and PET??? ? Neuroinflammation and microglia activation are often implicated in #MECFS, making it important to understand what happens in the central nervous system (CNS). ? Traditional methods of measuring activity in the CNS are invasive, often requiring a lumbar puncture to collect cerebrospinal fluid. ? Dr. Bergquist at the OMF Collaborative Center at Uppsala is conducting a study using novel #MRI and #PET imaging techniques to help understand what is happening in the CNS through non-invasive methods. ? This study has received IRB approval, which means it has transitioned from the “Study Design, IRB/Ethics Review” stage to the “Recruitment, Data Collection” stage of the research process. ??Watch this interview to learn more about this study directly from Dr. Bergquist:?https://lnkd.in/eXQqjpPB ?? As we reach the halfway point of OMF’s?Triple Giving November campaign, please consider supporting OMF’s important research efforts. Triple your gift today: https://lnkd.in/e7tPrNtx

Deep Proteome and Metabolome Profiling to Decode ME/CFS In this discussion, Dr. Moreau provides insights into his work on the molecular mechanisms underlying ME/CFS, with a focus on post-exertional malaise (PEM). ???From November 1 to December 3, your donations to OMF?will be tripled, making your support even more impactful! Learn more and triple your gift:?https://lnkd.in/emyqyzkS #PEM #MECFS #pwME #Precisionmedicine?

? Meet Rebecca ? Diagnosed with ME/CFS at 20, Rebecca has spent a decade navigating the challenges of this condition while pursuing a career in medicine, research, and health communications. Read Rebecca's story and support our #TripleGivingNovember campaign ??https://lnkd.in/en2Ju3He. Rebecca shares, “I wish people understood just how life-altering a disease like ME/CFS can be. It’s invisible to many, but the impact it has on someone’s day-to-day life is profound. This disease isn’t just about feeling tired; it’s about managing energy like a precious resource, navigating symptoms that can flare up unpredictably, and facing the uncertainty of not knowing when—or if—there will be a cure. I wish more people recognized the resilience it takes to live with a condition like this.” All donations to OMF are tripled. Donate hope today ?? https://lnkd.in/e7tPrNtx. #mecfs #LongCOVID #pwME #pwLC

Join us for a special interview with Dr. David Systrom as part of our Triple Giving November campaign! In this interview, Dr. Systrom discusses a muscle biopsy study to understand the molecular mechanisms behind post-exertional malaise (PEM). ??Watch the interview and learn more about this study:?https://ow.ly/6w7v50U0BeQ ???Your $50 donation will triple to $150, $100 becomes $300, and $250 turns into $750. Triple your impact??? https://lnkd.in/e7tPrNtx #PEM #postexertionalmalaise #MECFS #longcovid

Triple Giving November is back! Thanks to generous matching donors, ALL gifts made to OMF will be tripled up to $500,000 until December 3, 2024. ?? Triple your gift now: https://ow.ly/6fV650TXXhe.

?? Get Ready for #TripleGivingNovember! ?? We are thrilled to announce that starting November 1, we’re launching our annual Triple Giving November (TGN) campaign. During this special period, every dollar you give to OMF will be TRIPLED up to $500,000. This year, we’re extending TGN until December 3 —Giving Tuesday. ??? What to Expect During TGN: For the next six weeks, we’ll be sharing a series of interviews with our Directors, each discussing one of their ongoing projects: ? 11/5: David Systrom ? 11/12: Alain Moreau ? 11/19: Jonas Bergquist ? 11/26: Chris Armstrong ? 12/3: Ron Davis ? 12/10: Wenzhong Xiao At OMF, we’re dedicated to advancing research for #MECFS and #LongCOVID, with over 35 projects underway. Throughout this series and beyond, we’ll reference the four major stages of the research process. ?? Learn more about the 4 stages of research projects on our website: https://ow.ly/HBXK50TVqK7.

October is #Dysautonomia Awareness Month, and today, October 25th, we recognize POTS Awareness Day! ?? At OMF, we stand united with millions worldwide to amplify awareness of these often-overlooked conditions. Learn more about dysautonomia, orthostatic intolerance, POTS, and OMF's research ?? https://lnkd.in/ec2c7nGa. ? Join us in spreading awareness! Share this post, discuss these conditions with your loved ones, and engage on social media using the hashtag #POTSAwarenessDay.

From the OMF supported Medical Education Resource Center (MERC) at Bateman Horne Center: ?? Many with ME/CFS also experience orthostatic intolerance ?? ?? OI is a condition where upright activity can be a challenge and increase symptoms. ?? Symptoms may include dizziness, lightheadedness, and fatigue. Monitoring and managing symptoms can improve quality of life. ?? Learn more about how to manage OI in our educational handout that can be shared with your care team! ?? https://ow.ly/sFM050TS3mR #MECFS #MyalgicEncephalomyelitis #longcovid #pots #posturalorthostatictachycardiasyndrome #orthostaticintolerance #NationalHealthEducationWeek

We are excited to announce that Open Medicine Foundation (OMF) is now on BCard! With BCard, you can easily support OMF's research into #MECFS and #LongCOVID (???? only). BCard is a non-profit Foundation that aims to fund every community, small and large. Support OMF on BCard ?? https://app.getbcard.io