Odylia Therapeutics

Odylia welcomes Joy Cavagnaro as the newest member of the Odylia Board of Directors! Follow the link to learn more. https://lnkd.in/e2VP6v3v

Rare Disease Day is today, Friday February 28th, and Odylia is highlighting “What treatments mean to people living with rare diseases and their families.” What does a treatment mean to you? “A treatment for us would mean our child would be able to live a healthy, full, independent life. It would mean we would no longer have to face the constant shadow of progressive vision, bowel, bladder, brain stem and cerebellar dysfunction. It would mean independence for our child that most of us take for granted.” Snow Foundation #WolframSyndrome #wolframin #rarediseaseday #rarediseaseday2025 #treatment #raredisease #raiseawareness #showyourstripes

Rare Disease Day is today, Friday February 28th, and Odylia is highlighting “What treatments mean to people living with rare diseases and their families.” What does a treatment mean to you? “A treatment for our daughter’s rare disease would not only improve her quality of life but provide lasting solutions and more of these beautiful smiles!” Melissa Vaught, PURA Syndrome Foundation #PURASyndrome #PURA #rarediseaseday #rarediseaseday2025 #treatment #raredisease #raiseawareness #showyourstripes

Rare Disease Day is on Friday, February 28th and Odylia is highlighting “What treatments mean to people living with rare diseases and their families.” What does a treatment mean to you? “A treatment means hope, hope for my family, and others suffering from rare pediatric diseases." #TECPR2 #pediatricneurodegeneration #rarediseaseday #rarediseaseday2025 #treatment #raredisease #raiseawareness #showyourstripes

Rare Disease Day is on Friday, February 28th and Odylia is highlighting “What treatments mean to people living with rare diseases and their families.” What does a treatment mean to you? "Although having a rare disease and losing my vision has shaped me into the person I am today, finding a treatment for blindness would make me happy, especially knowing that younger generations won’t encounter the challenges I’ve faced.” Stephanie Gebel, Snow Foundation #WolframSyndrome #wolframin #rarediseaseday #rarediseaseday2025 #treatment #raredisease #raiseawareness #showyourstripes

Rare Disease Day is on Friday, February 28th and Odylia is highlighting “What treatments mean to people living with rare diseases and their families.” What does a treatment mean to you? “A treatment keeps Davidson playing baseball” Caryn McLeod Alagno, David Alagno, NPHP1 Family Foundation #rarediseaseday #rarediseaseday2025 #treatment #raredisease #raiseawareness #showyourstripes #NPHP1 #nephronophthisis #SeniorLokenSyndrome

Rare Disease Day is on Friday, February 28th and Odylia is highlighting "What treatments mean to people living with rare diseases and their families." What does a treatment mean to you? "A treatment means less worry, less pain, and more joy!" Susan Dando Smith-Kingsmore Syndrome Foundation #rarediseaseday #rarediseaseday2025 #treatment #raredisease #raiseawareness #showyourstripes #SKS #SmithKingsmoreSyndrome #mTOR

Rare Disease Day is on Friday, February 28th and Odylia is highlighting "What treatments mean to people living with rare diseases and their families." What does a treatment mean to you? "A treatment means prolonging and improving Jordan's life" David Ogman #rarediseaseday #rarediseaseday2025 #treatment #raredisease #raiseawareness #showyourstripes #TECPR2 #pediatricneurodegeneration

For those planning to order holiday cards or personalized gifts from Minted this season, use the code FUNDRAISEODYLIA for 20% off your order and Minted will also donate 15% of proceeds to Odylia. #nonprofit #minted #Odylia #giving #discount #raredisease

For those planning to order holiday cards or personalized gifts from Minted this season, use the code FUNDRAISEODYLIA for 20% off your order and Minted will also donate 15% of proceeds to Odylia. #nonprofit #minted #Odylia #giving #discount #raredisease