Not Just Patients

Our December episode is going to be different and special for lots of reasons! ?? It's our ??th episode! ?? We'll be recording live ??? ?? We'll have 2 incredible guests, Sumaira Ahmed and Danielle Drachmann? We're excited, can you tell? We hope you will join us on the 11th of December! ?? Caitlin & Clarinda #patientengagement #patientadvocacy #patientadvocates #patientinvolvement #healthcare #podcast #raredisease

In order to have equitable access to care, diverse representation must be included from the beginning. Join us for a compelling conversation with Professor Lara Bloom, CNE, President and CEO of the Ehlers-Danlos Society, as we dissect the complex relationship between health equity and inclusion on a global scale and explore the power of patient engagement in achieving health equity. Available on all podcast streaming platforms: - Website: https://lnkd.in/eit-Uj7T - Spotify: https://lnkd.in/ekXAerdq - Apple: https://lnkd.in/ep7t5AHX Jane Brearley (She/Her) Robina Weermeijer Roxy Murray Natasha Ratcliffe Jessica Walsh Jayaram Subramanian Peter Lachman Saravanan Thangarajan MDS, MBA Soojin Jun, PharmD, BCGP, CPPS, CPHQ ?? Dr Heidi R. Green Ash R. Linxi Mytkolli, MSc #dei #diversityandinclusion #healthequity #healthequality #patientengagement #patientadvocacy #patientinvolvement #medicalresearch #medicaldevelopment #healthcare #podcast

?? Controversial discussion on our latest episode about regulatory affairs and HTA with Anke-Peggy Holtorf If patients are deeply wishing and hoping for a new treatment to be approved for their condition, isn’t it an inherent conflict of interest for them to sit on regulatory and HTA committees? Patient perspectives can bring immense value to these approval processes in the drug development life cycle. But one of the difficulties patients might experience is that they might get too emotionally attached to the process and be disheartened when the outcome of the assessment is not in their favour. The purpose of regulatory and HTA evaluations is to ensure that only medicines judged to be good and of value in the context, based on several concrete and interdependent parameters, get approved. Unfortunately, patients’ wishes and hopes don’t make the medicine a good one. Give our latest episode a listen wherever you get your podcasts. We’d love to know what you think about this discussion and several other complex issues that we tackled. Website: https://lnkd.in/dPvxUMRZ Spotify: https://lnkd.in/dBmnVzZA Apple: https://lnkd.in/dZ5TCt4W Youtube: https://lnkd.in/dz2zpAN9 #regulatoryaffairs #regaffairs #healthtechnologyassessment #HTA #medicinesdevelopment #drugdevelopment #patientengagement #patientinvolvement #marketaccess #pharma Catherine Evans PhD, CMPP Mark Duman MRPharmS Kristina Chingov Nathalie Schober-Ladani Prabhat Sinha

We are excited to announce our patient panel with Sumaira Ahmed and Danielle Drachmann, coming up in December! Psst forgive the bloopers in this live video - we were trying to test out the tech ????

?? NEW EPISODE OUT NOW: DEMYSTIFYING REGULATORY AFFAIRS AND HTA??? Ever wonder what happens to medicines after clinical trials before they reach patients? In our latest episode, Dr. Anke-Peggy Holtorf breaks down the complex steps of regulatory approval and health technology assessment (HTA). From market authorization to reimbursement and ongoing monitoring, this episode provides a comprehensive overview of the journey medicines take after clinical trials are completed. So is there scope for patients to get involved in regulatory affairs and HTA? ?? YES THERE IS! In fact, patient involvement is considered highly valuable and encouraged (or even mandated!) by regulators and HTA bodies alike. Sharing tangible examples of the value patients can add, Anke walks us through factors patients should consider when deciding to participate in these processes and specific steps they can take to get involved. Anke's global experience and depth of knowledge spanning decades shine through as she simplifies some highly technical and complex concepts for our listeners. Give this episode a listen on our website or your favourite podcast channel. Website: https://lnkd.in/dPvxUMRZ Spotify: https://lnkd.in/dBmnVzZA Apple: https://lnkd.in/dZ5TCt4W Youtube: https://lnkd.in/dz2zpAN9 #regulatoryaffairs #healthtechnologyassessment #HTA #healthcaresystems #medicinesdevelopment #drugdevelopment #clinicaltrials #patientengagement #patientinvolvement #pharma #marketaccess Roger Greer Kaisa Martinkauppi-Vanninen Peter Galea Finn McCartney Mihaela Militaru Louisa Holland Paul Boeren Luisa De Stefano Fatih AKTA? Nikhil Pinto Jane Giudice Persefoni Kritikou Health Technology Assessment international (HTAi) EUnetHTA - European Network for Health Technology Assessment Regulatory Affairs Professionals Society (RAPS)

When you think about digital health data, do you worry about privacy and security? Are electronic health records more or less secure than the paper alternative? Who owns your health data and how is it saved? Who should be able to access it? In case you missed it, catch our latest episode with digital health expert, Mark Duman, where we tackle big and small questions about digital health and health data. ??? Available on our website and all popular podcast platforms. Website: https://lnkd.in/dV3YjE5D Spotify: https://lnkd.in/dkTmrz_F Apple: https://lnkd.in/dqy9EAYH Youtube: https://lnkd.in/dVfhFdRa #digitalhealth #healthdata #datasecurity #dataprivacy #medicalrecords #electronicmedicalrecords #bigdata #digitaltherapeutics #wearables Tamsin Tierney Manukiran Ravi Yigal Aviv Jeannie Park Thomas Cooke BSc, MBA Dr Devesh Rawat Penelope Timpert-Argust FRSC Bray Patrick-Lake

Several people who listen to our podcast ask us about our process. What professional services do we use? What funding do we have? Who does the editing? They're often surprised to learn that we do EVERYTHING ourselves, just Caitlin and Clarinda! Not Just Patients is wholly fueled by a heap of passion and a bit of madness. Here's a behind-the-scenes peek at the madness. It's a LOT of work but we have fun! Give a listen to our latest episode with Mark Duman, where we talk about digital health and health data ?? Website: https://lnkd.in/dV3YjE5D Spotify: https://lnkd.in/dkTmrz_F Apple: https://lnkd.in/dqy9EAYH Youtube: https://lnkd.in/dVfhFdRa #digitalhealth #healthdata #podcast #blooper

Digital therapeutics are a new and exciting area of innovation in healthcare. What promise do they hold and what challenges do they pose? ??New episode release! Join us in conversation with Mark Duman MRPharmS, Chief Patient Officer at MD Healthcare Consultants, as we discuss and ponder big questions about all things digital health. How do digital therapeutics get developed and approved? Who owns health data and how is it managed? How can barriers to access and equity be navigated as digital health becomes widely adopted? Listen to our latest episode on our website or your favourite podcast platform. And comment with your thoughts on some of these big questions. We'd love to hear from you! Website: https://lnkd.in/dV3YjE5D Spotify: https://lnkd.in/dkTmrz_F Apple: https://lnkd.in/dqy9EAYH Youtube: https://lnkd.in/dVfhFdRa Dr Devesh Rawat Larisa Aragon Castro, Executive MBA Sabita Sankar Steven (Steve) Bourke Cécile Tardy-Srinivasan Leanne West Dinis Carvalho #digitalhealth #digitaltherapeutics #healthdata #datasecurity #dataprivacy #bigdata #electronicmedicalrecords #patientengagement #patientinvolvement #podcast

?? New episode coming soon! In just a few days we'll be releasing our latest episode of Not Just Patients, where we speak with Mark Duman MRPharmS about digital health and health data. We're so excited! Watch this space. #digitalhealth #healthdata #digital #medtech #meddevices #patientengagement #patientinvolvement

Are you pro using AI for medical information, or are you skeptical? In our latest episode of Not Just Patients, Avishek Pal discusses trends in how patients are using AI for medical information, how AI can be harnessed to optimize its potential, and the risks that may arise if all stakeholders are not onboard with this inevitable shift in patient behaviour. Catch this thought-provoking conversation if you haven't already. Listen on our website or wherever you get your podcasts: Website: https://lnkd.in/eit-Uj7T Spotify: https://lnkd.in/eteamuxp Apple: https://lnkd.in/e57_862k #AI #GenAI #medinfo #patientinformation #patientengagement #AIforhealthcare #AIforpatients #podcast #notjustpatients