NGO Epiprosvita

?? The First Batch of Medication for Epilepsy Patients Has Arrived! St. Nicholas Hospital has received the first supply of medication from the sustainable support program for epilepsy patients in partnership with the Epiprosvita NGO. This procurement was made possible thanks to the humanitarian headquarters of the "Patients of Ukraine" Charitable Foundation and financial support from Nova Ukraine. ?? We plan to provide similar support throughout Ukraine via hospitals to ensure access to medications that are hard to obtain during wartime or unavailable in Ukraine but are approved and used in international protocols. Together, we are creating a reliable support network for everyone in need. Our heartfelt thanks to our partners for their invaluable assistance! #Epiprosvita #PatientsOfUkraine #NovaUkraine #Epilepsy

?? Seminar: Does Epilepsy Come from Vaccination? There are many theories surrounding epilepsy, including one that suggests the condition may arise from vaccination. We've conducted a seminar to explore whether vaccination can indeed cause epilepsy or if instead it’s vital for children with this condition. ?? Speakers: - Svitlana Veretenko: Pediatrician and pediatric neurologist. - Natalia Bushkovska: Representative of NGO "Parents for Vaccination," medical journalist. In this seminar, you'll learn: - How modern vaccines work. - The origin of the myth linking epilepsy to vaccination. - How to evaluate a vaccine. - Why vaccination is essential for children with epilepsy. - Research on the connection between epilepsy and vaccination. - Why parents should vaccinate their children. ???? Moderator: - Nia Nickel: Founder of NGO "Epiprosvita." ?? Link to the seminar: https://lnkd.in/dHV2i3hm This seminar builds better understanding of critical issues related to epilepsy and vaccination, so please share this post to spread the word. The "Guaranteed!" initiative is implemented by CF Patients of Ukraine in partnership with the Ministry of health of Ukraine and Нац?ональна служба здоров'я Укра?ни, with the support of the USAID Ukraine: https://lnkd.in/dz-6TPTB Project "Health Reform Support." #Epiprosvita #epilepsy #medicalguarantees #GuaranteedPMG #patient_rights

?? Webinar: How to Talk About Disability in the Family with Children We invite you to watch our new webinar, which we prepared together with the "World to Ukrainians" Foundation, on how to talk to children about their siblings’ or other family members' disabilities. ?? Watch the webinar "How to Talk About Disability in the Family with Children" here: https://lnkd.in/dETiXszn ???? The webinar speaker is rehabilitation psychologist Olena Artiukh, a mother of five. One of Olena's daughters has Down syndrome. In this video, Olena shares her personal experience and discusses the importance of open conversation about disability in the family. ?? The webinar will help you: - Understand how to introduce the topic of disability in the family and how to communicate it to children. - Learn about the challenges and opportunities related to disability in the family context. - Get advice from an experienced professional that will contribute to a healthy family dynamic. Share this post to help more people gain valuable information! ?? Register for the following webinars here: https://lnkd.in/dxeHCdgy Participation is free! The "Shine" project is implemented with the support of the "Ukrainian Educational Platform." #Epiprosvita #WorldToUkrainians #PsychologicalSupport #Webinar #FamilySupport

?? Webinar: How to Strengthen Relationships in Families with Children with Disabilities? In Ukraine, there are over 160,000 children with disabilities, which means that roughly the same number of parents need informational, psychological, and social support. Therefore, in collaboration with the "World to Ukrainians" Foundation, we have prepared a webinar, "Relationships in Families Raising Children with Disabilities." ?? Watch the webinar "Relationships in Families Raising Children with Disabilities" here: https://lnkd.in/diXtr3-F ???? In this webinar, you'll have the privilege of learning from the expertise of psychologist Artem Golovachov and gestalt therapist Yevgenia Zudova. They will delve into the intricacies of relationships in families with children with disabilities, analyzing the crises that may arise and sharing effective techniques to overcome them. ?? In this webinar, you'll learn about: - Tools for recognizing and managing emotional challenges in families. - How to strengthen family relationships by maintaining harmony and understanding. - Practical advice and techniques for improving relationships among family members. Share your impressions in the comments and help us spread the word about this initiative. Your participation is crucial in our mission to support families raising children with disabilities together. ?? Register for the following webinars here: https://lnkd.in/dxeHCdgy Participation is free! The "Shine" project is implemented with the support of the "Ukrainian Educational Platform." #Epiprosvita #WorldToUkrainians #PsychologicalSupport #Webinar

?? Webinar: Where to Find Resources When You're Drained and How to Establish Inner Strength. Techniques for Finding Inner Resources. ???? We invite you to watch our webinar, in which psychologist and mother of a child with a disability, Olena Koval, shares powerful techniques for restoring inner strength, which is critically important for parents of children with special needs. This video is part of a series of psychological support webinars in partnership with the "World to Ukrainians" Foundation. Olena also led an interactive session in which participants had the opportunity to practice a technique for finding personal resources. This technique will help you cope with daily challenges and improve your quality of life, igniting a spark of confidence within yourself. ?? Share your impressions in the comments and spread the word about this webinar among your friends. Together, we can build a strong and healthy society. ?? Watch the webinar "Personal Resources as Inner Strength" here: https://lnkd.in/dKGzNRWa ?? Register for the following webinars here: https://lnkd.in/dxeHCdgy Participation is free! The "Shine" project is implemented with the support of the "Ukrainian Educational Platform." #Epiprosvita #WorldToUkrainians #ResourceFinding #PsychologicalSupport #Webinar

?? Webinar: Emotional Recovery for Parents of Children with Disabilities: Best Practices and Self-Help Techniques Dear friends, together with the "World to Ukrainians" Foundation, we've launched a series of 32 webinars on critical psychological topics to support families raising children with disabilities. ?? You can watch the webinar "Psychological Self-Help Techniques for Parents of Children with Disabilities" at the following link: https://lnkd.in/dq-nHv5X ???? In this webinar, gestalt therapist Malika Shtapura and Nia Nickel, the founder of NGO "Epiprosvita" who raises a daughter with a rare genetic disorder, share techniques for adequate psychological support. You'll learn about the "family symptom," the "extreme suitcase," and how parents' emotions can affect their children. ?? Watch, discuss, and share this post! Your activity will help others find new knowledge and enrich our community discussion. ?? Don't miss out on the opportunity to learn in our upcoming webinars. Register here: https://lnkd.in/dxeHCdgy Participation is completely free! The "Glow" project is implemented with the support of the "Ukrainian Educational Platform." #Epiprosvita #WorldToUkrainians #SelfHelp #PsychologicalSupport #Webinar

?? Riding the Wave of Change: Olga Novikova on Her Past Skepticism Towards Vaccinations, Changing the System, and Why She Now Vaccinates Not Only Herself but Also Her Daughter with Epilepsy During the European Immunization Week, our volunteer and activist, Olga Novikova, gave an important interview to the national immunization portal. Once skeptical about vaccinations, Olga has revised her views and is now an active proponent. In the interview, Olga discusses the challenges and myths encountered by patients with chronic diseases in the context of vaccination. She compares the experiences of Ukraine and other European countries, analyzing why some patients and healthcare professionals doubt vaccine safety. ???? Olga shares her personal story of transitioning from anti-vaccination views to actively supporting vaccination. Her story exemplifies how knowledge and understanding can change opinions and improve community health. ?? Read the interview with Olga Novikova here: https://lnkd.in/d2jsZAni ?? Your support is crucial in overcoming the stigmas and myths about vaccination. Join Epiprosvita on social media and share our posts as first essential steps toward a healthy future! #Epiprosvita #Immunization #Epilepsy #Vaccination

?? Self-Advocacy in Action: How to Protect Your Rights for Medical Services? We understand how crucial it is to know your rights and how to defend them, especially concerning medical support for people with epilepsy and related conditions. That's why we've prepared this post to guide you on what to do if your rights are infringed. ?? If you've been denied free medical services or other state assistance you're legally entitled to, don't stay silent! Your proactive stance is critical to driving change. Here are some steps to effectively protect your rights: 1?? File a complaint. If you encounter a refusal, write a complaint to the head doctor, whether it's a hospital or the relevant institution's managing person. Check this example of a complaint here: https://lnkd.in/g-dEexx4 2?? Contact the National Health Service of Ukraine. After filing a complaint, contact the NHSU contact center at https://lnkd.in/gUThpXcf or call 16-77 to report your case. 3?? Demand an official response. Ask how soon you should expect an official reply, and don't hesitate to follow up if the reaction isn't timely. You can contact the center for free legal aid if you need legal assistance. Link to the free legal aid center: https://legalaid.gov.ua/ ?? We've also compiled some valuable resources for you on this topic: - Webinar on state aid for people with epilepsy: https://lnkd.in/gAbckmGZ - Interview about the rights of parents of children with disabilities: https://lnkd.in/gKY27EqQ The "Guaranteed!" initiative is implemented by CF Patients of Ukraine in partnership with the Ministry of health of Ukraine and Нац?ональна служба здоров'я Укра?ни, with the support of the USAID Ukraine: https://lnkd.in/dz-6TPTB Project "Health Reform Support." #Epiprosvita #epilepsy #medicalguarantees #GuaranteedPMG #patient_rights

?? Autism Awareness Day is a time to address important aspects of the lives of people with this condition. Over 15% of children with autism also have epilepsy. For many living with autism, epilepsy can be another challenging obstacle on the path to a fulfilling life. Therefore, it is important to pay attention to ensuring access to necessary resources, medical care, and psychosocial support for these individuals. So, to help everyone learn a little more about people with autism, we will debunk 5 common myths about this condition: ? Myth: All people with autism have exceptional mathematical abilities. ? Fact: While some people with autism may have a high level of mathematical giftedness, autism affects each person individually. ? Myth: Autism is caused by vaccination. ? Fact: Scientific research has found no evidence that vaccination can cause autism. Supporting vaccination is crucial for public health. ? Myth: People with autism cannot express emotions or have empathy. ? Fact: Many people with autism can express emotions and understand the feelings of others. They may just express these emotions differently from others. ? Myth: Autism can be cured. ? Fact: Autism is a disorder that cannot be cured. However, with early detection and supportive treatment, the quality of life and educational achievements of people with autism can be significantly improved. ? Myth: All children with autism have low intellectual levels. ? Fact: Autism varies in severity, and many people with autism have normal or high levels of intellectual development. Thank you for reading and sharing our posts! Together, we learn and make the world better ??

???? How to Get Free Computer Tomography in Ukraine: Procedure and Tips Ukraine offers the opportunity to receive free computer tomography for adults and children provided they have a medical referral and adhere to established procedures. This is part of the medical guarantee program, which ensures access to free medical care. 1. Obtaining a Medical Referral: The first step to getting computer tomography is to obtain a medical referral from a doctor. This could be a family doctor, a clinic doctor, or a specialized doctor who diagnoses and recommends computer tomography. The referral is issued electronically – you will receive an SMS message with the unique code of your referral. 2. Contacting a Medical Facility: After receiving the referral, the patient should contact a medical facility where computer tomography is performed. This could be a hospital, clinic, or private medical center that has an agreement with the National Health Service of Ukraine to provide free services under the medical guarantee program. ?? The list of services and hospitals participating in the program of free examinations can be obtained on the official website of the National Health Service of Ukraine: [NSZU Official Website](https://lnkd.in/dYFgN9iA) ?? Information can also be obtained by calling the NSZU contact center at 16-77. 3. Procedure: After registration at the medical facility, the patient undergoes computer tomography according to the standards and protocols established in the medical facility. You will need your unique code from the SMS message and identity documents. 4. Receiving Results: After the computer tomography, the doctor who referred the patient for this procedure receives the results of the examination. They analyze these results and make conclusions regarding diagnosis and further treatment. 5. Additional Tips: Patients are advised to clarify the terms of payment for services at the medical facility that has an agreement with the National Health Service to avoid misunderstandings. It is also important to follow all instructions from medical staff when preparing for computer tomography, such as restrictions on food and fluid intake before the procedure. ?? Remember the importance of timely medical examinations to maintain your health. The "Guaranteed!" initiative is implemented by Patients of Ukraine in partnership with @mozofficial and @NSZU_gov with the support of the USAID Ukraine Health Reform Support Project. The "Guaranteed!" initiative is implemented by?CF Patients of Ukraine?in partnership with the?Ministry of health of Ukraine?and?Нац?ональна служба здоров'я Укра?ни, with the support of the USAID Ukraine:?https://lnkd.in/dz-6TPTB?Project "Health Reform Support." #Epiprosvita?#epilepsy?#medicalguarantees?#GuaranteedPMG?#patient_rights