NEC Society

Our team looks forward to participating in the SIGNEC Meeting in London, on May 22 & 23. We love how SIGNEC takes place during #NECawareness Month! Learn more and register here: https://lnkd.in/eH2ZpM23 #preventNEC

Registration for the NEC Symposium in Chicago is open! We are proud to partner with?Cincinnati Children's?and?UNC Children's?to present the world's largest scientific conference on necrotizing enterocolitis. The NEC Symposium in Chicago will bring together 300+ physicians, multidisciplinary clinicians, scientists, patient-family advocates, and dedicated stakeholders to advance innovative strategies to better understand, prevent, diagnose, and treat NEC for infants and their families. Thank you to Medela, Milkify, Noveome Biotherapeutics, Inc., and Mothers' Milk Bank of the Western Great Lakes for supporting our conference. Register and support our work to?#preventNEC?at https://lnkd.in/eWjtZc_A #NECchicago

We are excited to open our $5,000 Research Award opportunity to pediatric surgery research fellows advancing the science of a world without necrotizing enterocolitis (NEC). Pediatric surgery research fellows dedicated to accelerating NEC research should apply! We are eager to support fellows whose work aligns with the NEC Research Priorities: https://lnkd.in/eaUdWK74 Learn more, spread the word, and apply by April 10 at NECsociety.org #preventNEC

We are proud to present the NEC Club at the?Pediatric Academic Societies Meeting, on April 26, 2025. Our session will focus on the exceptional nutritional needs of infants at risk of & diagnosed with necrotizing enterocolitis (NEC), moderated by Ravi Patel, MD, MSc, with presentations from, Shetal Shah, MD FAAP, Misty Good, MD, Rebecca Hoban, MD MPH, Jonathan Fanaroff, MD, JD, and our founder, Jennifer Canvasser, MSW. If you’re planning to attend PAS, RSVP and join us at 2025.pas-meeting.org #preventNEC?#neonatology #PAS2025

“Tragically, Micah died from complications of necrotizing enterocolitis just before his first birthday. I never got to hear his first word. I never got to take him to the park. I never got to hold his chubby baby fingers as he took his first steps. My story does not have a happy ending, so I have made it a hopeful ending, and I need you to be hopeful, too. Love and healthcare, could not save my son. But, you know what could have saved my son? And what can still save other children from cruel diseases that remain poorly understood without any treatment options? Science. Science is our path to a brighter, healthier future for babies like Micah.” Our founder/executive director?Jennifer Canvasser?kicked off Sacramento’s?Stand Up for Science?because?#science and?#research?is how we will one day?#preventNEC. Join us at NECsociety.org

YOLO for a world without NEC: https://lnkd.in/gdGfmGjt You Only Live Once, so join us for the YOLO Run for a morning of sunshine that supports the NEC Society on May 17th - Necrotizing Enterocolitis (NEC) Awareness Day ?? You can participate virtually or in person! Choose your distance and start your race to?#preventNEC NEC is a devastating intestinal disease that can affect medically fragile infants during their first weeks and months of life. The NEC Society is the world's leading nonprofit advancing NEC research, education, and advocacy. Yolo County locals, Jennifer and Noah Canvasser, launched the NEC Society after tragically losing their son, Micah, to the disease. By teaming up with UC Davis Health, the Canvasser family and NEC Society are building a world without NEC. We hope you can join us virtually or in person for the YOLO Run!?#YOLO?#RareAsOne?#runforareason?#NECawareness

Rare disease day is February 28. Necrotizing enterocolitis (NEC) is a rare disease because it affects fewer than 200,000 people in the United States - but NEC is NOT rare in the NICU. NEC is a leading cause of death in NICUs and the most common cause of death for extremely preterm infants between two weeks and two months of age. Even though NEC is not rare in NICUs, the overall challenges that we face to understand, treat, and #preventNEC are common across the rare disease community. As we strive to accelerate NEC research, secure funding, and build connections with others affected by NEC, we experience these shared obstacles together with the #RareDisease community. We are so thankful to be a part of the Chan Zuckerberg Initiative Rare as One Network, which connects us with other rare disease organizations. Together, with #RareAsOne, we share resources, tools, expertise, and connections – increasing our pace and efficiency for babies and families. You can help us build a world without NEC at NECsociety.org

We are thrilled to fund a $5,000 research award for an early career physician-scientist whose work advances the NEC Research Priorities. By supporting physician-scientists early in their careers, we are driving innovation for a world without NEC. Applicants must be: - Physician-scientists within 5 years of fellowship completion - Members of the NEC Society Research Incubator - Connected with someone in the NEC research field Applications are due March 31, 2025, at 5:00 PM ET The awardee will be recognized at the NEC Networking Session at the Pediatric Academic Societies Meeting. Apply: NECsociety.org American Academy of Pediatrics #preventNEC

We’re at the?Medela?meeting, focusing our energy on the urgent need to increase equitable access to the lifesaving power of human milk to help?#preventNEC – and it’s always an honor to present alongside?Lisa Stellwagen (Medical Director of the UC Health Milk Bank) and Lars Bode?(Director of the Human Milk Institute). We’re grateful to?Medela?for helping us build and disseminate 150 resource boxes for families recently affected by necrotizing enterocolitis (NEC). Learn more and join us at NECsociety.org

Congratulations to Venkatesh Sampath, MBBS, MRCPCH, at Children's Mercy Kansas City for receiving a $2.5M grant from The National Institutes of Health. This grant will go towards studying mechanisms underlying necrotizing enterocolitis (NEC) in premature Infants. Dr. Sampath explains in the article below, “The significance of this research lies in revealing novel mechanisms by which genetic variants program the defective intestinal mucosal barrier in NEC. Identifying these mechanisms has the potential to lead to new treatments for premature infants with NEC.” Dr. Sampath has been an active member and supporter of the NEC Society since 2018. We are so grateful for his dedication and work to #preventNEC. https://lnkd.in/ebvHBJBM