National Scleroderma Foundation

National Scleroderma Foundation

非盈利组织

Boston，MA 1,969 位关注者

A relentless force in finding a cure and improving the lives of people affected by scleroderma.

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The National Scleroderma Foundation is a 501(c)(3) nonprofit organization founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Supported by a network of thousands of individuals across the United States, the Foundation helps those living with scleroderma by providing support and education at the same time that it funds peer-reviewed scleroderma research. Since its founding, the Foundation has committed over $30 Million to discover the cause, understand the mechanism, and overcome scleroderma forever. The Foundation is home to the National Scleroderma Conference—the only educational program of its kind and scope in the U.S.—which provides access to leading scleroderma experts and up-to-date information while serving as the central meeting ground for the scleroderma community. In addition, the Foundation's Stepping Out to Cure Scleroderma walks are the country's premier awareness and fundraising events which are organized by the Foundation’s local chapters and take place throughout the year at multiple locations and virtually across the country. The Foundation is led by a dedicated, volunteer Board of Directors that exercises its fiduciary responsibilities, an extraordinary, volunteer Medical & Scientific Advisory Board comprised of world-renowned physicians and scientists, and an exemplary professional staff committed to advancing its mission through the organization's cultural values of care, connection, diversity, integrity, meaningful work, and trust.

网站
https://www.scleroderma.org
所属行业
非盈利组织
规模
11-50 人
总部
Boston，MA
类型
非营利机构
创立
1998
领域
Scleroderma、Systemic sclerosis、Localized scleroderma、Medical research、Disease awareness、Rare disease、Autoimmune disease、Raynaud's phenomenon、Patient support、Patient advocacy、Continuing medical education、Orphan disease、Research grants、Pediatric scleroderma、Scleroderma centers、Treatments and medication、National Scleroderma Conference、Scleroderma Voice Magazine和Chronic disease

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