Fill in the blank: Living with psoriatic disease has taught me to be grateful for _________. It can be hard to find moment of gratitude when living with a chronic disease, but you are doing the best you can and that's all you can do. ???? This holiday season we are grateful for you - our amazing volunteers, advocates, donors, partners, and friends. Thank you for bravely sharing your stories with us, for letting us join you in your journey with psoriatic disease, and for trusting us to advocate alongside you for the care you deserve.
National Psoriasis Foundation
健康与健身服务
Alexandria,VA 9,420 位关注者
Our mission is to drive efforts to cure psoriatic disease and improve the lives of those affected.
关于我们
The mission of the National Psoriasis Foundation (NPF) is to drive efforts to cure psoriatic disease and improve the lives of those affected. NPF provides people with information and services they need to best manage their disease, while promoting research to find a cure. In addition to being the nonprofit leader in psoriatic disease research, NPF publishes the Journal of Psoriasis and Psoriatic Arthritis (https://journals.sagepub.com/home/jps) and provides Continuing Medical Education for health care providers. In early 2016, NPF launched its Patient Navigation Center, the world's first personalized support center for people living with psoriasis and psoriatic arthritis and their caregivers. The Navigation Center provides free guidance to help you live a healthy life with psoriasis and psoriatic arthritis. Our team of Patient Navigators can help you find specialists, access new medicines and connect you to others in your community who are living with psoriatic disease. We'll work with you one-on-one to ensure that you are receiving the best care, treatment and support needed to manage your disease. For more information, call the Psoriasis Foundation at 800-723-9166, or visit www.psoriasis.org.
- 网站
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https://www.psoriasis.org
National Psoriasis Foundation的外部链接
- 所属行业
- 健康与健身服务
- 规模
- 51-200 人
- 总部
- Alexandria,VA
- 类型
- 非营利机构
- 创立
- 1967
- 领域
- psoriasis、psoriatic arthritis、research、advocacy、education、Team NPF、health care、psoriatic disease、psoriasis treatments和psoriatic arthritis treatments
地点
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主要
1800 Diagonal Rd.
Suite 360
US,VA,Alexandria,22314
National Psoriasis Foundation员工
动态
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Diagnosed when he was just 11 years old, Kelby Caldwell has been living with psoriasis and psoriatic arthritis for over 3 decades. Last summer Kelby turned his psoriasis diagnosis into a chance to take action. Learn how Kelby took action, and how you can too?? https://lnkd.in/gBBbtGZw
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National Psoriasis Foundation转发了
Plaque psoriasis isn’t just a rash—it’s a chronic, systemic disease that requires expert care. This #HealthySkinMonth, Jennifer Fagerstrom from the National Psoriasis Foundation encourages patients not to settle. Finding a doctor who considers the impact of plaque psoriasis is essential for managing different aspects of the disease. Learn more: ?? https://amgen.ly/3Zpc82v
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We’re excited to announce a new partnership with Mindera Health, a leader in precision medicine! Together, we’re continuing our mission to help patients and their doctors make informed decisions about psoriatic disease care. Learn more: https://lnkd.in/gY6R3DuR
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Start giving early! ?? #GivingTuesday is a week away, but you can make an impact today. Donate now, and your gift will be matched up to $15,000. Give the gift of hope this holiday season: https://lnkd.in/gX3DR3ZM
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National Psoriasis Foundation转发了
“The pain feels like a paper cut multiplied by 10,000 spread out over the entire body” is how one individual describes what it feels like living with Generalized Pustular Psoriasis (GPP). One of our greatest joys at National Psoriasis Foundation in “driving efforts to cure psoriatic disease and improve the lives of those affected” (our mission) is connecting patients with healthcare providers and information about treatments that can empower them to optimize their health - and break this cycle of pain. Thanks to advances in our field, that now includes targeted treatment for GPP patients. Today, I had the privilege of spending the day with the Boehringer Ingelheim team talking about our shared commitment to serving this segment of the psoriasis community. As we concluded the day with a panel discussion during their staff town hall in front of a thousand+ members of their team, I had the chance to say “thank you” on behalf of these patients for developing this new treatment option and express our enthusiasm for the potential for more individuals living with GPP to achieve optimal health in 2025. Thanks Vicky Brown, Maurizio Mazzi and team for a great discussion and day! Want to know more about Generalized Pustular Psoriasis (GPP), a rare and severe form of psoriasis in which pustules cover large areas of the body? Join the conversation between UC Davis and UCSF Associate Professors of Dermatology, Dr. Jason Hawkes, and Dr. Tina Bhutani, with Dale Reisner, a patient advocate living with GPP, as they take a closer look at GPP, some of the difficulties living with the disease and the difficulties dermatologists face managing it. https://lnkd.in/gqBJwy2k
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Today is Public Health Thank You Day! Join us in expressing our gratitude for all those who work tirelessly every day to protect the health of all people and communities! #PHTYD Want to thank your healthcare provider? Nominate them for our Medical Professional Awards program, which celebrates and recognizes those who have made an impact on the psoriatic disease field. https://ow.ly/KZLt50Q4P4X
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Too many people with psoriatic disease face treatment after treatment that doesn’t work. This holiday season, you can help change that. Join our 2024 Holiday Match Challenge with a year-end gift to support our research efforts. Every dollar you give today will be doubled up to $50,000—making twice the impact toward reducing treatment failure for those who need it most. ?? https://lnkd.in/g7X5Td7f
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Join NPF and the Greater Houston psoriatic disease community for the 2025 Starlight Soirée—an evening of inspiration dedicated to raising awareness and critical funds to fuel research and bring us closer to a cure. We are proud to honor two remarkable leaders, Stephen K. Tyring, M.D., and Patricia Lee, M.D., for their outstanding achievements and service to our community.
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On a sunny October weekend in Salt Lake City, Utah, over 100 dermatology and rheumatology residents and fellows joined expert faculty for the 2024 Dermatology Residents' and Rheumatology Fellows' Meeting. This immersive, cross-disciplinary event offered deep dives into the latest in psoriatic disease treatment, with sessions on everything from managing psoriatic arthritis and skin manifestations to exploring health disparities and cost barriers in care. Thank you to all attendees for sharing insights and working toward better outcomes for people with psoriatic disease. A special thank you to our co-chairs, Sam Hwang, M.D., Ph.D., Wilson Liao, M.D., Joseph F. Merola, M.D. MMSc, and Alice Gottlieb for leading this inspiring weekend of learning and collaboration.