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National Organization for Rare Disorders

National Organization for Rare Disorders

非盈利组织

Danbury，CT 36,722 位关注者

Alone we are rare. Together we are strong.?

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关于我们

The National Organization for Rare Disorders, a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases and the organizations that serve them. NORD, along with its 330 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient support services. NORD serves all stakeholders in the rare disease community, including patients and their families, patient organizations, researchers, medical professionals, medical students, and companies developing orphan products. NORD also works closely with many government agencies, most notably the National Institutes of Health (NIH) and the Food and Drug Administration (FDA). All NORD programs are focused on one ultimate goal -- to improve the lives of individuals and families affected by rare diseases. NORD is the official sponsor of Rare Disease Day in the US, an observance day held on the last day of February each year worldwide. Its goals are to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. To learn more, visit rarediseaseday.us. To learn more please visit the NORD website at www.rarediseases.org. You can also follow NORD on Twitter at @RareDiseases.

网站
https://www.rarediseases.org
所属行业
非盈利组织
规模
51-200 人
总部
Danbury，CT
类型
非营利机构
创立
1983
领域
rare diseases、patient assistance、patient support、rare disease information、advocacy、information for medical professionals、research、online communities和orphan diseases

地点

  • 主要

    55 Kenosia Avenue

    US，CT，Danbury，06810

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  • 1779 Massachusetts Avenue

    Suite 500

    US，DC，Washington，20036

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  • 1900 Crown Colony Drive, 4th floor

    US，MA，Quincy，02169

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