National Blood Clot Alliance

When it comes to bleeding events, the clinical focus is often on "major bleeds," while "nuisance" or patient-relevant bleeds are frequently minimized or overlooked. In this discussion, we'll address concerns about all bleeding types while on a blood thinner, offer practical strategies for navigating these conversations, and explore how to determine which bleeds are serious and require medical intervention. We’ll also discuss how to balance safety with quality of life while on anticoagulants. Reserve your spot: https://ow.ly/uiAb50UgRc4 #stoptheclot #peptalk #bloodclots #vte #bloodclotawareness #bloodcloteducation #anticoagulants #bloodthinners #bleeding #nuisancebleeding #patientrelevantbleeding

Giving Tuesday is December 3 — just one week away! This year, we’re celebrating The Power of Us, because when blood clot survivors, caregivers, allies, clinicians, and lawmakers come together, we can create real change. Here’s an action you can take today: download and use our Giving Tuesday Toolkit! https://lnkd.in/e_2vr5v6 With social messaging, fundraising tips, and blood clot awareness ideas, this toolkit makes it easy to inspire your network. Share it with your family and friends, and encourage them to join our lifesaving mission! Why does it matter? Blood clots affect nearly one million people in the United States every year. By coming together, we can: - Educate the public about prevention and warning signs - Advocate for better care and resources - Support those impacted by blood clots Individually, we are strong. Together, we are unstoppable! Get the toolkit here: https://lnkd.in/e_2vr5v6 #stoptheclot #givingtuesday #givingtuesday2024 #globalgenerosity #bloodclots #vte #bloodclotawareness #bloodcloteducation #thepowerofus

Anticoagulants (blood thinners) are lifesaving medications that help in preventing and treating blood clots. However, they come with potential risks—most notably, an increased risk of bleeding. Understanding the different types of bleeding, what to expect, and how to manage them is crucial for patients on blood thinners. In our December PEP Talk, we’ll explore the concept of nuisance bleeding, often referred to as "patient-relevant bleeding," how it differs from "clinically-relevant" bleeding, and when to seek medical attention. Attendees will also leave with practical strategies to help reduce bleeding risk and stay safe, while maintaining quality of life while on lifesaving anticoagulant therapy. Plus, we’ll discuss the future outlook for new medication options. We hope you join us for this informative session! Register: https://lnkd.in/eq7rJWgm #stoptheclot #peptalk #bloodclots #vte #bloodclotawareness #bloodcloteducation #anticoagulants #bloodthinners #bleeding #nuisancebleeding #patientrelevantbleeding

"My daughter Sydney's blood clots began in 2020 after driving six hours to Mississippi and back to visit her cousins for a week. The very next morning after returning home, she told me she was out of breath and her leg was hurting badly and had a cramping feeling. I knew immediately what was happening to her as I had been there before. I, her mom, was hospitalized when Sydney was 9 years old with a severe DVT and PE. I immediately got her to the hospital to be checked out. During that visit, they did an ultrasound and found a clot that had traveled to her lungs. They immediately placed her on apixaban and told her she only had to take it for three months. I thought it strange that they were only putting her on blood thinners for three months. They said they were doing this because of her age. In addition to myself, my sister and cousins on my mom’s side also have a history of blood clots as well as protein S deficiency, but we went with the three months they had suggested. Two years went by. In the spring of 2023, I woke up one morning to hearing Sydney downstairs coughing a really strange, wet-sounding cough. I knew immediately it was happening again. I got dressed and got her to the hospital. This time they kept her and had to perform an emergency procedure. She was hospitalized for five days and diagnosed with a saddle pulmonary embolism. The procedure was successful and after they released her she was to be on blood thinners for the rest of her life. The doctors, myself, and my sister all explained to her the seriousness of this and that she had to take this medication every day from now on. A few more months went by and one morning she came into my room and said, 'Mom, It's happening again.' I asked her if she had missed some days of her medication, but she said no. Sydney passed on November 24, 2023. She was very tall — 6 feet — and a beautiful soul inside and out. She was funny, a good person, and a giving person. She loved children and worked as a teacher at Trinity Early Learning Center in Atlanta. During middle and high school, she participated in competitive cheerleading for the Stingray Allstars for six years. Oh, how she loved that! She also cheered for football and basketball at Walton High School. Sydney had been learning and practicing to be a DJ and worked gigs under the name DJ SYDUATION. She said to me, 'Mom, things are really looking up for me at work. I got a bonus check today and I have four DJ gigs coming up in December.' She passed the same day. Sydney was my only child and she lived with me. She was 27 years old and had so much more life ahead of her. My world is broken, torn apart. My entire family and I are totally devastated. My advice to others is to pay attention if you have a charley horse or cramp in your leg. Try flexing your foot and if that doesn't fix it and you begin to feel out of breath, seek help immediately." Read other stories: https://lnkd.in/e4gUspsw #stoptheclot

Exciting progress for pulmonary embolism patients! Looking forward to this discussion tonight on #PEERLESS with expert insights from National Blood Clot Alliance MASAB member, Carin Gonsalves. . #stoptheclot Jefferson Health Inari Medical Society of Interventional Radiology

??November 13 is CTEPH Awareness Day ?? Chronic thromboembolic pulmonary hypertension (CTEPH) is a serious complication that can follow a pulmonary embolism. CTEPH can occur when blood clots don't fully dissolve, causing high blood pressure in the lungs and potentially leading to heart failure if untreated. Last night, the National Blood Clot Alliance hosted a PEP Talk on CTEPH and other complications that can occur after a blood clot with Dr. Timothy Fernandes, pulmonologist at UC San Diego Health. Dr. Fernandes explained that CTEPH is under-diagnosed and doctors need to listen to their patients when describing their symptoms. By understanding CTEPH, we can work to support those at risk and improve early detection and treatment. If you missed the PEP Talk, you can watch it here along with our other sessions: https://lnkd.in/evXfK5xQ #stoptheclot #bloodclots #cteph #ctephawarenessday #vte #pulmonaryembolism #bloodclotawareness #bloodcloteducation #ctephtreatment

On this Veteran’s Day, Stephanie “Jersey” Martinez gives a glimpse into her life as a former active duty service member, wife, mother, Thrombassador, NBCA staff member, and passionate blood clot awareness advocate. Did you know that military personnel and veterans are at an increased risk for blood clots? Several factors contribute to this elevated risk, including: 1. Injuries and surgeries: Combat-related injuries, surgeries, and prolonged immobility during recovery can increase clotting risk. These events often result in damage to blood vessels or periods of immobility, both of which are key risk factors. 2. Immobilization and long travel: Veterans often endure long travel times or may experience periods of restricted mobility, which are known to increase the risk of clots. 3. High levels of physical and emotional stress: Stress and conditions like post-traumatic stress disorder (PTSD), which is more common among veterans, can contribute to inflammation, which raises the risk for blood clots. 4. Underlying health conditions: Higher rates of hypertension, diabetes, and other cardiovascular issues in the veteran population can compound clotting risk. Increased awareness among veterans and their healthcare providers is critical, as early detection and intervention are essential in preventing serious complications from blood clots. #stoptheclot #stoptheclotstory #bloodclots #vte #dvt #deepveinthrombosis #ijvt #jugularclot #bloodclotawareness #bloodclotprevention #bloodclotsurvivor #bloodclotstory

If you’ve experienced a pulmonary embolism, or a blood clot in the lungs, watch out for these signs of chronic thromboembolic pulmonary hypertension, or CTEPH. You might have CTEPH if you notice any of these symptoms, even if you haven’t been formally diagnosed: Common symptoms of CTEPH include: - Shortness of breath, especially when exercising - Chest pain or tightness - Tiring quickly, especially when active - Swelling in the legs, ankles, or abdomen - Dizziness, lightheadedness, or fainting - Feeling the heart pounding in the chest - Coughing up blood - Discoloration of the fingers and toes If these symptoms sound familiar, speak with your healthcare provider about options for managing CTEPH and attend our next PEP Talk on Tuesday, Nov. 12 at 7 p.m. where we’ll discuss CTEPH and other long-term conditions that can occur after a blood clot. Register:?bit.ly/Nov2024PEPTalk #stoptheclot #bloodclots #vte #cteph #pts #postthromboticsyndrome #cted #cteph #bloodclotawareness #bloodcloteducation #bloodclotsurvivor #peptalk

Did you know that pulmonary embolism survivors are at risk for long-term conditions that can affect quality of life? Studies suggest that 3-5% of patients with a history of PE may develop chronic thromboembolic disease (CTED). Unlike chronic thromboembolic pulmonary hypertension (CTEPH), which involves elevated pressure in the pulmonary arteries, CTED involves chronic blockage without increased pulmonary pressure. If you experience any of these symptoms, you should see your healthcare provider for diagnosis and treatment: - Shortness of breath, which may worsen during physical exertion - Feeling fatigued quickly, especially after exercising - Chest pain or tightness - Dizziness, lightheadedness, or fainting - Swelling in the legs, ankles, or abdomen - Heart palpitations, or the feeling of the heart pounding in the chest To learn more, attend our next PEP Talk on Tuesday, Nov. 12 at 7 p.m. where we’ll discuss CTED and other long-term conditions that can occur after a blood clot. Register:?bit.ly/Nov2024PEPTalk #stoptheclot #bloodclots #vte #cted #pts #postthromboticsyndrome #cteph #bloodclotawareness #bloodcloteducation #bloodclotsurvivor #peptalk

?? Team Stop the Clot Conquers the 2024 NYC Marathon! After months of physical training and diligent fundraising to support NBCA’s blood clot awareness and education efforts, the 17 runners of Team Stop the Clot completed the New York City Marathon on Sunday! They not only crossed the finish line but also raised nearly $100,000 for VTE awareness and prevention. We couldn’t be prouder! A huge thank you to our runners, supporters, and everyone who contributed to the team. Your dedication fuels NBCA’s mission to provide life-saving education and resources to those affected by blood clots. It was a thrill watching our runners zip past us in their red and white polka dots! We hope you enjoy this video of the day, which includes each runner’s reason for joining the team. If you would like to join Team Stop the Clot in the 2025 NYC Marathon, keep an eye out for our call for applications in January 2025. Applications to join Team Stop the Clot in the 2025 United Airlines NYC Half Marathon are now open: https://lnkd.in/ewhMESv3 #stoptheclot #teamstoptheclot #bloodclots #vte #nycmarathon #charityrace #charityteam #bloodclotawareness #bloodclotsurvivor