Giving Tuesday is almost here! NAAF is extra THANKFUL for a special friend who will be matching donations up to $25,000 beginning Tuesday, December 3. Your gift will have double the impact on alopecia research and programming. support.naaf.org/movement
National Alopecia Areata Foundation
非营利组织管理
San Rafael，California 3,096 位关注者
Support research to find acceptable treatments; supports those with the disease, and educates the public about alopecia.
关于我们
The National Alopecia Areata Foundation (NAAF) serves the community of people affected by an autoimmune skin disease called alopecia areata that results in hair loss and emotional pain. NAAF is a 501(c)(3) nonprofit organization founded in 1981 and headquartered in San Rafael, CA. Our Federal Tax ID# is 94-2780249. Mission NAAF drives research to find a cure and accessible treatments for alopecia areata, supports those impacted, and educates the public about the disease. Governance NAAF is governed by a volunteer Board of Directors with advice from two Research Advisory Councils--the Basic Research Advisory Council and the Clinical Research Advisory Council. NAAF consistently meets or exceeds the rigorous standards of excellence for good governance and transparency set forth by the National Health Council and the Better Business Bureau Wise Giving Alliance. Programs To carry out our mission NAAF staff members serve our constituents in three primary program areas: support, awareness & advocacy, and research to find a treatment or cure. Highlights from each program area are presented in our award-winning Annual Reports and Newsletters. Vision And Values Our work with and for the community of people affected by alopecia areata -- including the family, friends, medical professionals, research scientists, biopharmaceutical developers and government representatives who care about them -- is informed by a Vision for each of our program areas that articulates what we aspire to as a result of our work together and ten Core Values that guide how we work together as a team to carry out our mission and move toward our vision.
- 网站
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https://www.naaf.org
National Alopecia Areata Foundation的外部链接
- 所属行业
- 非营利组织管理
- 规模
- 2-10 人
- 总部
- San Rafael，California
- 类型
- 非营利机构
- 创立
- 1981
地点
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主要
获取路线
65 Mitchell Boulevard, Suite 200B
US，California，San Rafael，94903
National Alopecia Areata Foundation员工
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Matt Kelley, MBA, LMFT
Licensed Marriage And Family Therapist in Private Practice
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Amanda Wagner
CEO at Immunitas Therapeutics
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Allison Waggoner
CMM Beekman 1802 Happy Place I Product Development I Award Winning Televison Host on HSN, QVC, QVCUK, TVSN, TSC I Classically Trained Chef I #1…
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Kris van Osnabrugge
Non-profit Fundraiser | Connector | Exceptional Relationship Builder | Innovator | Team Builder
动态
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Today's Friday Fact is that NAAF has support groups nationwide to support those with alopecia areata. Find a support group near you: https://lnkd.in/eWtuCU87
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Exploring the world of wigs can be overwhelming—and costly. With help from our community, NAAF put together a resource for people seeking insurance reimbursement for their wig. “How to Get Your Wig Costs Reimbursed by Health Insurance” provides tips and tools to help you advocate for insurance coverage, including filing claims and appealing denials. Knowledge is power! https://lnkd.in/eZsQxRD8
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Mark your calendar for Giving Tuesday, the nationwide day of philanthropy, on December 3. Show your support for the alopecia areata movement! support.naaf.org/movement
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It’s time for an update on approved alopecia areata medications. Dr. Maryanne Senna, Director of the Beth Israel Lahey Health Hair Loss Center of Excellence, will discuss the latest on the current treatment landscape for alopecia areata, including what we’ve learned from the clinical trial results and navigating discussions about treatments with your dermatologist. This live webinar will take place on Tuesday, November 19, 2024, at 7:00 pm ET / 6:00pm CT / 4:00pm PT. This webinar is part of NAAF’s You Are Not Alone, Education and Empowerment Webinar Series, supported by Pfizer, Eli Lilly and Company, and Sun Pharma. Register here: https://lnkd.in/dAMawt2F
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Did you know? NAAF is a catalyst for driving research, support, and awareness, NAAF empowers our community with more choices. We connect the patient, medical and scientific communities to drive research and treatment development, raise awareness to reduce stigma, and provide support to improve lives. If you would like to stay in-the-know of all things alopecia areata, subscribe to the NAAF eNews here: https://lnkd.in/euZnrxAZ
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Thank you again to all who participated in this year’s Walk For Alopecia? and helped to raise over $950,000! AMAZING!!! This incredible Walk For Alopecia success helped to shine the brightest light on alopecia areata and it will help NAAF continue to drive research and treatment development, raise awareness to reduce stigma, and provide support to improve lives. Check out the hope, camaraderie, fun and excitement had by teams and individuals across the country at the Walk!
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Congratulations to NAAF Board member Lisa Bard Levine, MD, MBA and her son, Benjy, ran the 2024 Boston Athletic Association Half Marathon this past weekend to honor Lisa’s daughter and Benjy’s sister, Samantha. You can support their fundraising efforts here: https://lnkd.in/eR6WkzsY
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Important news has developed about the commercial availability LEQSELVI?, the most recent treatment for severe alopecia areata to be approved by the FDA. https://lnkd.in/eN-PcDCe
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With the approval of a third treatment for severe alopecia areata in 2024, it’s time for an update on these approved medications. Dr. Maryanne Senna, Director of the Beth Israel Lahey Health Hair Loss Center of Excellence, will discuss the latest on the current treatment landscape for alopecia areata, including what we’ve learned from the clinical trial results and navigating discussions about treatments with your dermatologist. This live webinar will take place on Tuesday, November 19, 2024, at 7:00 pm ET / 6:00pm CT / 4:00pm PT. This webinar is part of NAAF’s You Are Not Alone, Education and Empowerment Webinar Series, supported by Pfizer, Eli Lilly and Company, and Sun Pharma. Register here: https://lnkd.in/dAMawt2F
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