Registration is now open for the 2024 Hybrid Fall ADRC Meeting! Join us in Boston, MA or virtually to learn about important National Institute on Aging (NIA)’s ADRC Program updates and advances in the field of Alzheimer’s disease and related dementias research. https://cvent.me/vnzmeo High Level Agenda: Tuesday, October 15 – Workshop Day -??????Data Core Workshop Wednesday, October 16 – General Sessions Day 1 -??????Administrators Meeting (invite only) -??????Outreach, Recruitment, and Engagement (ORE) Core Session -??????Special Session on Brain Donation (hosted by ORE Core and Neuropathology Core) -??????Neuropathology Session -??????New Investigator Award Program Informational Luncheon -??????Directors Session -??????Center’s Reception (supported by the Alzheimer's Association?) Thursday, October 17 – General Sessions Day 2 -??????ORE Core Leaders Closed Door Meeting (invite only) -??????National Alzheimer's Coordinating Center (NACC) Session -??????Research Education Component (REC) Poster Session -??????Data Core Session -??????NACC Steering Committee Meeting (invite only) -??????Clinical Task Force (CTF) Session -??????CLARiTI Session
National Alzheimer's Coordinating Center
学术研究
Seattle，Washington 755 位关注者
NACC maintains one of the largest relational databases of standardized clinical and neuropathological research data.
关于我们
The National Alzheimer's Coordinating Center was established in 1999 by the National Institute on Aging/NIH to facilitate collaborative research. Using data collected from NIA-funded Alzheimer's Disease Research Centers (ADRCs) across the United States, NACC has developed and maintains a large relational database of standardized clinical and neuropathological research data. In partnership with the Alzheimer's Disease Genetics Consortium (ADGC), the National Centralized Repository for Alzheimer's Disease and Related Disorders (NCRAD), and the NIA Genetics of Alzheimer's Disease Data Storage Site (NIAGADS), NACC provides a valuable resource for both exploratory and explanatory Alzheimer's disease research. NACC data are freely available to all researchers.
- 网站
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https://naccdata.org/
National Alzheimer's Coordinating Center的外部链接
- 所属行业
- 学术研究
- 规模
- 11-50 人
- 总部
- Seattle，Washington
- 类型
- 政府机构
- 创立
- 1999
- 领域
- Alzheimer's Disease Research、Research、Data、Dementia Research、Database Management和FAIR Data
地点
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主要
获取路线
4311 11th Ave NE
300
US，Washington，Seattle，98105
National Alzheimer's Coordinating Center员工
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Amy Young
Amy Young | Research & Data Analyst | Business Intelligence | Product & Program Management | Information Management & Governance | Creative Team…
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Jessica Welsch
Collaborative leader and lifelong learner, specializing in strategic use of technology and process optimization to improve health and social outcomes.
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Aileen Ida
Communications Specialist | MA in Middle Eastern Studies
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Emily Almeda
Administrative Coordinator, National Alzheimer’s Coordinating Center
动态
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National Alzheimer's Coordinating Center转发了
We are excited to highlight the transformational and ongoing impact of National Alzheimer's Coordinating Center and the National Institute on Aging (NIA)'s Alzheimer's Disease Research Centers Program on the field via a special issue of the Alzheimer's and Dementia Journal! Make sure to submit your research papers and/or review articles here by December 31,?2024: https://lnkd.in/gCgEk8wn I am thrilled to serve as a guest editor alongside Kathleen Welsh-Bohmer and Andrew Saykin. Thanks Donna Wilcock for the opportunity!
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Less than one month until the 2024 Hybrid Fall #ADRCMeeting! Register today to join us virtually, or in Boston, MA. Learn more about session topics and speakers in the newly released Preliminary Agenda! #NIAfundedADRC https://lnkd.in/gvcbjViT
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Alzheimer's is not just a disease; it's a cause that touches every family, community, and society worldwide. Whether you're providing care for a loved one, volunteering, or contributing to research, your role is pivotal in positively impacting the lives of those affected by Alzheimer's and related dementias. A heartfelt thank you to everyone who has embraced and championed the message of Alzheimer's awareness!??? ? We warmly welcome everyone to share your stories and resources in the comments. Together, we can cultivate a more resilient, supportive environment for those impacted.???
Alzheimer’s is personal for me having lost my dad to the disease in 2020. World Alzheimer’s Day yesterday was a great opportunity to reflect on where we are as a field and the critical challenges and opportunities ahead. Although enormous challenges remain for ending Alzheimer’s disease, the advent of disease modifying therapies and more accessible early detection technologies has given us more and more reasons for hope. I am incredibly proud of the work that the National Alzheimer's Coordinating Center is doing together with the National Institute Of Aging’s Alzheimer’s Disease Research Centers Program and our interoperability partners to advance the field. The comprehensive standardized multimodal data that NACC is integrating and making easily and freely available via the NACC Data Front Door has a critical role to play in empowering the global research community to effectively tackle the most pressing challenges in Alzheimer’s disease and related dementias. Discover what data is available at naccdata.org and join the fight to #EndAlz!
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Day 1 of the 2024 National Institutes of Health Alzheimer's Research Summit: Building a Precision Medicine Research Enterprise has begun! The summit will be ongoing through this Wednesday, September 25. Tune in on Wednesday to hear from the National Alzheimer's Coordinating Center Executive Director, Sarah Biber, PhD. Learn about the agenda, and access live video streams here: https://lnkd.in/gDYYEMjH
It’s Day 1 of the 2024 NIH Alzheimer’s Research Summit: Building a Precision Medicine Research Enterprise! This year’s Summit brings together leading scientists, public health advocates, and other stakeholders to discuss scientific and clinical progress in Alzheimer’s disease research. Today’s scheduled events include: ? 8:30 a.m. Introductory Remarks ? 9 a.m. Plenary Session ? 10:15 a.m. Session 1 | Deconstructing Disease Heterogeneity: From Complex Genetics to Molecular Subtypes and Shared Causal Mechanisms ? 3:15 p.m. Session 2 | Enabling a Precision Environmental Health Approach to Risk Reduction and Disease Prevention ? 5:30 p.m. Adjourn Day 1 Tune in: https://lnkd.in/eWf4ZC7M #NIHAging #ADSummit24 #Alzheimers National Institutes of Health
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Interested in joining in person for the Fall #ADRCMeeting? An additional room block has just opened! We expect the block to fill quickly - register now to get more information and book your stay! https://lnkd.in/gUfsV4bZ
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The Amazon Web Services (AWS) Healthcare and Research Innovation Forum: Seattle is beginning now! Tune in to hear from Sarah Biber, PhD, the National Alzheimer's Coordinating Center's Executive Director, and other healthcare and health research leaders who want to learn, connect, and contribute to the conversation about how cloud technology can empower research capabilities, patients, and communities. https://lnkd.in/g_ZCVf9B
Principal Global Business Development @ AWS | Genomics, Precision Medicine, Research, Healthcare
The Amazon Web Services (AWS) Healthcare and Research Forum is returning to Seattle. Join us to discuss the latest advancements in cloud technology that are helping to accelerate scientific discovery and improve patient care. Hear from experts at leading organizations including the Allen Institute, Fred Hutch Cancer Center, Nationwide Children's Hospital, Institute for Systems Biology (ISB) and more, on how they're leveraging data, analytics, and AI. This is a great opportunity for healthcare and research leaders to learn more about the latest advancements in cloud technology and share learnings with each other. I hope to see you there ! #AWS, #research, #healthcare, #genomics, #genomicsonaws, #day1, #GenAI, #AI, #ML, #precisionmedicine Register now to secure your spot. https://lnkd.in/es-xwzaJ
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The National Institutes of Health Alzheimer’s Research Summit is fast approaching! Sarah Biber, PhD, Executive Director of the National Alzheimer's Coordinating Center will present on Sept. 25 during Session 7: Building a Knowledge Network for Precision Medicine. Learn more about the event and how to register now: https://lnkd.in/gjSdbFdK
?? Save the dates: Sept. 23-25, 2024! Join NIA for the 2024 NIH Alzheimer’s Research Summit: Building a Precision Medicine Research Enterprise. The Summit will feature 70+ leading academic and industry researchers, innovators, and public health advocates to discuss a decade of progress in Alzheimer’s research and to chart the vision for the next decade. Learn more and register today: https://lnkd.in/eR-deFUS #ADSummit24 #NIHAging #AlzheimersResearch
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National Alzheimer's Coordinating Center转发了
Global dementia cases are forecasted to triple by 2050, yet there are too few breakthroughs in treatment and early diagnoses available to everyone who needs them. A new pilot program aims to change that. The National Alzheimer's Coordinating Center (NACC) within the University of Washington Department of Epidemiology, is aligning partners to increase accessible Alzheimer's and related dementias research. Gates Ventures and NACC awarded $1.4 million to teams from Oregon Health & Science University and Stanford University. The selected research projects were chosen via a public pitch competition judged by digital health experts across industry, government, and academia. Learn more about these research projects and how they can transform Alzheimer's research. #PublicHealth #Alzheimers #AlzheimersResearch https://lnkd.in/gyxsB3by
2024 Digital Pilot Awardees | National Alzheimer's Coordinating Center
naccdata.org
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National Alzheimer's Coordinating Center转发了
Congratulations to Jeffrey Kaye, Joseph Winer, and their teams for being selected as the first recipients of the new National Alzheimer's Coordinating Center and Gates Ventures AD/ADRD Digital Pilot Awards! Their pioneering applications of digital technology within the?National Institute on Aging (NIA)'s Alzheimer’s Disease Research Centers Program?and beyond will accelerate the development of critical digital biomarkers to advance AD/ADRD discovery and translation. Press release here:? https://lnkd.in/gRYW_hbU. I would like to thank our review committee for their contributions to this inaugural program and their commitment to accelerating the pace of digital innovation in AD/ADRD!? Niranjan Bose, Jessica Roberto, PhD, Vinny Beranek, Omkar Kulkarni, MPH, Rachel Sha, Linda Li, Shwen Gwee, Jason Hassenstab, Hugh Chang, Barbara T., Yuan Luo, Andrew Aschenbrenner, Ph.D., Magali Dieny Eaton, Rajesh Kumar, PhD, Nina Silverberg? ? Congratulations to all the 2024 awardees!? “EFFECT-AD: Everyday Frequent Functional Evaluation with Crosscutting Technology for AD” ? Team members: ? Jeffrey Kaye, MD (Project PI, Oregon Health & Science University) ? Zach Beattie, PhD (OHSU) ? Wan-Tai (Michael) Au-Yeung, Ph.D. (OHSU) ? Adam Staffaroni, PhD (University of California, San Francisco) ? Sarah Horn, MD (UT Health San Antonio) ? Derek Hill, PhD (PANORAMIC DIGITAL HEALTH)? ? “Characterizing sleep-wake activity patterns across the spectrum of AD/ADRD”? Team members: ? Joseph Winer, PhD (Project PI, Stanford University) ? Kelsie M. Full, PhD, MPH (Vanderbilt University) ? Jamie Zeitzer, PhD (Stanford University) ? Elizabeth Mormino, PhD (Stanford University) ? Timothy Hohman, PhD (Vanderbilt University) ? Victor Henderson, MD (Stanford University) ? Angela Jefferson, PhD (Vanderbilt University)