My Hero 360

?? Sneak preview: Next week, we'll release Nicole Spadafora's interview with My Hero 360 where she shares her experience with a life-threatening blood disorder and takes the team on location to her flower farm, located in Annandale, New Jersey. My Hero 360 is sharing an ?exclusive? tour of Nicole's greenhouse and garden where she creates beautiful floral arrangements. Subscribe to our YouTube channel so you're notified when the full interview drops. To see Nicole's amazing space, watch the preview now ?? https://lnkd.in/eiBb_ShB

"People see me and they don't realize I'm dealing with all this stuff. And maybe other people with Diabetes are also dealing with this stuff. So, I'm going to take a picture of my stuff."??? Learn more about Eritrea's experience with Type 1 Diabetes: https://lnkd.in/e-e8SrGX #myhero360 #awareness #type1diabetes #diabetes

???? Hero Spotlight: Anne Mok, an advocate, TEDx speaker, and a dedicated champion for the visually impaired and chronic illness communities. Anne shares her journey of navigating life with Cone-Rod Dystrophy and New Daily Persistent Headache (NDPH) and how she has used her experiences to create a more inclusive world. Learn more about Anne's story: https://lnkd.in/eAPzwpAX #myhero360 #awareness #coneroddystrophy #visuallyimpaired #chronicillness

Meet Eritrea Mussa, an advocate who has lived with type 1 diabetes since she was 8 years old. Eritrea had a subsequent frightening experience with diabetic macular edema (DME), a diabetes-related condition that impacts your eyesight. Committed to educating others on living with diabetes and DME, Eritrea connects people to resources to help them manage their condition. Learn more about Eritrea’s story:? https://lnkd.in/eyM2ub5V You can also listen to Eritrea's story:?? Spotify: https://lnkd.in/eW7XkKFR Amazon Music: https://lnkd.in/gYdBxB8W #myhero360 #type1diabetes #clinicaltrials

We're grateful for this thought from one of our partners this #RareDiseaseDay, Ipsen. Thank you for your continued support of Alagille families. What inspires you most about being involved in the care and support of those affected by Alagille Syndrome and other rare diseases? “Each of you motivate the thousands of colleagues at Ipsen every single day! By listening to your experiences, we gain a better understanding of how we can support the Alagille Syndrome community. It will take the collective efforts of many to improve care in Alagille Syndrome, as well as other rare diseases, and we are honored to play our part.” ~On behalf of the 5,000+ Ipsen colleagues across the world! #alagillesyndrome #rarediseaseday #rarediseasetruth

February 28th is Rare Disease Day. Recently, My Hero 360 spoke with Craig Leppert, founder of Shadow Jumpers. Craig lives with a rare painful sun-related condition called Erythropoietic Protoporphyria (EPP). The genetic condition is marked by an intense reaction to sunlight and other lights, challenging this Los Angeles-based founder to live purposefully while remaining mindful of sun and light exposure. A disease is considered rare if less than 200,000 people are affected by the disease, and there are more than 7,000 rare diseases in the world.?? Learn more about Craig’s story: https://lnkd.in/eb97aU65

February is Marfan Awareness Month. Rare Disease 360 is a proud partner of The Marfan Foundation which provides resources, education, and support for individuals with Marfan syndrome. Rare Disease 360, in partnership with My Hero 360, had the incredible opportunity to speak with Jerome Harper, who learned to lean into his vulnerabilities and faith to overcome his circumstances. Hear his story here: https://ow.ly/E3aS50V3ExP #MarfanAwarenessMonth2025 #MarfanSyndrome #MarfanSyndromeAwareness #ConnectiveTissueDisorder

?? Big News! The team here at IHM has recently revamped and strengthened our corporate website. Check it out and learn about our core audience, media brands, content awards, partnerships, contributions to our healthcare communities, and much more. I am proud to be part of a team & culture that is consistently pursuing greatness everyday, helping shape and further define what it means to be an IHM'er. Check us out to learn more: https://ihmholdings.com/

??Hero Spotlight: Bérénice Magistretti, an advocate who brings awareness to individuals with "invisible" disabilities through her writing. ?? Bérénice shares her experience with Retinitis Pigmentosa and how she learned to not just be vocal about her condition but also purposely visible. Learn more about Bérénice's full story: https://lnkd.in/eABW7sD2

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