Muscular Dystrophy Association

Today, on #NationalDoctorsDay, MDA National Ambassador Lily Sander is extending her heartfelt gratitude to the exceptional doctors throughout the MDA Care Center Network.??? We would like to take this moment to thank doctors for providing top-tier care and support for people living with #MuscularDystrophy #ALS and over 300 related #neuromuscular diseases. You make a difference in countless lives. Lily, and the entire MDA community, are endlessly grateful for your passion, dedication, and expertise. ???????

At the 2025 #MDAconference, Matthew Alexander, PhD, of University of Alabama at Birmingham, provided clinical insights on the key signaling pathways currently being targeted in the treatment of muscular dystrophies. Muscular Dystrophy Association https://lnkd.in/gBEmB2KG

??Tee up for a purpose!??? ? #MDA invites golfers, corporate teams, and supporters to championship courses nationwide from April through September 2025 to drive progress for families living with #MuscularDystrophy, #ALS, and related #neuromusculardiseases. These fundraising events help advance MDA’s mission—accelerating research, enhancing care, and advocating for people with neuromuscular diseases.? ?? Upcoming 2025 MDA Golf Events:? ????April 24 – Chandler, AZ? ????May 9 – Palm Beach Gardens, FL? ????May 15-16 – Eugene, OR? ????Sept 19-20 – Omaha, NE? ????Sept 24 – Plymouth, MA? ?? Join us on the course or volunteer! Learn more here:?https://lnkd.in/eRbmxbyn? ?? #Golf #Fundraising #MDA75?

?? What an Honor to Speak at the Muscular Dystrophy Association Scientific & Clinical Conference! ???? I had the incredible privilege of speaking at this year’s MDA Scientific & Clinical Conference in Dallas, Texas, and let me tell you—my heart is full! ???? We gathered to celebrate 75 years strong of the Muscular Dystrophy Association, an organization that has changed countless lives, including mine. For decades, MDA has been a source of hope, advocacy, and groundbreaking progress for families affected by neuromuscular diseases. From funding life-saving research to providing critical support, they have been a driving force behind advancements that are truly changing the game. To stand on that stage, in a room filled with brilliant minds, dedicated caregivers, scientists, doctors and fearless warriors—it was humbling. We are living in a time where medicine, technology, and innovation are moving faster than ever before, bringing us closer to a future where no one has to face these challenges alone. To be part of this HUGE milestone was more than an honor—it was a reminder that we are stronger together, and the best is yet to come. ?? I’m living my BEST life now, and I won’t stop advocating, inspiring, and pushing forward. To everyone out there who has ever faced adversity—keep believing, keep fighting, and never stop chasing your dreams. Because the future? It’s looking brighter than ever. ?? Drop a ?? in the comments if you believe in the power of resilience, science, community and God! Let’s keep pushing forward! #MDA75YearsStrong #LivingMyBestLife #BreakthroughsAreHappening #MuscularDystrophyAssociation #GratefulAndInspired #TheFutureIsBright #KeepPushingForward #WheelchairLife #Wheelchair

Thank you Rare Disease Advisor for your impactful coverage and collaboration as a media partner for the 2025 MDA Clinical & Scientific Conference. We appreciate your amplification of the news in research, care, and advocacy for the neuromuscular community! Shout out to Mike N., Vera Luxner, Riya Ajmera, Brian Murphy, Jolynn Tumolo, and Larry Luxner for your partnership and excellent reporting. #MDAconference #MDA75

We are thrilled to share that Kimberly Viquesney, Senior Director, Leadership & People Development at Muscular Dystrophy Association has been named one of Ragan’s Top Women in #HumanResources, Class of 2025! This honor recognizes Kim’s leadership and commitment to professional development within our organization. Her work has made a lasting impact, ensuring our organization remains a place where employees feel valued, supported, and empowered to grow and innovate in service of our mission to support families living with #neuromuscular diseases. Please join us in congratulating Kim on this well-deserved recognition! ?????? Read more about Kim and her fellow winners here: https://lnkd.in/gTuTjGg6 Ragan Communications and PR Daily

At the 2025 #MDAconference, Priya Kishnani, MD, of Duke University, delved into the transformative impact of enzyme replacement therapy on #Pompe disease, addressing its advancements, limitations, and promising innovations shaping its future. Check out the interview on our site now! Muscular Dystrophy Association

The 2025 MDA Clinical & Scientific Conference brought together over 2,500 experts, industry leaders, and patient advocates from 41 countries to advance neuromuscular disease research and care. From former FDA Commissioner Dr. Robert Califf's keynote on the future of rare disease treatment to MDA’s 75th Anniversary celebrations, this year’s event reinforced the power of collaboration. ? ???Congratulations to Dr. Katherine Mathews and Donavon Decker, recipients of the MDA Legacy Awards for their outstanding contributions to clinical research and advocacy. ? Thank you to everyone who joined us in-person and virtually, and to all our sponsors for their support! ? ???Read the full conference recap & highlights: https://lnkd.in/e-kZ6aki ? #MDAConference #MDA75 #NeuromuscularResearch #ClinicalAdvancements #RareDisease

I had the privilege of seeing this documentary earlier this week at the Muscular Dystrophy Association conference. More importantly, I have the privilege of calling donavon decker my friend. Thank you so much for letting us into your life and sharing the sacrifices you and your family have made to the field of gene therapy and muscular dystrophy research. You are a hero to so many especially to our #LGMD community. ??

UPDATE – This afternoon, President Trump officially signed a long-anticipated Executive Order to shrink the Department of Education. Muscular Dystrophy Association (MDA) reiterates the need for a strong Department to meet the needs of students with disabilities, including those from the neuromuscular community. Without it, MDA has serious concerns that there will be sufficient guidance, resources, teachers, and supports for students affected by neuromuscular conditions. MDA’s Resource Center remains committed to helping parents and students navigate this changing landscape. If you need support, contact the MDA Resource Center at 1-833-ASK-MDA1 (1-833-275-6321) or by email at [email protected]. If you or someone you know is affected by a neuromuscular condition and wants to join MDA in our advocacy efforts related to education, join our Action Network for the latest updates and opportunities to engage here: www.mda.org/advocacy