Muscular Dystrophy Association

MENTORS NEEDED: Join Muscular Dystrophy Association’s Mentorship Program! This five-week virtual program connects young people living with a neuromuscular disease to mentors from a variety of career fields such as business, education, law, science, technology, and more. As a mentor, you will lead participants through a real-world project related to your field while also sharing your higher education and career experiences. Mentors must be at least 22 years of age and established in a career. Experience working with youth with a neuromuscular disease is preferred. DEADELIN: Apply by October 18 https://lnkd.in/eYQBs9P9 Special thanks to our program supporter General Motors.

All of us at Muscular Dystrophy Association are proud to share the news that our adaptive lifestyle platform -- Quest Media -- has been named a finalist in Ragan’s PR Daily Awards in the Print Publication category! "Being recognized as a finalist for Ragan’s PR Daily Awards is a tremendous honor for MDA’s Quest Media. It reflects the power of storytelling in amplifying the voices of people in the neuromuscular disease community. At Muscular Dystrophy Association, we are committed to creating platforms that inspire, inform, and advocate, and this recognition underscores the meaningful impact we strive to achieve every day," said?Mindy Henderson, Vice President of Disability Outreach and Empowerment, and Editor-In-Chief of Quest Media, MDA. SUBSCRIBE for free here: https://lnkd.in/eFNHRRAj Ragan Communications and PR Daily

NeurologyLive recognized Dr. Forum Kamdar as Clinician of the Month for her impactful work as a heart failure physician-scientist focused on neuromuscular diseases. Earlier today, Dr. Kamdar joined our live Q&A in honor of #LGMDawarenessDay. You can still explore valuable insights on research, cardiac care, exercise, and at-home physical therapy for #LGMD by accessing the on-demand recording in 3 weeks. Learn more:?https://lnkd.in/e5fDgVcS ?

Hulu's “Patrice: The Movie” powerfully illustrates the impact of outdated SSI laws on people with disabilities, affecting their dreams, relationships, and financial stability. This isn’t just a policy issue; it’s about ensuring dignity and expanding opportunities. At the Muscular Dystrophy Association, we're advocating for change through the SSI Savings Penalty Elimination Act to raise the asset limit to $10,000, ensuring individuals can live without facing financial penalties. It's time we rethink these laws to reflect an inclusive society. Learn more in this Forbes story by Gus Alexiou with insights from Paul Melmeyer. TAKE ACTION: Urge your Members of Congress to support the SSI Penalty Elimination Act today (it just takes a few clicks!) here:?https://lnkd.in/eXBz76fs #MDA #Advocacy #SSI

Have you heard? The MDA Engage Symposium is coming to Atlanta on October 5! Join us in person for a day of learning and connection. Hear from #neuromuscular disease clinicians from Children's Healthcare of Atlanta and Emory Healthcare about topics including exercise, clinical trials, genetic testing, mental wellness, #ALS, #Duchenne (#DMD) and #Becker #MuscularDystrophy, and #SpinalMuscularAtrophy (#SMA). Network with others in the community and learn about resources. Lunch will be served. REGISTRATION is FREE here: https://lnkd.in/gYnZiwUt Special thanks to our symposium supporters Biogen, Edgewise Therapeutics, Mitsubishi Tanabe Pharma America, Inc., and Sarepta Therapeutics.

October is National Disability Employment Awareness Month (NDEAM) and Global Diversity Awareness Month. To mark the occasion, Muscular Dystrophy Association's Quest Media is proudly hosting a live panel discussion on Wednesday, October 9, at 1 pm ET to discuss the benefits of inclusive work cultures for both jobseekers and employers. Hosted by Mindy Henderson, Vice President of Disability Outreach and Empowerment at MDA, esteemed panelists include Donna Bungard, CPWA, Senior Marketing Accessibility Program Manager at Indeed for Business; Nicholas Iadevio, Jr., Vice President of Diversity, Equity, and Inclusion at L'Oréal Groupe; Stephane Leblois, MA, Chief Community and Programmes Officer at The Valuable 500; and Theo Braddy, Executive Director of National Council on Independent Living. Register here: https://lnkd.in/eeyB4SsD

Congratulations Amy Shinneman and Jamie Shinneman for completing the #BerlinMarathon! What an achievement. Way to go #TeamHumblyCourageous ??????

In 1986, #MDA's genetic task force led to a groundbreaking discovery by Louis Kunkel, PhD of Boston Children’s Hospital—the dystrophin gene, crucial for understanding many forms of #MuscularDystrophy. This landmark achievement has paved the way for targeted treatments and enhanced our grasp of the disease. Thanks to your support, milestones like this are possible. Celebrate progress and fuel future breakthroughs with us by making a donation at MDA.org/30Days?#30DaysOfStrength #MuscularDystrophyAwareness?

#MuscularDystrophyAwarenessMonth is almost over, but there’s still? time to make a difference! We have 30 unique ways you can support and connect with the #MDA community, and every action counts. Visit MDA.org/30ways30days and pick one (or more!) action to take to support our empowered, strong, and connected community.? ??

What is #musculardystrophy (MD)? --MD is a group of genetic diseases that cause progressive muscle weakness and loss of muscle mass. --The most common form of MD, #Duchenne (#DMD), is caused by a faulty gene that interferes with how muscle cells produce a protein called dystrophin. --Last year, FDA approved #Elevidys for DMD--the first-ever #genetherapy approved for any form of the disease! Check out our #PatientEducation site for free resources to help you understand this disease, including videos, an infographic, and more that you can share with your network! https://lnkd.in/gRiXcMHw Want to learn about the latest #CGT research for MD? Join us along with the Muscular Dystrophy Association in November for our inaugural Breakthroughs in Muscular Dystrophy conference (link in comments!) #MuscularDystrophyAwarenessMonth