Are you newly diagnosed with Myasthenia Gravis? We would love to connect with you to provide you with resources and support! Contact US: [email protected] #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures
Myasthenia Gravis Association
医院和医疗保健
Kansas City,MO 1,846 位关注者
Serving those impacted by myasthenia gravis in their communities.
关于我们
The Myasthenia Gravis Association (MGA) is dedicated to improving the quality of life for those who are affected by this autoimmune, neuromuscular disease through awareness, education and member services. The Myasthenia Gravis Association serves those living with MG, their family and friends in their communities. For over 60 years, the Myasthenia Gravis Association has been devoted to our mission, to increase public awareness and to provide MG-specific educational opportunities.
- 网站
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https://www.mgakc.org
Myasthenia Gravis Association的外部链接
- 所属行业
- 医院和医疗保健
- 规模
- 2-10 人
- 总部
- Kansas City,MO
- 类型
- 非营利机构
- 创立
- 1960
- 领域
- Myasthenia Gravis
地点
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主要
2340 E. Meyer Blvd
Ste 300A
US,MO,Kansas City,64132
Myasthenia Gravis Association员工
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Allison Foss
Executive Director at Myasthenia Gravis Association
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Al Dimmitt
Retired
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Sarah Bolton
Devoted Mental Health Coach & Rare DisEASE Patient/Advocate committed to helping folks with disabilities/chronic illness THRIVE despite the challenges
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Donna Whittaker
Patient Advocate for Myasthenia Gravis at Myasthenia Gravis
动态
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?? March Virtual Monthly Meetup! ???? Join the Myasthenia Gravis Association for our next Virtual Monthly Meet-Up featuring Kristina Kelly, PT, DPT, MS, EdM, NCS, CPT, PES from the University of Missouri! ?? Monday, March 24, 2025 ? 6:30 - 7:30 PM CST ?? Topic: Physical Therapy (PT) Following a Thymectomy Kristina will share expert insights on the role of PT after a thymectomy, helping you navigate recovery and optimize your strength. Don't miss this chance to learn and ask questions in a supportive space! ?? Register here: https://lnkd.in/gmDyaJWC #MGStrong #ThymectomyRecovery #MyastheniaGravis #PhysicalTherapy #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures
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?? Happy St. Patrick’s Day from the Myasthenia Gravis Association! ?? Today, we’re lucky to be part of such a strong and supportive MG community. ?? Whether you're celebrating with friends and family or taking it easy, we hope your day is filled with joy and good health! ?? Drop a ?? in the comments if you're wearing green today! #StPatricksDay #LuckyToHaveMGCommunity #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures
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?? Feeling Down? Get Some Happy Mail! ?? Living with Myasthenia Gravis or another chronic illness can be tough—but you’re not alone! ?? If you could use a little encouragement, Cards to Warriors is here to brighten your day with a heartfelt card from someone who cares. ? Apply today and get a little joy in your mailbox: www.cards2warriors.org ?? Because sometimes, a small note can make a big difference. ?? #CardsToWarriors #ChronicIllnessSupport #YouAreNotAlone #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures
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?? March is Red Cross Month! ?? From disaster relief to blood donations, the Red Cross provides vital services that support our communities—including those living with chronic illnesses like Myasthenia Gravis. ?? If you’ve ever needed emergency assistance, blood transfusions, or disaster recovery support, you know how important their work is. Consider giving back by donating blood, volunteering, or supporting their mission this month. Learn more about how you can help locally: https://lnkd.in/gSSbmGnU #RedCrossMonth #GiveBack #MGAwareness #CommunitySupport #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures
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If you are living with myasthenia gravis you are a VIP for our 14th Annual MGA Triple Crown Showdown! Email [email protected] for a special code to register and then attend in person and stop by the VIP tent to receive your special MGA tumbler! You do not have to run or walk anywhere! Just come out and help raise awareness of myasthenia gravis. Sunday May 18, 2025 Town Center Plaza, Leawood, KS www.mga5k.com #mga5k #mgatriplecrownshowdown #ihaveheardofmg #myastheniagravis #mgstrong #rarekc #careaboutrare #missouricures
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??? Celebrating National Quilting Day with Christina! ??? Today is National Quilting Day, and we’re shining a light on Christina, who recently showcased her beautiful work in a quilt show with her local quilting guild! Despite the challenges of Myasthenia Gravis, she continues to create stunning pieces. Do you quilt or have a creative passion that helps you through your MG journey? Share with us in the comments! ?? #NationalQuiltingDay #QuiltingThroughMG #MuscleMakers #CreativityAndResilience #QuiltersOfInstagram #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures
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?? Saturday Statistics: Seasonal Trends in Myasthenia Gravis Did you know? Research suggests that MG onset may be more common in the summer months and at higher environmental temperatures. ????? A recent study found seasonal variation in MG incidence, highlighting the potential influence of environmental factors on symptom severity and diagnosis rates. Understanding these patterns can help researchers and patients better manage MG symptoms year-round. Learn more: https://lnkd.in/gR5b9NiC #SaturdayStatistics #MyastheniaGravis #MGAwareness #ChronicIllnessResearch #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures
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??Don’t be irrational...Have another slice of pie!?? Happy Pi Day to all our MG friends—because you can never have too much pie (or pi)! #PiDay #PiPuns #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures
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New Blog! Art & Resilience: Celebrating the Talents of Muscle Makers Creativity is a powerful tool for self-expression and healing, especially when living with Myasthenia Gravis. This month, we're highlighting incredible stories from our Muscle Makers—individuals in our MG community who have adapted their artistic passions in inspiring ways. From painting and beading to IV pole decorations and sewing, these warriors prove that creativity knows no limits! Read their stories and join our Virtual Muscle Makers Group to share your own creative journey: https://lnkd.in/g9jKbzty #MuscleMakers #ArtAndHealing #MGAwareness #CreativityWithoutLimits #ChronicIllnessWarriors #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures
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