For those following our work in RPGRIP1-associated Retinal Dystrophy research, we invite you to check out this brief interview discussing our efforts to bring complete clinical history to researchers developing novel therapies. The patient-owned approach is essential in ensuring that researchers have access to comprehensive data and can develop effective treatments. Watch the interview here: https://lnkd.in/ekqXJkT9
Medibanx
软件开发
San Francisco,California 534 位关注者
Medibanx helps you take ownership of your medical records and receive compensation for furthering medical research
关于我们
Medibanx provides security, privacy and agency to patients to manage their health records as they see fit. Medibanx provides a system for which researchers and industry can anonymously interact with patients' records and compensate patients for the value of their records.
- 网站
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https://medibanx.com/
Medibanx的外部链接
- 所属行业
- 软件开发
- 规模
- 2-10 人
- 总部
- San Francisco,California
- 类型
- 私人持股
地点
Medibanx员工
动态
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We're riding high on excitement! Our Co-Founder & CEO, Ian T., has been spotlighted as a Pitchfest Finalist at SAAS NORTH Conference. ?? Beyond the pitch? We're super excited to mingle, connect, and brainstorm with the brilliant minds of the Canadian SaaS community. Let's elevate, collaborate, and innovate! ?? Congratulations to the fellow finalists! ? Kibby Pollak of enurgen ? Fatemeh Dastourian of Strucwise ? Jonathan C. of Bidmii ? Natalie Duncan of Bug Mars ? Sadegh Raeisi of Foqus Technologies Inc. ? Dan Sperring of Align Software ?Jack Bruner of Carbon Neutral Club Hope to see many of you there! Let's make it memorable. ???? #SaaSNorth2023 #SaaS #tech
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Medibanx转发了
We're thrilled to share some exciting news! Medibanx is proud to announce a partnership with Odylia Therapeutics, a nonprofit biotechnology company dedicated to developing treatments for rare diseases. Together, we are joining forces to advance patient-partnered drug development efforts for RPGRIP1-Associated Retinal Dystrophy. Learn more about this groundbreaking partnership and how it will impact those affected by RPGRIP1-Associated Retinal Dystrophy: https://lnkd.in/gmVibhPi At Medibanx, we've always believed in the power of collaboration, and this partnership is a testament to that belief. Odylia's expertise in gene therapy combined with Medibanx's strength in aggregating and analyzing real-world patient data is a recipe for genuine impact. But it's not just about data; it's about the individuals living with conditions like Leber congenital amaurosis 6 and juvenile-onset Retinitis Pigmentosa. Our partnership with Odylia brings hope to their voices and their stories. ?? #PatientStories Medibanx's commitment has always centered around believing that patients are the rightful owners of their medical records. Therefore, we compensate them for their contribution to furthering medical research. If you are part of the RPGRIP1 vision loss community, join us at medibanx.com/lca-6 ?? #RareDiseases #PatientEmpowerment Thank you to everyone who's been part of our journey so far. With Odylia Therapeutics by our side, we're confident in pushing the boundaries of medical research and bringing life-changing solutions to patients everywhere. Onward to a brighter future! ??
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Did you know deaf-blindness is a condition that requires thoughtful and unique educational approaches to help individuals reach their full potential? It's not just about total inability to see or hear; it's about the unique experiences these individuals have of the world. Meet Kase, a 5-year-old who communicates using American Sign Language and pictures on an iPad, or Liam, a 5th-grader who loves braille and American Sign Language. It's a testament to human resilience and the power of inclusive education. Learn more about deaf-blindness here: https://lnkd.in/g4dCSfB #DeafBlindness #InclusiveEducation #Resilience
Deaf-Blindness Overview | National Center on Deaf-Blindness
nationaldb.org
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How is Precision Medicine transforming healthcare? Precision medicine is revolutionizing healthcare by diving deep into the molecular and genetic mechanisms of diseases. It leverages this knowledge to craft targeted therapies which are not only more effective but also have reduced side effects. The cherry on top? More accurate and early diagnoses, plus highly personalized prevention strategies. Especially for complex and chronic diseases such as cancer, cardiovascular disease, and neurological disorders, this is game-changing. Medibanx embodies the transformative power of precision medicine, ushering in a new era of personalized, proactive, and patient-centered healthcare. ?? Learn more at medibanx.com! #PrecisionMedicine #HealthcareInnovation #TargetedTherapies #PatientCenteredCare
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Contribute to life science research and receive compensation for sharing your medical data! At Medibanx, we believe in empowering patients like you to make a difference in advancing healthcare. You are the rightful owner of your medical file, ensuring control and privacy over your valuable information. By securely and anonymously sharing your data, you play a crucial role in accelerating medical discoveries and improving patient care. Join us in shaping the future of personalized medicine! ???? #MedicalResearch #DataPrivacy #HealthcareInnovation #Medibanx
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We're thrilled to share some exciting news! Medibanx is proud to announce a partnership with Odylia Therapeutics, a nonprofit biotechnology company dedicated to developing treatments for rare diseases. Together, we are joining forces to advance patient-partnered drug development efforts for RPGRIP1-Associated Retinal Dystrophy. Learn more about this groundbreaking partnership and how it will impact those affected by RPGRIP1-Associated Retinal Dystrophy: https://lnkd.in/gmVibhPi At Medibanx, we've always believed in the power of collaboration, and this partnership is a testament to that belief. Odylia's expertise in gene therapy combined with Medibanx's strength in aggregating and analyzing real-world patient data is a recipe for genuine impact. But it's not just about data; it's about the individuals living with conditions like Leber congenital amaurosis 6 and juvenile-onset Retinitis Pigmentosa. Our partnership with Odylia brings hope to their voices and their stories. ?? #PatientStories Medibanx's commitment has always centered around believing that patients are the rightful owners of their medical records. Therefore, we compensate them for their contribution to furthering medical research. If you are part of the RPGRIP1 vision loss community, join us at medibanx.com/lca-6 ?? #RareDiseases #PatientEmpowerment Thank you to everyone who's been part of our journey so far. With Odylia Therapeutics by our side, we're confident in pushing the boundaries of medical research and bringing life-changing solutions to patients everywhere. Onward to a brighter future! ??
Medibanx and Odylia Therapeutics Announce Partnership to Advance Patient-Partnered Drug Development Efforts for RPGRIP1-Associated Retinal Dystrophy
medibanx.com
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Real-World Evidence (RWE) is rapidly changing the landscape of pharmaceuticals. Here are a few transformative outcomes: ?? Speedier Drug Trials: RWE implementation resulted in a 40% reduction in sample size for a pivotal phase III trial, saving six months in time. ?? Greater Inclusivity: An AI-driven study using real-world data suggested we could double the number of patients benefitting from cancer drugs. ?? Expanded Approvals: The US FDA is increasingly accepting RWE from well-designed observational trials, leading to new indications for existing drugs. These examples highlight the immense value of RWE, aligning with PwC's research and insights from industry experts. RWE is helping us make more informed decisions, deliver faster outcomes, and improve patient care. Embrace the RWE revolution! https://lnkd.in/dNWf5tWw #RealWorldEvidence #PharmaInnovation
What is the value of real-world data in pharma
pwc.com
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Protecting Your Privacy is Our Priority at Medibanx! We are HIPAA compliant, utilizing end-to-end encryption to ensure the security of your personal information. Learn more about our privacy policy and terms of service at our website. Your trust is important to us, and we are committed to maintaining strict confidentiality and respecting your consent. #PrivacyProtection #HIPAACompliant #DataSecurity #Medibanx
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What is Precision Medicine? It is an approach to healthcare that considers individual variability in genes, environment, and lifestyle for each person. It involves the use of advanced technologies, such as genetic testing, molecular profiling, and medical imaging, to understand the unique characteristics of each patient and tailor medical treatments and interventions accordingly. Discover the potential of personalized medicine with us! https://lnkd.in/gH6KVWCY #PrecisionMedicine #PersonalizedHealthcare #Medibanx