Maternal Alloimmunization Foundation

Navigating a pregnancy affected by hemolytic disease of the fetus and newborn (HDFN) - a rare condition where maternal antibodies attack fetal red blood cells - can feel overwhelming and scary. As we come together for World Alloimmunization and HDFN Awareness Day, we recognize the families impacted by this difficult disease and champion those dedicated to addressing this critical unmet need. At #PatientsasPartners2025 next week, we’re discussing how patient insights are enhancing clinical trials and accelerating discovery. You can read about our commitment to advancing therapies for #HDFN on STAT: https://lnkd.in/e25sMJkE #MaternalFetalHealth #EmpoweredInPurple #JNJImmunology

March is Pregnancy After Loss Awareness Month, a time to honor the strength of those who have carried life after loss. We stand with our alloimmunized community, holding space for the families who have endured unimaginable heartbreak due to HDFN. Too many know the pain of saying goodbye too soon. This month, we remember, we acknowledge, and we stand together. ???? #PregnancyAfterLoss #HDFN #HealingAndHope #maternalalloimmunizationfoundation #MAF #pregnancyafterlosssupport

?? Most people have never heard of Maternal Alloimmunization or Hemolytic Disease of the Fetus and Newborn (HDFN)—until it happens to them. Until a routine blood test turns into weekly ultrasounds, blood transfusions, and fighting for their baby’s life. For families facing HDFN, pregnancy isn’t just about picking names and decorating a nursery. It’s about praying for stable numbers, hoping for another week without a transfusion, and trusting that a team of doctors—and blood donors—will help their baby make it safely into the world. This Rare Disease Day, we want to shine a light on this fight. Because HDFN is rare, but the families going through it? They’re real. And they need awareness, research, and most of all—life-saving blood donations. ?? Have you or someone you love been affected by Maternal Alloimmunization or HDFN? Your story matters. Let’s break the silence together. Drop a ?? if you’re standing with HDFN families today. Tag a friend who should hear about this. #RareDiseaseDay #HopeForHDFN #FightForBaby #HDFN #MAF #MaternalAlloimmunzationFoundation??

We are so thankful for the work Johnson & Johnson Innovative Medicine is doing to help bring better care to our families who are affected by #maternalalloimmunization and #HDFN

Reflecting on an inspiring weekend at the NORD Rare Disease Summit with the MAF team! It was a privilege to join the J+J luncheon and learn firsthand about their dedication to transparency and innovation in rare disease research. Meeting Lisa Shea and her incredible team brought a personal touch to this shared commitment to better outcomes for rare disease communities. Looking forward to seeing how our efforts together continue to make a difference! #NORD2024 #RareDiseases #HDFN #maternalalloimmunization

Visit us at table #9 in the Patient Advocacy Pavilion!

NICU Awareness Day Post: ?? September is NICU Awareness Month ?? Did you know that many of the families in our Maternal Alloimmunization Foundation community have experienced NICU stays due to HDFN (Hemolytic Disease of the Fetus and Newborn)? For so many moms and babies, the NICU becomes a place of both challenge and hope as they fight for their health and future. ???? To all the warrior families and tiny NICU graduates, we see you, and we stand with you. ?? Every day in the NICU is a day closer to bringing your baby home. If your baby has ever spent time in the NICU, share your story with us below or drop a ?? in the comments to honor your little fighter! Together, we are raising awareness and supporting families through their NICU journey. ?? #NICUAwarenessMonth #HDFN #MAFCommunity #NICUWarriors