We Did It! My Lyme Data, a project of LymeDisease.org, has reached 19,000 enrolled. #MyLymeData is now the largest national study of patients with Lyme ever conducted. Learn More: https://lnkd.in/gH_wVNUj
LymeDisease.org
保健和健身
Chico，California 1,695 位关注者
We are the largest communications network for Lyme disease and the most trusted source of information for patients.
关于我们
LymeDisease.org is the largest communications network for Lyme disease and the most trusted source of information by patients. We put patients at the center and drive health care policy and science from the inside out. We believe in the importance of patient involvement at all levels of decision-making. Patients must have a voice whenever policymakers make decisions about Lyme disease.
- 网站
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https://lymedisease.org
LymeDisease.org的外部链接
- 所属行业
- 保健和健身
- 规模
- 2-10 人
- 总部
- Chico，California
- 类型
- 非营利机构
- 创立
- 1989
- 领域
- Lyme disease advocacy、Providing workshops on how to prevent tick-borne diseases.、Patient centered research、Lyme disease education、Lyme disease non-profit、Tick-borne disease education、Big Data analytics、Lyme disease research、Lyme disease policy、tick-borne disease policy和shared decision making
地点
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主要
获取路线
601 Almond Grove Ct
US，California，Chico，95973
LymeDisease.org员工
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Carolyn Degnan
COO at LymeDisease.org
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Caleb Manscill
Streamlining Healthcare | ?? on Underserved Populations
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Dorothy Kupcha Leland
President, LymeDisease.org, co-author "Finding Resilience: A Teen's Journey Through Lyme Disease" and "When Your Child Has Lyme Disease: A Parent's…
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Julia Higginson
Creative Designer at LymeDisease.org
动态
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A survivor of chronic Lyme, Amy B. Scher has dedicated her life to helping others heal. In this week’s Love, Hope, Lyme podcast, Amy shares her philosophy on healing and actionable techniques that have helped her and thousands of others reclaim their health. READ MORE https://lnkd.in/gzcduTuT
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It’s true that you don’t “get” Lyme until you get it. Once I did get it—the infections took me down. The illness was painful, frightening, and isolating. Learn more about "Fragment of Doubt" an entertaining, suspenseful read with a plot that revolves around Lyme disease by Jane Sloven .?https://lnkd.in/gBt3s3UR
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"We raised awareness of the seriousness of tick-borne illness by telling our stories." "And we asked for support for the Fiscal Year 2026 appropriations for Lyme and other tick-borne illnesses." READ MORE https://lnkd.in/gaRN7eXc
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A spate of CDC firings may severely impact Lyme disease research at the agency's Colorado facility. READ MORE https://lnkd.in/gCWzktgV
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A spate of CDC firings may severely impact Lyme disease research at the agency's Colorado facility. READ MORE https://lnkd.in/gCWzktgV
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Chronic Lyme disease, says Dr. Bill Rawls, MD, is not solely about Borrelia bacteria. It also results from the cumulative stress on the body’s cells from multiple sources. These include co-infections, toxins, stress, poor nutrition, and lack of sleep. READ MORE https://lnkd.in/g4WRBRAA
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In this article, Dr. Richard Horowitz, the MEDICAL DETECTIVE, begins a 5-part series on Bartonella. He calls it a tricky bacteria, that like Lyme disease, "has found a way to not only avoid immune recognition, but change its clinical characteristics so it resembles a broad range of other diseases."? READ MORE https://lnkd.in/giRsEYHq
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By the author of the new book Lyme with a Twist: A Path to Triumph over Chronic Infection. "Eventually, with myself as test subject, I created a multi-pronged protocol based on in vitro studies that indeed began to work..." READ MORE https://lnkd.in/g8WMFJ-C?
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The Australian Senate has launched an inquiry into access to diagnosis/treatment of Lyme & other tick-borne infections. Professor Holly Ahern of the United States recently submitted the following written comments and was also asked to give verbal remarks. READ MORE https://lnkd.in/egeXktXb?