Lorenzo's House

What is Lorenzo's Youth Summit? Lorenzo's Youth Summit in our 5th annual Summit, taking place on June 20th & 21st. A free, virtual worldwide event that unites the daughters and sons of younger-onset dementia. This gathering creates a powerful space for connection, support, and advocacy, bringing together young people from around the globe who share this unique journey. Why Sponsor? Join us in shining a light on YOD while expanding your reach worldwide! As a sponsor, you’ll have the unique opportunity to connect with over 400 youth and families navigating younger-onset dementia, sharing your organization’s mission, programs, products, or services in a deeply meaningful space. To learn more and inquire about sponsorship, follow the link: https://lnkd.in/enVstFf2

Tune in to Episode 2 of ‘Young Wisdom: Hear us out.’ A new Lorenzo's House series- an exchange between the sons & daughters on a younger-onset dementia journey. We believe that sharing our story empowers others to share theirs - ultimately building a YOD-informed society. In our second episode, daughters of YOD, Jaelyn & Shanelle explore the challenges as daughters on this journey, and the moments of light it brings whilst sharing tips and resources to empower sons and daughters navigating younger-onset dementia. To listen to the full epsiode on our Youtube, follow the link : https://lnkd.in/eHwD7cFC #webringlight #light #dementia #livedexperience #dementia

Youth Play a Critical but Hidden Role in Dementia Care AACY is pleased to share the latest edition of the Voices of Alzheimer’s newsletter, which highlights the often-overlooked role of Caregiving Youth in dementia care.?The article?“Time to Act: Youth Play a Critical but Hidden Role in Dementia Care”?underscores the urgent need for greater awareness and support for the estimated 5.4 million youth caregivers in the U.S. In the piece, a former high school caregiver who supported his grandmother with Alzheimer’s shares a simple but powerful message: “The need for support services for teenage caregivers is HUGE.” Despite growing recognition of family caregivers, youth caregivers remain largely invisible in policy and practice. The article explores the emotional, academic, and financial challenges they face and the limited resources available to help them navigate their responsibilities. Connie Siskowski, RN, PhD, founder and president of the American Association of Caregiving Youth (AACY), stresses the importance of changing public perception: “People have a visual image of a child who is hungry or homeless, but they lack a mind image of a Caregiving Youth. We must work together to change this.” The piece also highlights a step in the right direction: the recent introduction of the Lifespan Respite Care Reauthorization Act of 2025, which clarifies that caregivers under 18 can access respite services—an important recognition of their role. ARCH National Respite Network and Resource Center AACY remains committed to supporting Caregiving Youth through skills-building workshops, emotional support, and advocacy efforts to ensure they no longer remain hidden. We thank Voices of Alzheimer’s for shedding light on this issue and loved the inclusion of our national partner, Lorenzo's House, which is doing tremendously impactful work for young caregivers who are walking with younger onset dementia. Read the full article in the Voices of Alzheimer’s newsletter: https://lnkd.in/efw_3WSM]

? The Countdown is On! ? Just a month away until April 10th, we premiere Shifting The Narrative: The Story of Lorenzo’s House— our short film that shares how one family's journey with younger-onset dementia became a sanctuary of hope, connection, and light for families everywhere. This film is more than a story. It’s a tool for awareness, education, and change- a call to action to build a younger-onset dementia (YOD)-informed society. ?? Virtual Screening & Panel Discussion with sons, daughters, carepartners and experts in the field. ?? April 10th – 12pm CT (6pm GMT) or 6pm CT Join us and Register now https://lnkd.in/eBgi52ud #webringlight #dementiajustice #dementia #youngeronsetdementia Tessa Garcia McEwen, AM, LCSW, CDP James Mastrianni Patti LaFleur, M. ED, CDP Diana Shulla Cose

Such an important start together this week! Creating a ‘Connectivity Blueprint’ for our state - to ensure we find and connect every Wisconsin family of younger-onset dementia (YOD). Endless gratitude for the knowledge, insight and heart everyone brought to the table. Let’s do this together - for families of YOD in WI and everywhere!

Lorenzo’s House is honored and grateful! Yesterday we met with the brightest and most sincere dementia leaders in Wisconsin and learned so much! Together we began to dream up ways to ensure that not one son, daughter or family member of younger-onset dementia (YOD) in this state, experiences this journey alone … instead united and in community. Wendy Betley Shanelle Snowden MBA,CDS ,Michael S., Becky Reichelt, Heidi H. Neeley, Jody Krainer, Jennifer McAlister, Grania Mckittrick, Stephanie Fitzgerald, Diana Shulla Cose, Sabrianna (Bree) Ruge, CDP, Andrea Garr, Patti LaFleur, M. ED, CDP, Nia N., Nathaniel Chin Tara Hefty, MSW, LCSW, Taylor Bianchi, Abigail Freeman University of Wisconsin-Madison, Alzheimer's Association Wisconsin Chapter, Wisconsin Department of Health Services

Beautiful afternoon in Wisconsin! A team of carer families and passionate professionals creating a YOD-Wisconsin Task Force… dreaming up ways to ensure that not one family across this states navigate a YOD journey alone - instead,??united and community. #webringlight #dementia #yodtaskforce #YODinformedsociety #carers #YoungerOnsetDementia

?? Music, Movement & Community is going HYBRID! ?? Now, you can join us in person in Chicago or virtually from wherever you are! ???? An in-person & virtual interactive experience where music and expression ignite joy—designed for families navigating younger-onset dementia.? This is in an inclusive and stimulating learning environment of personal connection and fun.? ?? 2nd & 4th Saturday of the month ?? 11:00 AM - 12:30 PM CT | 5:00 PM - 6:30 PM GMT ?? Join us! Follow the link to register: ?? Music, Movement & Community is going HYBRID! ?? Now, you can join us in person in Chicago or virtually from wherever you are! ???? An in-person & virtual interactive experience where music and expression ignite joy—designed for families navigating younger-onset dementia.? This is in an inclusive and stimulating learning environment of personal connection and fun.? ?? 2nd & 4th Saturday of the month ?? 11:00 AM - 12:30 PM CT | 5:00 PM - 6:30 PM GMT ?? Join us! Follow the link to register: https://lnkd.in/eNy3Thbb?

We are privileged to be working with Lorenzo's House, the global hub of support for families affected by younger-onset dementia. Based in Chicago, they serve families in 48 US states and 17 countries... and that's just the beginning. The most amazing people and the most amazing mission! ??

Only a few more days until our Youth Voices webinar with Lorenzo's House! We are so excited to be collaborating with this incredible group. Sign up to join us on March 6th at 6pm ET: https://lnkd.in/e4NPhbik