From life-changing diagnoses to bold futures—hear how four young #BloodCancer survivors are shaping their paths forward with the support of The LLS Scholarship for Blood Cancer Survivors. ???? Their goals range from becoming doctors and physical therapists to cinema makeup artists and human rights advocates. What unites them is their determination to make their educational dreams a reality. We sat down with these incredible individuals to hear what they’ve been up to—and what they’re most excited about for the future. Read on ??
The Leukemia & Lymphoma Society
非盈利组织
Rye Brook，NY 87,905 位关注者
United in progress toward a world without blood cancer.
关于我们
We are The Leukemia & Lymphoma Society, the largest nonprofit dedicated to creating a world without blood cancers. Since 1949, we’ve invested more than $1.3 billion in groundbreaking research, pioneering many of today’s most innovative approaches. We work tirelessly to find cures and ensure patients can access the lifesaving treatments they need. When someone experiences the fear and uncertainty of a cancer diagnosis, we provide hope, compassion, education and support. And we are making an impact in the cancer community. More than 70 years of fighting blood cancers has led us to a game changing belief. The cures for cancer are in our blood. We focus on three key areas: Research We are the largest nonprofit funder of blood cancer research. Advocacy We advocate at the state and federal level for policies to ensure blood cancer patients have access to affordable care and the most innovative therapies. Patient Support We are the leading source of free information and support for blood cancer patients, including help finding appropriate clinical trials. Within our Mission, we are committed to providing information, resources and support to those affected by blood cancers through various campaigns, including, Team in Training, Light the Night, Man & Woman of the Year, Student of the Year, Big Climb, and Hero Squad. Join us on social media: Facebook: https://www.facebook.com/LLSusa Twitter: https://twitter.com/LLSusa Instagram: @llsusa Tik Tok: @llsusa To learn more, visit https://www.lls.org
- 网站
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https://www.lls.org/who-we-are/about
The Leukemia & Lymphoma Society的外部链接
- 所属行业
- 非盈利组织
- 规模
- 1,001-5,000 人
- 总部
- Rye Brook，NY
- 类型
- 非营利机构
- 创立
- 1949
- 领域
- Fighting blood cancer、Man & Woman of the Year、MWOY、TNT、LTN、BLOOD CANCER、blood cancer、cancer、patient support、LLS、Myeloma和Non-Profit
地点
The Leukemia & Lymphoma Society员工
动态
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“The news came that I had been dreading after three days of being hospitalized. Finally, they would tell me my diagnosis. ‘Michele, you have leukemia.’ I will never forget my response. ‘Phew…at least it’s not cancer.’ I looked at my loved ones' faces. They all looked at their hands, the ground, anything but at me. To my surprise, no one was laughing. That’s when I realized and said, ‘Oh, it IS cancer.’ I started crying and immediately apologized over and over to my family for getting sick. In my mind, I had ruined our lives. I had ruined everything. I was diagnosed with acute lymphoblastic leukemia (ALL), a blood cancer. It had taken over 85% of my body and I was given less than a 10% chance of surviving. Laughter is the best medicine after all. Laughter is how I made it through leukemia, my double cord blood transplant and the intense recovery. Laughter is what kept us going when my mother and primary caregiver was diagnosed with Stage 3 breast cancer the following year while still taking care of me. My mother went above and beyond as my caregiver, and I knew every day how fortunate I was to have her by my side. Her skills as both a caregiver and a mother amazed everyone around us, including the hospital staff and doctors. Fast forward to almost 10 years later, and against all odds, I'm still here. Like so many cancer survivors, my story is one filled with bravery, hope, love, pain, and such deep sorrow.” This #NationalFamilyCaregiversMonth, we honor the sacrifices made by family caregivers, like Michele's mom, who supports her loved ones facing #BloodCancer while also being a patient herself. Caregivers, you are not alone. We are here for you in all the ways that matter—just as you are there for your loved ones. #NFCM #LLSCaregiver For resources, visit ?? https://bit.ly/4fKIf2e
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For caregivers, love is served on every plate. ?? Nutrition is essential as you care for others, and you don’t have to navigate it alone. Reach out today to schedule a free, one-on-one consultation with one of our registered dietitians by calling 877-467-1936 or visiting ?? https://bit.ly/3Z8VuTj #NationalFamilyCaregiversMonth
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?? Today is LLS Student Visionaries of the Year National Signing Day! The next generation of change-makers are stepping up! ?? Student Visionaries of the Year empowers high schoolers to lead, dream big, and work toward a world without blood cancers. Leukemia is the #1 most diagnosed childhood cancer and the second leading cause of cancer deaths among children and adolescents. You can help change that by joining a nationwide movement of young people committed to saving lives. ?? Big shoutout to the inspiring candidates who’ve already signed up! Check out our current candidate class and if you're still on the fence, learn why past candidates have made the commitment to sign on to save lives ?? https://bit.ly/3OhoxiP #LLSVisionaries
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They have a vision of a world without #BloodCancer! ? Save the date! ?? On 12/3 let's show the world ?? that progress can’t wait! #GivingTuesday
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“When my husband Ken was first diagnosed and treated for acute myeloid leukemia (AML), it felt like we were trapped in a fierce storm, tossed about in a fury of wind. He underwent intense treatment, spending a total of 120 days in the hospital in 2019, culminating in a bone marrow transplant (BMT). After surviving the treatment and overcoming the leukemia, we now find ourselves looking around in a strange land—much like Oz. The intensity of the storm has passed; we have landed on solid ground after the free fall from the cliff. However, we now face a new life filled with chronic pain and struggles. These challenges can leave us exhausted and drained. The frustration of this endless abyss and the helplessness of watching someone you love dearly to struggle every single day is a common experience among caregivers of BMT patients. I remember a bulletin board in the hospital where he was transplanted that said, ‘Every day may not be a good day, but there is good in every day.’ Caregiving is stressful, whether provided by family, friends, or professionals. It’s essential to take breaks, recharge, and prioritize your own well-being. A burned-out caregiver means that now two people need help, so it’s important to recognize your limits and seek support when needed. Caregiving is a marathon, not a sprint, so take each day as it comes—maybe even each moment—and try to enjoy the good in each day.” This #NationalFamilyCaregiversMonth, we acknowledge the sacrifices family caregivers make while supporting their loved ones with #BloodCancer, like Lori and her family.? As a caregiver, you understand the mix of heartbreak and reward that comes with caring for someone you love. Thank you for all you do!? You are not alone. For resources and support visit ?? https://bit.ly/4fWnrVr #NFCM #LLSCaregiver
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Exciting news in blood cancer treatment! ?? The U.S. FDA recently approved a therapy to treat patients with newly diagnosed multiple myeloma who are not eligible for a stem cell transplant. “Stem cell transplants work well for people with multiple myeloma who are young and otherwise healthy, which leaves too many people out since 2 of every 3 patients are diagnosed after the age of 65,” says Lee Greenberger, Ph.D., Chief Scientific Officer at The Leukemia & Lymphoma Society. “This new drug, which is given in a combination, reduces the risk of disease progression or death by 40%.” Get all the details ?? https://bit.ly/3Cttnql
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We are propelling the next generation of blood cancer care! ??With more than $250 million in research funding commitments, we are bringing new hope and?new treatments to patients. Some of the newest projects we are funding: ??Dr. John Crispino (St. Jude Children's Research Hospital - ALSAC): Understanding why children with Down syndrome are at higher risk of leukemia and developing better treatments ???Dr. Jean Koff (Winship Cancer Institute of Emory University): Investigating why some patients with lymphoma have worse outcomes than others. ?? Dr. Rayne Rouce (Texas Children's Hospital): Advancing CAR T-cell therapy for T-cell blood cancers, especially in children, adolescents and young adults. ?? Dr. Alfred Garfall (Penn Medicine, University of Pennsylvania Health System): Testing a new way to limit treatment side effects?in people with multiple myeloma. ?? Dr. Gaurav Goyal (University of Alabama at Birmingham): Studying long-term challenges for survivors of rare forms of blood cancer. Find out how we’re uniting with innovative scientists across the world to find more cures and improve the lives of all blood cancer patients, survivors and their families ??
The Leukemia & Lymphoma Society 2025 Research Grants Include Acute Leukemia in Children with Down Syndrome
lls.org
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Behind every loved one’s well-being is the unwavering love and dedication of a caregiver. Drop a ?? below if this is you or someone you know. We’re honoring their incredible strength, compassion, and kindness that make such a profound difference. ?? Caring for yourself is just as important—let us help with resources designed for caregivers like you ?? https://bit.ly/48Mm3lU #NationalFamilyCaregiversMonth
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"In my experience, the most visible populations within the cancer patient community are very young children and senior adults. I found it very challenging to find people in their teens and early 20's to relate with. Once I began getting involved in the patient/survivor community, I started to meet more people who were closer in age to me. When you're a child with blood cancer, you have a parent making all the important decisions for you. But once you turn 18 and are considered a ‘young adult’ all that responsibility falls on you. Although I was technically an adult at that age, I had a ton to learn about the medical system and how to make informed decisions for myself. Through my experience advocating for myself, I have learned how important it is to be involved in patient advocacy. When it came to my care, there were many things that would not have been considered if I did not know to ask for them. I was enjoying my freshmen year of college one day and the next I was hospitalized for a relapse of lymphoma. I was forced to reflect on how often I would stress myself out, and how little most of those things mattered. If in some awful turn of events I did not survive, the bad grade I got on my physical test would be the last thing I cared about. Because of what I consider to be a near-death experience, I have forced myself to have more balance in my life. I still take my work life very seriously, but I also realize what things in life are truly my top priority. When I'm having a tough time, I just have to take a deep breath and remember everything I’ve already been through.” A #BloodCancer diagnosis can feel isolating at any age, but especially during formative years, like at 11 years old and being a freshman in college, like two-time lymphoma survivor Naomi, who continues to advocate for herself, and others. Together, we strive to develop new treatment options for children and young adults enabling them to celebrate milestone moments and achieve balance in their everyday lives. The Dare to Dream Project was created to increase treatment options, provide emotional support, facilitate programs like the Patti Robinson Kauffman First Connection program, and connect young adults like Naomi to necessary resources. Learn about Dare to Dream ?? https://bit.ly/4exeeBI #WeDareToDream4Kids
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