Live Like Lou Foundation

Remembering our founder, Neil Alexander ?? June 25, 1965 - March 24, 2015 A decade after his passing, Neil's vision of leaving ALS better than he found it is stronger than ever. Inspired by Lou Gehrig’s resilience, the Alexander family founded LiveLikeLou.org to fund ALS research, support families, and raise awareness. Today and always, we honor his legacy—awarding nearly $500K in scholarships, advancing ALS research through $8 million in grants and institutional partnerships, and honoring Lou and Neil's legacy by raising awareness for this disease. Neil’s vision lives on in everything we do. ?? Learn more about Neil and his incredible legacy here: https://lnkd.in/gDmraJer

Our friends at Mitsubishi Tanabe Pharma America are hosting a live webinar one week from today on Building a Strong Support Network. Topics include: ??The importance of having the right support network? ??Working with ALS support groups and resources ??Navigating the wealth of ALS information available ??Firsthand experiences with support groups and resources Register today: https://lnkd.in/gS3u6KkT

Last night, we came together for the third annual All 4 Lou Showdown in Nashville! ?? The @vandyboys took on Belmont University, but the real heroes were the Live Like Lou ALS families who inspired us all. Special thanks to Avery Palmer, who threw out the first pitch in honor of her mom, Laura, who is living with ALS. She impressed the players with her perfect pitch! We were honored to present Evan Campa with a Vanderbilt-branded power wheelchair thanks to our friends at the @permobilfoundation—Evan and her beautiful family have been involved with Live Like Lou’s campaign to fund a Director of ALS Research at VUMC since 2020. Special thanks to Veronique Belzil and her team of scientists for joining us and updating us on her recent research at VUMC—exciting news will come from their work. Coach Tim Corbin, thank you for leading your team to champion supporting their community. We are grateful to you, Maggie, and your team for showing up for others and a great night of Vandy baseball. #All4Lou #LiveLikeLou #ALSresearch #VandyBoys

Happy St. Paddy's Day! ?? Today, a day about "luck," we think about our namesake. On July 4, 1939, also known as Lou Gehrig Appreciation Day at Yankee Stadium, he addressed the crowd to share his diagnosis of ALS and said farewell to the game of baseball.? “Fans, for the past two weeks, you have been reading about the bad break I got,” said Lou. “Yet today, I consider myself the luckiest man on the face of the earth. I have been in ballparks for 17 years and have never received anything but kindness and encouragement from you fans.” A fatal diagnosis, yet he called himself the "luckiest." We're honored to carry on his legacy through our work and take inspiration from Lou's words to be grateful, even in the face of adversity. #luckiest #livelikelou

We're excited to announce our first MLB game of the 2025 season! Milwaukee, we're coming for you! Live Like Lou will be at American Family Field on April 19! ?? The Brewers' ALS Awareness Game will honor Christian Yelich, the team’s Lou Gehrig Memorial Award nominee. Before the 6:10 p.m. game against the A’s, the Live Like Lou Foundation, Phi Delta Theta, and Permobil Foundation will take the field for a special presentation to a family affected by ALS. A ticket block has been reserved, and you can get your tickets here— https://bit.ly/3Fw1YW8

Spring training mode: ON! ?? Counting down to March 18 when MLB action kicks off in Tokyo! We’re pumped to drop our brand-new 3/4 sleeve baseball tees—available in both youth & unisex sizes. ?? Use code PLAYBALL for 10% off through March 19! Grab yours now at livelikeloustore.com & gear up for the season!

We're Hiring! ?? Join the Live Like Lou Foundation as we expand our reach and impact! We're seeking a dedicated professional to drive philanthropic support and build meaningful relationships with donors, corporations, and community stakeholders. This role is key to our 2025 strategic plan and achieving our mission. Learn more here: https://bit.ly/4bOCtLP

We're #hiring! Do you know anyone who might be interested in a role with a dynamic, small team doing meaningful and impactful work to leave ALS better than we found it? Apply by March 28 at https://lnkd.in/gSgJzyqq

What an exciting opportunity to visit Lou Gehrig's alma mater and recognize an outstanding student-athlete. Join me in NYC on April 6 when Columbia takes on Cornell! Admission is free and we'll have a pre-game presentation to a local ALS family you don't want to miss. ??

In honor of Brain Awareness Week, the members of the Cures Collective are sharing some facts about the brain and early symptoms of neurodegenerative diseases (NDs).??? Oftentimes, NDs go undiagnosed for months. We’re bringing awareness to these diseases and their symptoms and invite you to get involved in finding a cure to end NDs! Learn more at https://lnkd.in/ept3RHGR.