LGMD Awareness Foundation, Inc.

Do you have an upcoming appointment with your neurologist or other LGMD clinician? Check out our list of discussion starter questions! Perhaps a few of these questions can help your discussion at your next clinic appointment. ?Download the "Discussion Starters" at https://lnkd.in/gdQiJuay #LGMDawareness #CureLGMD #TogetherWeAreStronger

??NOVEMBER IS NATIONAL FAMILY CAREGIVERS MONTH?? Caregivers play a vital role in the lives of many individuals living with limb-girdle muscular dystrophy (LGMD). They are often spouses, parents, siblings, children, other family members, friends, and/or employees. They all become important members of the LGMD community as they assist individuals with LGMD in living productive lives! As the disease progresses, individuals living with LGMD may need the assistance of a caregiver to help with: ? Showering &/or bathing ? Dressing ? Toileting ? Transfers in/out of a chair, bed, or wheelchair ? Repositioning in bed ? Meal preparation ? Household chores ? Transportation Usually, the need for assistance may begin intermittently for portions of a task and then later transition into daily ongoing assistance with more tasks as weakness progresses. Becoming dependent on the assistance of a caregiver can be very challenging to accept and adapt to in a person’s daily routine. It can also become overwhelming and exhausting for a caregiver to assume these additional tasks. PLEASE TAKE TIME THIS MONTH TO SHOW APPRECIATION TO ALL CAREGIVERS IN YOUR LIFE! From LGMD Awareness Foundation, we say “THANK YOU” to all the caregivers. Their strength, sacrifice, and compassion are vital in the lives of individuals who are fighting these rare neuromuscular diseases! “Together We Are Stronger” #LGMDawareness

Check out the "LGMD Spotlight Interview" featuring Nancy, who has LGMD 2C/R5 and lives in the United States. ?? Read the full interview at https://lnkd.in/ghrHBiUY #LGMDawareness #CureLGMD #TogetherWeAreStronger

This unique project is focused on bringing LGMD awareness to clinicians, patients, family members, and caregivers. ?? The LGMD Advocacy Bundle project bridges the gap between clinicians and patients through advocacy support while supplying helpful tools and resources for staff and patients. Visit our website to download the resources today ? https://lnkd.in/gdQiJuay #LgmdAwareness #togetherwearestronger

Today is LGMD Awareness Day! ?? Help us Advocate - Educate - Celebrate limb-girdle muscular dystrophy. Please share our post to help raise awareness. ?? To learn more, visit www.LGMD-Info.org #LgmdAwareness #lgmdday2024 #TogetherWeAreStronger

Thank you, Governor Tony Evers, for the proclamation declaring September 30, 2024, as Limb-Girdle Muscular Dystrophy Awareness Day throughout the State of Wisconsin! ?? LGMD Awareness Foundation is proudly based in Wisconsin. As we prepare to celebrate the 10th annual LGMD Awareness Day, we are grateful that Wisconsin Governors have issued a proclamation every year for us. (If you submitted a proclamation request from your governor, please let us know when it arrives so we can share the good news.) #LgmdDay2024 #TogetherWeAreStronger #LGMDawareness

To learn more about LGMD, please visit our website: https://LGMD-Info.org #LGMDday2024 #LgmdAwareness #LgmdFacts #TogetherWeAreStronger

?? To learn more about LGMD, please visit our website: https://LGMD-Info.org #LGMDday2024 #LgmdAwareness #LgmdFacts #TogetherWeAreStronger

Thank you, Governor Laura Kelly, for the Proclamation declaring September 30, 2024 as Limb-Girdle Muscular Dystrophy Awareness Day in Kansas! ?? We also want to thank Tamara S Roberts-Blackwell, the "LGMD Ambassador", who requested this proclamation. #LGMDday2024 #LGMDawareness

Get ready to join us in shining a light on limb-girdle muscular dystrophy (LGMD). ?? Learn more https://www.lgmd-info.org #lgmdawareness #togetherwearestronger #LimeGreen4LGMD