Legacy Health Strategies

Are you ready to give trial participants what they really want? Patients expect to receive data and results in clinical trials as they do in other health care settings, but their expectations are often unmet. If this doesn’t change, the clinical trial experience will increasingly frustrate and disappoint participants. We’re here to help! Download our latest article to help you think through critical considerations as a sponsor moving forward in sharing research data and results to participants, a practice that fosters trust and transparency.? Here’s what you’ll find in the article:? - 4 Ethical Benefits of Returning Data to Patients?? - 4 Key Areas to Ensure Responsible Data Sharing with Patients? - 4 Strategies to Align?Implementation with Ethical Principles? Leading sponsors have been collaborating on guidance documents, emerging best practices, and responsible methods of implementation. Our team of experts has been at the table since the beginning, focusing on how we can better meet the needs of participants before, during, and after clinical trials. There is so much you can do without impacting the integrity of the trial. No longer is this unchartered territory. In fact, when you move forward with responsible data sharing, you become a sponsor of choice. Download the full article at https://lnkd.in/emFhnipw. Follow Legacy Health Strategies on LinkedIn to stay tuned for the 3rd part of our Data Return Series, created in collaboration with ProofPilot ’s Chief Strategy Officer Joseph K. #ClinicalTrials #ResearchEthics #PatientEngagement #Transparency #Innovation #Gratitude #MovingForward #DrugDevelopment #PatientCentricity?? ?

Thank you, Clinical Leader, for publishing our 2-part article on the ethical return of individual patient data, a topic that is central to our mission at Legacy Health Strategies. We're grateful for the opportunity to contribute to this critical conversation. Part 2 is below. #IndividualPatientDataReturn #PatientEngagement #LegacyHealthStrategies

Thank you, Clinical Leader, for publishing our 2-part article on the ethical return of individual patient data, a topic that is central to our mission at Legacy Health Strategies. We're grateful for the opportunity to contribute to this critical conversation. Part 1 is below. #IndividualPatientDataReturn #PatientEngagement #LegacyHealthStrategies

Thank you, Clinical Leader, for publishing our article on the ethical return of individual patient data, a topic that is central to our mission at Legacy Health Strategies. We're grateful for the opportunity to contribute to this critical conversation.

On this Grateful Patient Day, I’m giving a very well deserved shout-out to my amazing medical team at the Fox Chase Cancer Center - Temple Bone Marrow Transplant Program! May you always remember how important your life-saving work is for patients like me! #GratefulPatient #ThankYouHeroes #BeatCancer

Will you be attending next week's Healthcare Advocate Summit in Las Vegas? If so, join Legacy's own Lori Hall on September 5 at 10am PT as she joins PAN Foundation's Amy Niles and patient advocate Phyllis Bass for the session: "The role of patient education: Health literacy and equity in the context of Medicare Part D reforms." Hope to see you there! ? #ForAdvocates?

Join us in celebrating Lisa’s work anniversary! Lisa has now been with Legacy Health Strategies for two years as of this month.?Throughout this time, she’s repeatedly proven to be an incredible asset for our team, and we’ve been overjoyed to have her. Congratulations, Lisa, and thank you for all that you do! #Celebrate #Congratulations #WorkAnniversary #Appreciation #VPofTechnology #Legacy #TeamMember #ThankYou?

We were grateful to DPHARM for this opportunity to discuss how we use our digital communication platform to connect patients and sponsors, making clinical research more inclusive and accessible, especially for communities of color. We also got to discuss overcoming the challenges in turning patient insights into action, the benefits of personalized communication, and the positive outcomes of community-focused strategies. #PatientEngagement #CommunityEngagement #Editorial #Interview

I'm so impressed! This is Ireland’s third National Strategy for Travellers and Roma – 2 communities that experience much higher rates of economic disadvantage and social exclusion than exists for other disadvantaged communities. Low health literacy is among their many barriers. #HealthLiteracy #Empathy The new strategy addresses key issues and themes that emerged during discussions directly with Traveller and Roma community organizations, state agencies and departments, and through a comprehensive consultation process held with each community at the local level. #CommunityEngagement #DesignThinking The focus of future delivery will be on equal access to education, employment, health and housing, effectively fighting racism and discrimination, and promoting equal participation. #HealthEquity #HumanRights

Don't take our word for it. Engage with patients directly and ask what's important to them -- just like Joseph K. does so well here. And thank you for sharing your information needs and preferences as a patient, Mackenzie Abramson, MPH. Your voice matters!