Journal of Patient Experience

"Transforming Health and Care Experiences with Research and Actionable-Insights" -- We are pleased to reveal our new cover and mission statement. We recently launched a new website to better promote our mission: https://lnkd.in/eWqMRqEH Support the mission of the Journal. Sign-up for our free monthly digest: https://lnkd.in/eWG5XSEd Our Leadership Team at The Journal of Patient Experience looks forward to supporting your transformation efforts: ? Laura Cooley, PhD, Editor-in-Chief ?Rachel Biblow, Associate Editor, Strategy, Innovation, and Outcomes ?David N. Bernstein, Associate Editor, Value-Based Health Care and Clinical Transformation ?Katherine Harville Osborne, PhD, Managing Editor ?Shirin Amouei, Doctoral Fellow We offer complimentary conversations to explore your goals regarding publishing, speaking, and advising. Feel free to direct message regarding your goals and upcoming events. Sage, our official publishing partner, will officially update our new cover on the submission pages soon https://lnkd.in/e6kmM_c #PatientExperience #HealthCare #PatientEngagement #ValueBasedCare #VBC #PREMs #PatientReportedOutcomes #PROMs #CAHPS

Attending NGPX 2024 in Palm Springs, CA? We are pleased to partner as a media supporter. Meet our Editor-in-Chief Laura Cooley, PhD and share your ideas for research, patient perspective, and industry insights articles. We also offer advising and speaking support for organizational leaders striving to advance their experience efforts. https://lnkd.in/efu4rK3M SIGN-UP: "Transforming Health and Care Experiences with Research and Actionable-Insights". A free monthly digest supported by The Journal of Patient Experience https://lnkd.in/eWG5XSEd Next Generation Experience Events #NGPX Charleen Ring #PatientExperience #PatientEngagement #HumanExperience

What Steps Can Be Taken to Ensure Equitable Care for All NICU Families? Experiencing the NICU as a parent can be incredibly challenging, especially when compounded by racial and ethnic discrimination. This latest study in the Journal of Patient Experience explores how racism impacts families in the NICU. Through surveys and open-ended responses from parents, the study reveals that discrimination often manifests subtly as neglectful care, with parents noting disparities in attention and treatment based on race. The findings highlight the need to address implicit biases and ensure equitable treatment for all families, promoting a more inclusive healthcare environment. Reference: Smith O, Karvonen KL, Gonzales-Hinojosa MD, et al. Parents Experiences of Racism in the Neonatal Intensive Care Unit. Journal of Patient Experience. 2024;11. ?? Read the full article here: https://lnkd.in/ejRJDfSY Laura Cooley, PhD Sage

?? How can healthcare organizations foster safer, more positive patient interactions? In today’s healthcare landscape -- where incidents of workplace violence are on the rise -- new approaches to patient interactions are crucial. This latest study in The Journal of Patient Experience explores how empathy and self-awareness, paired with traditional de-escalation techniques, can transform patient experiences in ambulatory clinics. This tailored training, which includes empathy-focused and self-reflective content, showed promising results in decreasing patient complaints and improving satisfaction. Reference:?Phipps K. The Utilization of Empathy and Self-awareness Models to Deescalate Violence in the Ambulatory Clinic Setting. Journal of Patient Experience. 2024;11. Links to the article (and to our free monthly digest on?Transforming Health and Care Experiences) are below in the comments. Laura Cooley, PhD Sage

What are the emotional impacts of Long COVID, and how can we address them in patient care? This article examines the broader emotional and psychological toll of Long COVID, revealing implications beyond the individual patient experience. The study shows that Long COVID triggers significant feelings of loss, not just in physical health but also in mental well-being, social connections, and personal identity. The wider implications of these findings underscore the urgent need for a model of care that focuses on emotional resilience and support for patients coping with long-term health challenges. Key Insights: ?? Loss Across Multiple Domains: Long COVID patients report profound losses in physical health, mental well-being, social connections, family roles, and self-identity, requiring comprehensive care that goes beyond physical symptoms. ?? Emotional Toll Mirrors Grief: Many patients experience grief similar to the Kübler-Ross stages (denial, anger, bargaining, depression, and acceptance), highlighting the psychological burden of living with persistent health issues. ?? Need for Mental Health Integration: The emotional impact of Long COVID underscores the importance of incorporating mental health services, such as counseling and peer support, into treatment plans to address anxiety, depression, and isolation. ?? Broader Implications for Chronic Illness Care: The findings suggest that healthcare providers can use these insights to improve care for other chronic, invisible illnesses by integrating mental health support, palliative care, and grief counseling into regular care protocols. Reference: McAlearney AS, Eiterman LP, Mayers E, Eramo JL, MacEwan SR. A Journey Through Grief: Experiences of Loss Among Patients With Long COVID. Journal of Patient Experience. 2024;11. Full article: https://lnkd.in/eTmsVuMB ************ SIGN-UP: Free monthly digest: “Transforming Health and Care Experiences with Research and Actionable-Insights" https://lnkd.in/gwv-YxSz ************ #LongCOVID #PatientExperience #ChronicIllness #PatientCare Laura Cooley, PhD Sage

This Special Collection will explore how patient experience, health outcomes, and VBHC intersect to shape the future of healthcare. We invite submissions that address: ? Using Patient-Reported Outcomes (PROMs) and Patient-Reported Experience Measures (PREMs) to enhance VBHC. ? Innovative, inclusive, and sustainable care delivery solutions. ? Strategies for empowering the healthcare workforce to deliver meaningful care. Submit your work today and join the conversation to help transform the future of healthcare! Submission link: https://lnkd.in/ed9fSguV Laura Cooley, PhD

How can patient stories reshape healthcare and reduce burnout? This article explores the impact of using a patient-recorded audio intervention to improve communication and empathy within healthcare settings. Patients respond to four key questions about their personal preferences, what brings them joy, and how they wish to be cared for. These recordings are then integrated into the electronic health record for healthcare staff to access. The study found that the majority of medical staff reported increased empathy and improved communication with both patients and their families. Key Takeaways: ?? Improved Empathy: The use of brief patient-recorded audio files significantly increased empathy among healthcare staff, with 53% of respondents feeling more connected to their patients after listening. ?? Enhanced Communication: The TIMS intervention improved communication between healthcare teams and patients' families, with 63% of staff reporting better interactions after engaging with the audio files. ?? Personalized Care: By integrating personal stories into the electronic health record, medical teams gained deeper insights into patients' preferences, enhancing the delivery of more personalized, patient-centered care. ?? Reduced Burnout: The audio files helped reduce distress for some healthcare professionals, potentially easing burnout by fostering a stronger emotional connection to patients. Reference: Tracey E, Wilson J, Im C, Abshire-Saylor M. A Brief Patient-Recorded Audio File Called TIMS (This Is My Story) Improves Communication and Empathy for Healthcare Teams in the Hospital. Journal of Patient Experience. 2024;11. Full article: https://lnkd.in/grZ9Pvaw ************ SIGN-UP: Free monthly digest: “Transforming Health and Care Experiences with ?Research and Actionable-Insights" https://lnkd.in/gwv-YxSz ************ #PatientCenteredCare #ImprovingCommunication #EmpathyInHealthcare #PatientExperience Laura Cooley, PhD Sage

What additional steps can healthcare professionals take to involve caregivers more effectively in the decision-making process? Gastrostomy tube insertion is a life-changing decision for families, but the right support can make all the difference. This study surveyed caregivers to understand their experiences and the challenges they face. The results? Caregivers overwhelmingly praised the clarity of information provided by medical teams but pointed out areas where they needed more support, particularly post-insertion. Managing the gastrostomy tube and concerns about their child’s oral intake were top challenges. Key Takeaways: ?? High Satisfaction with Medical Guidance: Caregivers reported high satisfaction with the information provided by healthcare professionals about the gastrostomy procedure, particularly when they understood the reasons for the tube insertion. ?? Emotional and Logistical Challenges: While many caregivers felt relief after the procedure, they also experienced stress related to managing the gastrostomy tube and maintaining their child’s oral intake. ?? Importance of Peer Support: Nearly half of the caregivers connected with others in similar situations before the procedure, and most found peer support reassuring, highlighting the need for formalized peer support networks. ?? Empowering Caregivers: Caregivers expressed concerns about managing complications, suggesting that healthcare teams could focus on providing more resources, training, and tools to help them independently manage minor technical issues. This study emphasizes the importance of providing comprehensive, timely information and peer support to caregivers to alleviate concerns. Reference: Kinsella C, Dunphy A, McCormack S, Wilson C, Bennett AE. Experiences of Parents and Caregivers of Children Who Underwent Gastrostomy Tube Insertion. Journal of Patient Experience. 2024;11. Full article: https://lnkd.in/gJS6giMc? ************ SIGN-UP: Free monthly digest: ?“Transforming Health and Care Experiences with ?Research and Actionable-Insights" https://lnkd.in/gwv-YxSz ************ #CaregiverEmpowerment #PediatricHealthcare #PatientExperience Laura Cooley, PhD Sage

How can fostering personal connection reduce burnout and compassion fatigue among healthcare professionals? This article assesses the impact of the Tell Me More (TMM) program on healthcare professionals’ connectedness with their patients. The program encourages meaningful dialogue between healthcare providers and patients to understand the patient beyond their diagnosis and illness. Researchers surveyed and interviewed healthcare professionals to measure how TMM impacted their relationships with patients. Providers reported feeling they knew their patients better, and patients felt the same about them. This deepened connection helps separate patients from their illness, creating space for more compassionate care and improving patient outcomes. Key Takeaaways: ?? Enhanced Provider-Patient Connection: The "Tell Me More?" (TMM) program significantly improves how well healthcare providers feel they know their patients, fostering stronger personal relationships and more patient-centered care. ?? Reduced Burnout and Compassion Fatigue: By encouraging deeper connections between providers and patients, TMM helps alleviate feelings of burnout and compassion fatigue among healthcare professionals. ?? Improved Care for Non-Verbal Patients: TMM facilitates better understanding of non-verbal patients by involving their families, offering insights into their personal lives that improve the quality of care. ?? Positive Impact on Communication with Support Networks: The program strengthens communication between healthcare providers and patients' support networks, enriching the care process by understanding the patient's social context. Explore the findings in the full article. Reference: Belin B, Aron I, Bhagat S, Fornari A, Ahuja TK. Tell Me More? As A Tool for Provider Connectedness With Hospitalized Patients: A Mixed-Methods Study. Journal of Patient Experience. 2024;11. Full article: https://lnkd.in/eqnwmxVp ************ SIGN-UP: Free monthly digest: ?“Transforming Health and Care Experiences with ?Research and Actionable-Insights" https://lnkd.in/gwv-YxSz ************ #PatientCenteredCare #CompassionFatigue #PatientCare Laura Cooley, PhD Sage

What Steps Can Be Taken to Ensure Equitable Care for All NICU Families? This article explores how racial and ethnic discrimination affects families in the NICU. Through surveys and open-ended responses from parents, the study reveals that racism often manifests subtly as neglectful care, with parents noting disparities in attention and treatment based on race. The findings highlight the need for NICUs to address implicit biases and ensure equitable treatment for all families, promoting a more inclusive healthcare environment. Key Takeaways: ?? Coexistence of Care and Harm: Parents in the NICU often experience a mixture of compassionate care and harmful neglect, with some attributing negative interactions to racial or ethnic discrimination. This duality highlights a complex environment where quality of care is inconsistent. ?? Racism as Neglectful Care: Instances of racism often manifest subtly through neglectful treatment. Parents reported disparities in care based on racial concordance, where infants of the same race as NICU staff sometimes received preferential treatment, especially during critical care moments like feeding. ?? Power Imbalance in Advocacy: The study highlights the significant power differential between NICU staff and parents, particularly during parental advocacy. Parents often felt dismissed or undervalued when voicing concerns, which exacerbated feelings of powerlessness and impacted their ability to advocate effectively for their infants. ?? Need for Equity in NICU Care: The findings emphasize the urgent need for NICUs to address implicit biases and reinforce equitable care practices. By fostering awareness and training on racial sensitivity, NICUs can improve interactions with families and create a more inclusive care environment. Learn more about our findings and the steps NICUs can take to promote inclusivity in patient care by reading the full article. Reference: Smith O, Karvonen KL, Gonzales-Hinojosa MD, et al. Parents Experiences of Racism in the Neonatal Intensive Care Unit. Journal of Patient Experience. 2024;11. Full article: https://lnkd.in/ec8HJ__5 ************ SIGN-UP: Free monthly digest: ?“Transforming Health and Care Experiences with ?Research and Actionable-Insights" https://lnkd.in/gwv-YxSz ************ #InclusiveCare #PatientAdvocacy #HealthcareEquity #NICU Laura Cooley, PhD Sage