INCLUDE Data Coordinating Center

Are you working with the INCLUDE Data Hub? Join the INCLUDE Data Coordinating Center (DCC) for our monthly office hours!? ? ?? Next Session: Wednesday, February 12th ? Time: 12:00–1:00 pm ET ?? Zoom link: https://bit.ly/3CwYrpK ? Whether you're new to the platform or a seasoned user, our experts are here to answer your technical questions and help you make the most of the INCLUDE Data Hub. Don't miss this opportunity to connect and enhance your research! Tag a colleague who might be interested! ?? #INCLUDEProject #DataScience #Research

Are you working with the INCLUDE Data Hub? Join the INCLUDE Data Coordinating Center (DCC) tomorrow for this month’s office hours! ?? Date: Wednesday, March 12th ? Time: 12:00–1:00 pm ET? ?? Zoom link: https://bit.ly/3CwYrpK These office hours will provide an opportunity to connect with our INCLUDE experts, answer your technical questions?and gain insights into effectively using the INCLUDE Data Hub. Tag a colleague who should hop on! ?? #INCLUDEProject #DataScience #Research

Join the INCLUDE Data Coordinating Center (DCC)?for a virtual INCLUDE Data Hub Webinar on?Wednesday, April 16, 2025 from 12:00 - 2:00?pm ET. During the event, you can learn about the INCLUDE Data Contributor Guide, the management of INCLUDE clinical data and the newest features in the Data Hub. Dr. Tracie Rosser, Dr. Jessica Ezzell Hunter and Dr. Joaquin Espinosa will share about the INCLUDE Project's?newest?additions: The Down Syndrome Cohort Development Program (DS-CDP) and Down Syndrome Biorepository (DS-Biorepository). Register today at https://bit.ly/43tshWW.

Join the?INCLUDE Data Coordinating Center?(DCC)?for a virtual INCLUDE Data Hub Webinar on?Wednesday, April 16, 2025 from 12:00 - 2:00?pm ET. During the event, you can learn about the INCLUDE Data Contributor Guide, the management of INCLUDE clinical data and the newest features in the Data Hub. Dr. Tracie Rosser, Dr. Jessica Ezzell Hunter and Dr. Joaquin Espinosa?will share about the INCLUDE Project's?newest?additions: The Down Syndrome Cohort Development Program (DS-CDP) and Down Syndrome Biorepository (DS-Biorepository). Register today at https://bit.ly/43tshWW.

BDRP2025 Symposium Announcement: Down Syndrome: Assessing Outcomes Across the Lifespan ? Down syndrome research continues to evolve, providing new insights into health outcomes across the lifespan. This symposium will highlight recent findings from a trans-NIH research initiative focusing on health and quality-of-life needs for persons with Down syndrome, called the INCLUDE (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE) Project. This symposium will also explore the various co-occurring conditions and altered health risks for individuals with Down syndrome. ? Speakers include Joaquin Espinosa (Linda Crnic Institute for Down Syndrome), Deborah Fidler (Colorado State University), Philip Lupo (Emory University School of Medicine), and Sonja Rasmussen (The Johns Hopkins University School of Medicine). #BDRP2025 #DownSyndrome #INCLUDEProject?#NIH #ECHO #NCI #NICHD #NIEHS

Interested in staying connected with the latest INCLUDE DCC news and events? Check out our Winter 2025 Newsletter and subscribe today at https://bit.ly/4iaOqh4!

As we’ve worked to build the INCLUDE Data Coordinating Center, our team has received valuable feedback from across the Down syndrome community. On our FAQ page, we’ve gathered a list of the most frequently asked questions that have been submitted by community groups, self-advocates and families. ? Learn more about INCLUDE expectations, policies and how you can get involved at https://includedcc.org/faq.? ? If you would like any additional information about the NIH INCLUDE Project or the INCLUDE DCC, feel free to contact us at https://bit.ly/4kesYcR.

Join members of the INCLUDE DCC team at the Emory University 2025 Down Syndrome Research Symposium on March 8th in Atlanta, GA! Executive Director of the Linda Crnic Institute for Down Syndrome and INCLUDE Investigator, Joaquin Espinosa, PhD, will be presenting "Recent Research Advances and New Clinical Trials Benefiting Individuals with DS." All parents, caregivers, self-advocates, siblings, students and research professionals are welcome. To learn more and register, visit https://bit.ly/4gPZAqk ? Schedule for Spanish language program/Horario del programa en espa?ol here: https://bit.ly/3EQEif1

?? Happening Now! ?? Are you working with the INCLUDE Data Hub? Join the INCLUDE Data Coordinating Center (DCC) today for this month’s office hours! ? ?? Date: Wednesday, February 12th ? Time: 12:00–1:00 pm ET (happening now!) ?? Zoom link: https://bit.ly/3CwYrpK ? Whether you're new to the platform or a seasoned user, our experts are here to answer your technical questions and help you make the most of the INCLUDE Data Hub. Don’t miss out—join us! ? Tag a colleague who should hop on! ?? #INCLUDEProject #DataScience #Research

?? Have questions about how to use the INCLUDE Data Hub? Our comprehensive INCLUDE DCC Help Center provides answers to common questions and expert guidance to help make the most of your research experience. Learn more at help.includedcc.org. #ResearchSupport #INCLUDEProject #NIHResearch