International Neuroendocrine Cancer Alliance

?? Kudos to Stichting NETNECkanker and vzw NET&MEN Kanker Belgium for presenting Think NENs Global Educational Program for Primary Care Physicians to the medical experts at the Dutch and Belgium ENETS Centres of Excellence.? ?? The NET patient perspective was voiced at the annual Dutch Belgian Neuroendocrine Tumor Society (DBNETS) conference in October. DB-NETS is a collaboration between the Dutch and Belgium ENETS Centres of Excellence. ?? Dirk Van Genechten, on behalf of the VZW NET&MEN Kanker, and Faye Tukker-Wijntjes, on behalf of the Stichting NETNECkanker, urged the specialists to talk about this free CME-accredited e-learning course with the primary physicians they are in contact with, to make sure more PCPs can better understand NENs and improve NEN diagnostics, care and patient outcomes.? ?? Read more: https://lnkd.in/dMEAuDSY #LetsTalkAboutNETs #NeuroendocrineCancer #ThinkNENs?

Britta from Denmark had a cough for 20 years and had been treated for asthma. The NET diagnosis was reached after a doctor finally referred her for scan and biopsy. ?? Read Britta’s story: https://lnkd.in/eiyUY2gn Neuroendocrine cancer can be easily missed by clinicians if they are not aware of this diagnosis as a possibility. Very often when patients present with recurrent symptoms for a long time, they get misdiagnosed with a more common condition. ?? Check out all NET patient stories to learn from patients’ experience: https://lnkd.in/d28nrb6t ?? Help the #primarycarephysicians you know to think NENs: Show them the free online video CME-accredited course in 6 languages: https://lnkd.in/dNekTBDK ?? Let the doctors around you get a snapshot of 26 types of NETs in 11 languages: https://lnkd.in/dFFQyhw #LetsTalkAboutNETs #NeuroendocrineCancer #ThinkNENs?

?? Today is #WorldPancreaticCancerDay. ?? Let’s talk about neuroendocrine cancer of the pancreas. Neuroendocrine cancer of the pancreas is a rare cancer that starts in specific cells within the pancreas called neuroendocrine cells. This makes it a very different disease to pancreatic cancer (adenocarcinoma) – which starts in other cells within the pancreas and has a very different treatment pathway and outcome. ?? Healthcare professionals have to be aware of pancreatic NET (pNET) to be able to detect it early. ?? Let the doctors around you get a snapshot of pNETs with #NETInfo in 11 languages: https://lnkd.in/dFFQyhw ?? Help the #primarycarephysicians you know to think NENs: Show them the free online video CME-accredited course in 6 languages: https://lnkd.in/dNekTBDK ?#LetsTalkAboutNETs #NeuroendocrineCancer #ThinkNENs?

?? Let’s help #primarycarephysicians think NENs! ?? Prof. Mehmet Ungan, primary care physician from Turkey, Past President of WONCA Europe, active Professor at Ankara University School of Medicine, has a message for his fellow primary physicians around the world. ?? “My advice to my colleagues, to general practitioners, for detecting NENs – first, think about them. If there are several symptoms, which are repeating from time to time, think about NENs and refer to specialists.” ?? Watch the video with Prof. Mehmet Ungan: https://lnkd.in/dJqpAnXr ?? Check out and spread the news about the free online CME-accredited Think NENs Global Educational Program for Primary Care Physicians, available in 6 languages: English, French, German, Italian, Portuguese and Spanish: https://lnkd.in/dNekTBDK #LetsTalkAboutNETs #NeuroendocrineCancer #ThinkNENs

?? NENs are getting more common. Incidence and prevalence are rising.? Now you can watch the new insightful video presentation from a NET research leader: a presentation by Dr. Thorvardur Halfdanarson on “Meaningful Involvement of Patients in NET Research”. ?? Learn about trends in epidemiology of neuroendocrine cancer and more here: https://lnkd.in/dDsP4sNR ?? Find a NET clinical trials close to you with the global NET clinical trials finder: https://lnkd.in/dABv_heE #LetsTalkAboutNETs #NeuroendocrineCancer #ClinicalTrials?

?? Did you miss the European Neuroendocrine Tumor Society e.V. (ENETS)-INCA NET Cancer Day Educational Webinar on November 12th? ?? Now you can watch the recording of the event designed exclusively for NET patients and caregivers: https://lnkd.in/dnn9Y6Gj ?? You will find answers to many questions related to symptom control, new treatments and the future fostered by genomics. #LetsTalkAboutNETs #NETCancerDay #ThinkNENs ?

?? Merkel Cell Carcinoma (MCC) is a very rare neuroendocrine carcinoma that can spread quite quickly to surrounding skin and can metastasize to internal organs such as the liver and/or lungs. ?? Mariska from the Netherlands had a simple red spot on her face. It grew rather quickly and in 6 weeks it had grown a serious lump. She was lucky to have a GP who suspected something more and sent her for examination.? ?? It is vital that healthcare professionals are aware of Merkel Cell Carcinoma to be able to suspect it in patients with common symptoms. ?? Let’s help doctors with a #NETInfo factsheet on MCC – available in the following 11 languages: Arabic, Chinese, English, French, German, Hindi, Italian, Japanese, Portuguese, Russian and Spanish: https://lnkd.in/dFFQyhw #LetsTalkAboutNETs #NeuroendocrineCancer #MerkelCellCarcinoma

?? Help Improve NEN Cancer Care! ?? Join the NEN RADAR Survey: https://lnkd.in/dU_KjGxQ ?? Are you a NEN cancer patient or a healthcare professional treating NEN cancer with Peptide Receptor Radionuclide Treatment (PRRT)? We need your voice! The NEN RADAR Survey is gathering insights on: 1.????What do you know about PRRT? 2.????What’s your experience with PRRT? 3.????Can you access PRRT? ?? NEN RADAR Survey comes from SPARC Europe - committed to understanding how PRRT is understood, experienced, and accessed. Your input will shape evidence-based policy recommendations to ensure more patients can benefit from this life-saving treatment. ?? Your voice = Better access, better outcomes! Available in multiple languages including English, French, German, Spanish, and Italian. ?? Take the survey now and make a difference in the future of NEN cancer care! Want to learn more or have any questions? Feel free to reach out to SPARC Europe at [email protected] #LetsTalkAboutNETs #NeuroendocrineCancer #NeuroendocrineNeoplasms?

?? New insightful video presentation from a NET research leader: watch the presentation on “Meaningful Involvement of Patients in NET Research” by Dr. Thorvardur Halfdanarson. ? Learn about: ·???????Trends in epidemiology of neuroendocrine cancer ·???????Reporting on two new clinical trials ·???????Models of patient involvement in research design ?? Watch the video here: https://lnkd.in/dDsP4sNR #LetsTalkAboutNETs #NeuroendocrineCancer #ClinicalTrials?

?? Kudos to NET Italy ETS for fostering consistent successful collaboration between NET patient and medical community: in October, NET Italy brought the patient perspective at the IT.A.NET national congress, the Italian association of NET specialists. ?? NET Italy is proud to announce that the Itanet Associaz. italiana tumori Neuroendocrini IT.A.NET patronage was obtained and the NET medical association will support NET Italy in disseminating information on the Think NENs Global Educational Program for Primary Care Physicians (available in Italian), so that it can reach a larger number of GPs. ?? Find out more about the collaboration between patients and medical experts in Italy and watch the discussion:?https://lnkd.in/d3cqsj5U #LetsTalkAboutNETs #NeuroendocrineCancer #tumoreneuroendocrino #ThinkNENs