IHI-SYNTHIA

The SYNTHIA Consortium Supports #RareDiseaseDay 2025: Leverage synthetic data to advance personalized medicine in Multiple Myeloma and DLBC ??. On #RareDiseaseDay, we reaffirm our commitment to driving data-driven innovation for rare diseases. In SYNTHIA, we focus on 6 use cases among which Multiple Myeloma (MM) and Diffuse Large B-Cell Lymphoma (DLBCL)— 2 complex hematological malignancies where data availability is crucial for research, yet often limited due to privacy and accessibility constraints. SYNTHIA Synthetic Data Generation (SDG) developers, FAIR #data experts, clinical #researchers, developers of therapies and data-based tools, legal experts, socio-economic analysts, #regulatory, #policy advocacy, and communication experts aim to provide a 360o vision of how to advance healthcare applications through SD use. Follow us in this challenge. #SYNTHIA is funded by the Innovative Health Initiative (IHI) #RDD2025 #SYNTHIA #SyntheticData #RareDiseases #MultipleMyeloma #MM #Lymphoma #DLBCL #DataInnovation #PrecisionMedicine #FutureOfMedicine #Datascience #EUInnovation #HealthResearch #publicprivatepartnership #hematology

Attention, everyone at #SWAT4HCLS in Barcelona, Spain! Our partner, Núria Queralt Rosinach from Leiden University Medical Center (LUMC), will showcase the accepted SYNHTIA abstract as a poster, titled: Assessment of metadata descriptors of AI-ready datasets. To advance the use of Artificial Intelligence, including notably Machine Learning, for the understanding of diseases and conservation of biodiversity, it is important to promote FAIR AI-ready datasets. However, it is not clear how much AI-ready metadata is covered in well-known dataset repositories such as OpenML, Hugging Face or Kaggle. During the BioHackathon Europe 2024, the research team tackled this problem following a programmatic approach and applying Semantic Web technologies. In this scientific publication it is shown the preliminary results on the coverage of the implemented Croissant metadata format and discuss its implications in ML data management and future steps. @SWAT4HCLC is the 16th International Conference on Semantic Web Applications and Tools for Health Care and Life Sciences. Check the programme: https://t.co/9JvM747y6v #DataScience #DataInnovation #AIinHealthcare #DigitalHealth #AIHealth #HealthTech #Healthcare #Innovation #TechEvent

#Syntheticdata, artificially generated to mimic real patient data, presents a solution to many of the challenges faced in #health #research today. These data allow researchers to overcome the limitations of access to high-quality, real-world datasets and address growing concerns about patient privacy. Questions have lingered about the quality and applicability of synthetic datasets, especially in diverse and complex scenarios. SYNTHIA will address these challenges head-on by developing validated tools and methods for #syntheticdatageneration (SDG) across various data types, including laboratory results, clinical notes, genomics and imaging. Sign up for our newsletter, mail your coordinates to: [email protected] #SyntheticData #DataGeneration #PrecisionMedicine -> funded by Innovative Health Initiative (IHI) - European Commission

On behalf of all SYNTHIA Partners, we wish you a Happy New Year filled with new opportunities and achievements! May #2025 bring continued #innovations in #research that contribute to a healthier future for all. Here's to a successful and impactful year ahead! Medical Research Institute La Fe (IIS La Fe), GE HealthCare, Fraunhofer SCAI, Pfizer, Bristol Myers Squibb, Barcelona Supercomputing Center, Centre for Research & Technology Hellas (CERTH), Charité - Universit?tsmedizin Berlin, CHUV |?Lausanne university hospital, DNV, European Alliance for Personalised Medicine (EAPM), EMBL-EBI, Erasmus MC, Gates Ventures, Humanitas Research Hospital. BioMag Laboratory HUS Medical Imaging Center Helsinki University Hospital, IHD, Laboratorio di Neurogenetica IRCCS ISNB, IRCCS Policlinico di Sant’Orsola - Azienda Ospedaliero Universitaria di Bologna , Information Technology for Translational Medicine, The Janssen Pharmaceutical Companies of Johnson & Johnson, Leiden University Medical Center, MATICAL, NICE - National Institute for Health and Care Excellence, Novo Nordisk, Patvocates,?trainAI, Universidad Politécnica de Madrid, University of Bologna (Alma Mater Studiorum – Università di Bologna), Universit?t Wien, Vall d’Hebron Institute of Research (VHIR) - Vall d'Hebron Institut de Recerca, Vall d'Hebron Institute of Oncology (VHIO). #SYNTHIA?#SYNTHIA_SyntheticData?#SyntheticData? #DataGeneration #DataScience #DataInnovation #AIinHealthcare #DigitalHealth #HealthData #PublicPrivatePartnership #CollaborativeResearch ? ? ? ? #PersonalizedMedicine? #PersonalizedHealthcare #HealthcareInnovation? #DataPrivacy?#AIHealth #HealthTech #TheFutureIsHere?#FutureOfMedicine?#EUResearch?#EUInnovation? #HealthResearch?#research #IHITransformingHealth #HorizonEU #EUResearch ? ? ? ?

#SYNTHIA PARTNER SPOTLIGHT: Enrico Giampieri, Associated Professor in Applied Physics at the University of Bologna (Alma Mater Studiorum – Università di Bologna), shares the impact of synthetic data on the future of personalized healthcare: "The availability of synthetic data and the ability to generate specific kinds of #data on demand will allow us to create better and more powerful #algorithms that improve our ability to generate #personalizedmedicine targeted at specific patients, not just the general population." Leading data sharing and AI development within SYNTHIA, the University of Bologna is expanding clinical research opportunities across Europe, ensuring that #PatientPrivacy is safeguarded while enhancing personalized medicine. Listen to his SYNTHIA message. #SYNTHIA #HealthcareInnovation #SyntheticData #AIinHealthcare #EUResearch #HorizonEU #DataPrivacy #HorizonEU ##IHITransformingHealth Funded by the Innovative Health Initiative (IHI)

#SYNTHIA PARTNER SPOTLIGHT: Sharmini Alagaratnam, is program director of the DNV Healthcare research programme, which has a strategic focus on assurance of AI for healthcare. She envisions a future where synthetic data drives innovation and trust in healthcare: "In 5 years from now, I see that synthetic data has become a real tool for innovation, for the development of solutions for patients and healthcare institutions - and that the quality of synthetic data can be trusted through mechanisms that we have co-developed. Through SYNTHIA, DNV continues its legacy of establishing standards across industries, now focusing on #syntheticdata as a key tool for #HealthcareInnovation and #PatientCare. We are committed to creating a framework that assures the quality of synthetic data for safe and effective healthcare solutions". Listen to her SYNTHIA message. #SYNTHIA #DataPrivacy #DataInnovation #DigitalHealth #AI #AIinHealthcare #FutureOfMedicine #HealthcareResearch #IHITransformingHealth #HorizonEU #CollaborativeResearch

Following our post yesterday -> Our SYNTHIA Partner Train is presenting another abstract at the 66th annual meeting of the American Society of Hematology - #ASH24. This abstract is titled: “Generation of Multimodal Longitudinal Synthetic Data By Artificial Intelligence to Improve Personalized Medicine in #Hematology". Part of the technology has been developed within SYNTHIA. Absolutely great to mention is that ASH selected this abstract to be part of 'ASH Daily', the #ASH24 conference newsletter.?Click here: https://lnkd.in/emqs7aFg This is the direct link to the #ASH24 abstract (no. 4981): https://lnkd.in/eUMtH_56 In the picture: Saverio D'Amico (Train), Marilena Bicchieri (Humanitas Research Hospital) and Alessia Campagna (Humanitas Research Hospital) #AI #Hematology #PersonalizedMedicine #ASH2024 #SyntheticData #SYNTHA_syntheticdata #SYNTHIA #DataScience #DataInnovation #AIinHealthcare #DigitalHealth #HealthData #DataScience SYNTHIA is funded by the Innovative Health Initiative (IHI) Health Initiative

Great news, our SYNTHIA Partner Train is presenting at the 66th annual meeting of the American Society of Hematology in San Diego/USA, which is taking place right now!? #ASH24 is a prestigious event, attracting over 28.000 participants, including clinicians, scientists, and researchers, from around the world. @Saverio D'Amico, CEO of TRAIN will be showcasing how AI-powered technology drives innovation in #hematology. TRAIN is a spin-out of Humanitas Research Hospital. The abstract to be presented is titled: “A Comprehensive, Artificial Intelligence-Based, Digital Twin Platform Based on Multimodal Real-World Data Integration for Personalized Medicine in Hematology". This is the link to the #ASH24 abstract (no. 2221): https://lnkd.in/erNazsua Part of the technology has been developed within SYNTHIA. Additional SYNTHIA partners who have contributed to the study are Humanitas Research Hospital and the University of Bologna (Alma Mater Studiorum – Università di Bologna). #AI #Hematology PersonalizedMedicine #ASH2024 #SyntheticData #DigitalTwin #SYNTHA_syntheticdata #SYNTHIA

The #SYNTHIA consortium is a robust collaboration of 32 esteemed partners, representing a diverse range of expertise from across Europe and beyond. Together, these expert organisations form a multidisciplinary community, leveraging their collective knowledge and resources to ensure the success and impact of the SYNTHIA project. #SYNTHIA_syntheticdata #PrecisionMedicine #PersonalizedMedicine #SyntheticData #DataGeneration #FutureOfMedicine #Datascience?#EUInnovation #HealthResearch?#publicprivatepartnership #SYNTHIA is supported by the Innovative Health Initiative (IHI) Joint Undertaking (IHI JU) under grant agreement No 101172872. The JU receives support from the European Union’s Horizon Europe research and innovation programme and COCIR, EFPIA - European Federation of Pharmaceutical Industries and Associations, EuropaBio - the European Association for Bioindustries, MedTech Europe, and Vaccines Europe and DNV. The UK consortium partner, The National Institute for Health and Care Excellence (NICE) is supported by UKRI Grant No 101172872. We are currently starting up - however would already you like to know more about the SYNTHIA work packages and tasks? Mail to: [email protected] or connect with Pieternella [Ellen] de Waal, SYNTHIA Lead communications.

Relevant post by GenoMed4All University of Bologna (Alma Mater Studiorum – Università di Bologna) is also a SYNTHIA partner. #DataScience #DataInnovation #AIinHealthcare #DigitalHealth #CollaborativeResearch #HorizonEU