The IgA Nephropathy Foundation

?Reminder Webinar: How best to eat for IgA Nephropathy? Wednesday, April 2, 2025 | 2:00 PM ET? ? Join us on April 2nd as expert renal dietitian Lauren Budd Levy helps us decode the renal diet specifically for IgAN. Register now to attend live or receive the on-demand recording after the event!? This webinar is in partnership with American Kidney Fund ? Visit IgAN.org/events to RSVP ? #iganephropathy

https://lnkd.in/exqJB6kw

Urgent Action Needed: Protect NIH & FDA Funding! Congress is making critical decisions on FY25 funding for the NIH and FDA—agencies vital to rare disease research and treatment development. Many life-changing treatments exist today because of NIH’s work, and the FDA ensures these innovations reach patients. We are proud to raise awareness with NORD to urge Congress to prioritize rare disease health. The deadline is March 14th—make your voice heard! Send a message to your Senators and Representative today. ?? Act now: https://lnkd.in/eS58MV3M

Happy Holidays & Happy New Year from @iganfoundation As we wrap up this year, we want to extend our heartfelt gratitude to each and every one of you—patients, families, caregivers, healthcare providers, and advocates—who make our community stronger. ???? This season, we celebrate the power of connection and the resilience of our shared journey. Whether you're celebrating with loved ones or finding strength in quieter moments, know that you are never alone in this fight. Together, we stand united in hope, support, and the pursuit of a brighter future for everyone impacted by #IgANephropathy Here's to a new year filled with continued progress, community, and care. Let’s keep walking this path—hand in hand, step by step—because together, we are unstoppable. ?? Wishing you peace, joy, and health this holiday season and beyond! ?? With love, The IgAN Foundation Team #HopeForIgAN #YouAreNotAlone

Support the HOLD Act (S. 5504)! ?? 25 actions taken—only 5 more to hit our next goal! The HOLD Act removes financial barriers for living organ donors by expanding eligibility for reimbursement through NLDAC. This would help cover costs like lost wages, travel, and lodging—empowering more donors to give the gift of life. The bill just passed the House—now we need the Senate to act! Urge your Senator to support S. 5504 today. Together, we can reduce the waitlist and save lives. SIGN TODAY https://lnkd.in/eyVeKrcw #LivingDonation #SupportHOLDAct #TakeAction #IgANAdvocates

2024 IgAN Wrapped??: Lessons Learned, Progress Made ???? This year, you: ?? Explained your disease to strangers (a lot). ?? Advocated for awareness like a pro. ?? Showed the world how strong the IgAN community truly is. Swipe for the highlights of your year in IgAN! Not a member or membership expired? Join us today. https://lnkd.in/g_PbdhEy #IgANWrapped #RareDiseaseAwareness #IgANStrong #KidneyHealth #IgANWarrior #IgANephropathy

@iganfoundation 100% of every donation fuels breakthroughs in IgAN care and research. Together, we've: ? Paved the way for FDA-approved therapies ? Advanced new drug trials targeting life-changing pathways ? Supported studies like GIGA-kids, bringing hope to children with IgAN Your support isn’t just funding research—it’s shaping the future of IgAN care and giving hope to families worldwide. Today is Giving Tuesday and we know that there are so many deserving causes that need support, please consider making a donation to help us continue this life-changing work. Every dollar brings us closer to a cure. https://lnkd.in/gdSngYYz Thank you for being part of this transformative journey. Together, we’re making strides! ???? #IgANFoundation #DonateForHope #GivingTuesday #EndOfYearGiving #ShapingTheFuture

#IgANephropathy doesn’t get the attention that many other kidney diseases do. It’s up to us to make sure this research happens. @iganfoundation has given me—and so many others—hope. Now we have the chance to give back. I'll never forget the day I was diagnosed, and neither will anyone else who has gone through it or has a loved one facing the same challenges. We have the power to make a difference. I’ve made my donation to support IgA Nephropathy research—will you join me? Thank you for your support ???? Caitlin McCormick IgAN Warrior #givingtuesday #iganwarrior https://lnkd.in/dVFjskMx

????REMINDER???? DATE: Wednesday, November 20, 2024 TIME: 8:00 – 9:00 p.m. ET Are you interested in finding out about one of the latest emerging therapies for IgA nephropathy (IgAN)? Join us for a FREE WEBINAR brought to you by Travere Therapeutics to learn more. This webinar is intended for all, including individuals newly diagnosed with IgAN, individuals currently taking medication for IgAN, caregivers and care partners. https://lnkd.in/e3sXvnPt Please share with anyone else who might be interested. #IgANephropathy #IgANAware #IgANManagement #EmergingTherapy #StayInformed #LookingForward #PatientSupport

???????REMINDER Join us for a webinar for the I CAN Study on Immunoglobulin A Nephropathy on Thursday, November 7, from 7 to 8pm ET. All are welcome, including those taking medication for IgAN, their family, and care partners.? ? Register for the webinar at https://lnkd.in/gRfwm79s submit questions at [email protected], and find more information about the I CAN Study at ICANClinicalStudy.com.? ? ?