? Mentor Monday Spotlight: Aleksander Wi?niewski? This week, we’re celebrating Aleksander, the dedicated leader of KIDS Poland! ????? He works tirelessly to ensure that kids in his chapter have opportunities to share their experiences, contribute to important conversations, and be part of meaningful projects in healthcare. During the holiday season, Aleksander and KIDS Poland spread joy by giving gifts to children in the hospital, bringing smiles to so many faces. ????His passion for helping others and creating opportunities for young people to get involved is truly inspiring. Join us in recognizing Aleksander for his kindness, leadership, and commitment to making a difference! ?????? #MondaySpotlight #KIDSPoland #YouthLeadership #MakingADifference #BringingJoy
iCAN (International Children's Advisory Network)
医院和医疗保健
Marietta，Georgia 1,255 位关注者
Children sharing their expert stories to help improve pediatric healthcare, technology, science, research, and advocacy.
关于我们
iCAN Research is a worldwide consortium of Children’s Advisory Groups working together to provide a voice for children and families in health, medicine, research, and innovation, through synergy, communication and collaboration. iCAN’s Chapters work both locally in partnerships with their local children’s hospitals and communities, and collaborate together network-wide to have a global impact. Through our chapters, youth-led councils, committees and focus groups, we address needs of paediatric clinical research and healthcare, influence state and federal regulations, and advocate for paediatric patients across the globe. Our goal is to educate the world about the importance of children’s involvement in the development of research trials, and to provide our children and families with resources and opportunities to provide their feedback and input into studies and products intended for children.
- 网站
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https://icanresearch.org/
iCAN (International Children's Advisory Network)的外部链接
- 所属行业
- 医院和医疗保健
- 规模
- 2-10 人
- 总部
- Marietta，Georgia
- 类型
- 非营利机构
- 创立
- 2014
地点
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主要
获取路线
317 Faw Ln
US，Georgia，Marietta，30060
iCAN (International Children's Advisory Network)员工
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Deb Discenza (she/her/hers)
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Leanne West
Innovation Catalyst, Patient Advocate, Connector, Chief Engineer Pediatric Technology Georgia Tech, President International Children's Advisory…
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Pamela Wheeler Johnson, MPH, CCRC
Research Education & Quality Improvement Program Manager at Hartford HealthCare
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Charlie Thompson
Global Lead, Pediatric Center of Excellence at Pfizer Inc
动态
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We can’t share enough about how much we love Jumo Health !
The energy at last week’s Patients as Partners conference was undeniable! More than ever, there’s a growing urgency to not just include patient voices—but to empower them to help shape the future of clinical trials. Our very own Kristin Tolbert sat on a strategic panel that tackled what true patient inclusion in clinical trials looks like—from measuring impact and easing financial burdens to building lasting trust and creating culturally relevant materials. Key takeaways? ?? 85% of patients want clear, accessible info, yet access remains limited. ?? There’s no one-size-fits-all approach to trial participation. ???????? Families, especially siblings, carry unseen burdens that deserve recognition. The team (Jules Rinaldi, Rick Scorzetti, Triparna Ghosh-Choudhury, PhD) left feeling inspired and more motivated than ever to keep driving patient-centered progress in clinical research! #PatientsasPartners2025
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? Flashback Friday! ? Reliving the amazing moments from the iCAN Summit 2024 in Bari, Italy! From hands-on activities to lifelong friendships, our global community continues to grow. ???? Ready for the next adventure? Registration is NOW OPEN for the 2025 iCAN Summit in Montreal, Canada! Don’t miss out—secure your spot today! ?????? ?? https://lnkd.in/eKEGzZSP #FlashbackFriday?#ICANSummit2025?#MontrealBound?#GlobalImpact
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iCAN's Director of Operations, Abigail Rose Clark, attended this year's #PatientsAsPartners2025 and gleaned some amazing insights! She also met up with a number of iCAN's friends! We are so excited to see all of the amazing work being done to put patients first. #iCANMakeADifference.
What to say about #PatientsAsPartners2025? As a first time attendee, I was truly blown away by the passion for and dedication to patient centricity that was demonstrated over the three days of the conference. Learning from the amazing professionals in the room was invigorating, and I leave Boston with renewed hope and excitement for all that will come in the healthcare space. Some key conference moments for me are unpacked below: - "Patient inclusion is not a rescue strategy"(Stacy Hurt ??), By including the patient voice from the start, projects are better suited and more aligned with the needs of patients and families. The patient voice supports meaningful change best when included from the very beginning and should not be incorporated after a project is struggling. - "Patients that we not only consult with but innovate with." (Liselotte Hyveled ??) This strong call to action demonstrates that inclusion of the patient doesn't just mean a high level consultation, but that true change happens when the leaders of healthcare innovate with patients. By utilizing the power of co-creation, not only is there a demonstrated return on investment, but also a marked increase in future patient engagement. - "Patients are hirable." (Catherine A.), At iCAN we say that pediatric patients are experts in their own conditions, and we wholeheartedly believe that to be true! Patients should be thought of as collaborators in the effort to develop any product that is built to support them as they walk their healthcare journeys. It was a true pleasure seeing friends of iCAN (International Children's Advisory Network) in person. Gwyneth Mogg-Hall, Pamela Wheeler Johnson, MPH, CCRC, Stephanie Christopher, Jules Rinaldi, Kristin Tolbert, Diana Fisher, MS, MPH, CPH, Jade Dennis, Aaron J. Horowitz, Joel Schwartz, Lindsey Thalheimer, Hayley Chapman, Sylvia Baedorf Kassis, MPH, CYT are a just some of the few incredible individuals who are pouring their hearts and talents into making the world of pediatric healthcare better for all. Thank you Patients As Partners in Clinical Research Community News for a wonderful conference!
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?? The Challenge of 10 is in full swing! ?? From reading 10 books ?? in Uganda, to assembling 10 care packages ?? in Chicago, to writing 10 letters of gratitude ?? to healthcare heroes—our iCAN teams are making a difference one challenge at a time! Swipe to see more challenges! Join us in celebrating these amazing efforts and stay tuned for more ways to support! ??? #ICANChallengeOf10 #MakingAnImpact #KidsHelpingKids
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Where Are They at Wednesday?? Adhiti’s journey has been nothing short of inspiring!? As a youth member of KIDS Connecticut, she first took the stage as a panelist at the Pediatric Academic Societies (PAS) conference, participating in the "Baby Shark Tank: PTN and MPRINT Hub Investigators Pitch Solutions for Issues in Maternal and Pediatric Care" panel. She shared her insights and passion for improving pediatric research. Then, she joined us at the 2024 iCAN Summit in Bari, continuing to grow as a leader in the space by sharing her voice with industry leaders and helping to?transform the future of the pediatric landscape. Now, she’s taking her next big step—she recently interviewed for the Duke STAR Program (huge shoutout to Phyllis (Phyllis Kennel, MS, RD, LDN, PMP)), an elite summer research program that provides hands-on experience for students and educators. Here she is, pictured with Phyllis, her dad, and her mom. We are so proud of how far she has come and can’t wait to see what she does next! Join us in cheering her on! #WhereAreTheyAtWednesday #KIDSConnecticut?#DukeSTAR #NextGenLeaders #STEM #PediatricResearch
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?? Mentor Monday Spotlight: Darryl Klein! ??? Meet Darryl Klein—an incredible leader who helps guide our KIDS Summit Planning Committee as we gear up for the 2025 iCAN Summit in Montreal! ????? Darryl checks in with our hand-selected team of iCAN kids from around the globe, keeping them motivated, inspired, and ready to take on the challenge of helping organizing an unforgettable Summit. Through their work on different subcommittees, these young leaders are helping facilitate the organization of the event, ensuring every detail is planned by and for youth. In just four months, Darryl will be right there leading the charge as these changemakers bring their vision to life! Drop a ?? in the comments to show your support for Darryl Klein and the amazing work he’s doing! #MentorMonday #ICANSummit2025 #LeadershipInAction #YouthEmpowerment
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?? Reminder: Michael Piperno’s ATE Session is Tomorrow! Don't miss Michael Piperno at ATE as he leads "Speak with Impact: Expert Communication Strategies"tomorrow! ?? When: Saturday, March 15th at 8 AM PST / 11 AM EST? RSVP Here: https://lnkd.in/eArfXRG4 Michael, a communication expert and leadership coach, will share powerful strategies to help you speak with clarity, confidence, and influence—whether you’re presenting, sharing your story, leading, or championing for a cause.? Get ready to sharpen your communication skills and make every word count!? ?? Learn more about Michael at https://michaelpiperno.com. #ATE2025 #SpeakWithImpact #CommunicationMatters #Leadership #Reminder
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#WhereAreTheyNowWednesday From an iCAN Kid to a rising leader in biomedical engineering, Cooper West is making an impact! Now a Biomedical Engineering major at Case Western Reserve University, he’s not only excelling academically but also co-founded the Young Professionals Network (YPN) chapter on campus. We’re excited to announce that Cooper will be joining us at this year’s iCAN Summit! His journey is a testament to the power of youth empowerment, leadership, and innovation. We can’t wait to see the incredible things he’ll achieve next! #iCANAlumni #FutureInnovator #BME #YoungLeaders #CaseWestern #STEMLeadership #iCANSucceed
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ATE Speaker & Mentor Monday Feature: Michael Piperno! We are excited to feature Michael Piperno as both an ATE speaker and our Mentor Monday spotlight. Michael is a communication expert, leadership coach, and the founder of The Comvia Group, where he helps professionals sharpen their communication skills and build meaningful connections. At ATE, Michael will be featured on "Speak with Impact: Expert Communication Strategies," where he will share powerful techniques to help attendees communicate with clarity, confidence, and influence. Whether you're advocating for a cause, presenting an idea, or leading a discussion, Michael’s insights will empower you to make every word count. Beyond ATE, Michael’s mentorship continues to inspire. His dedication to helping others grow as communicators and leaders makes a lasting impact in both professional and personal spaces. Join us in celebrating Michael Piperno and don’t miss his session at ATE on March 15th at 8 AM PST/ 11 AM EST! Learn more about his work at michaelpiperno.com. #ATE2025 #SpeakWithImpact #MentorMonday #CommunicationMatters #Leadership
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