I AM ALS

We are thrilled to announce that For Love and Life: No Ordinary Campaign, the inspiring documentary that tells the story of our co-founders Brian Wallach and Sandra Abrevaya and the I AM ALS movement will begin streaming on Prime Video on Tuesday, May 28th!! Check out the trailer and learn more: https://lnkd.in/e98gadui

Huge awareness moment incoming: I AM ALS is returning to Times Square!! Starting next week, several amazing caregivers' stories will be displayed on billboards at the intersection of 42nd Street and 7th Avenue. We are so excited to raise awareness of ALS and other neurodegenerative diseases in this huge way! #CallingAllCaregivers Will you be in NYC on November 25th? Join us for a meetup at 3pm ET! Learn more and RSVP: https://lnkd.in/gPPY6Sey

Many Shades of ALS is back with another Let's Talk About It session! Join the conversation as team members discuss Impact of Cultural Beliefs & Acceptance in ALS and Terminal Diseases. Sign up to attend on December 10th at 4pm ET: https://lnkd.in/gNFUGtQd

November is National Family Caregivers Month, and along with our partners at I AM ALS and almost 50 other non-profit organizations in the Cures Collective advocacy coalition, we are #CallingAllCaregivers Today, we want to highlight and honor the story of one care partner of many in the CurePSP community. Ellory, pictured here with her mother Margaret, shared, “Processing a neurodegenerative disease is really hard, and that is often before one realizes all the ways it is going to change your life. The shortened quantity and quality of life was a shock. However, my mom's corticobasal degeneration diagnosis has brought us closer together - geographically, physically and emotionally. Being a part of her care team means I get more hugs, jokes and conversations than I otherwise would have had. I am grateful that we are making the most of our time together.” Please join us in thanking the family care partners of people with PSP, CBD, MSA or other neurodegenerative diseases for the dedication, time and energy that they pour into their roles and recognizing their resilience. If you are a care partner, we invite you to share your story, challenges, advice for other care partners and sources of strength. #CurePSP #NFCmonth #NationalFamilyCaregiversMonth #NFCM #Community #IAMALS

This month, we honor all caregivers and especially the countless young people who tirelessly care for loved ones impacted by #huntingtonsdisease. Young people are often overlooked for the importance of their caring role, but they are right beside their family every step of the way. We see you and are here for you! HDYO is a part of #curescollective amplifying voices of those impacted by neurodegenerative diseases. Tell your story and use the #callingallcaregivers hashtag. I AM ALS The Michael J. Fox Foundation for Parkinson's Research

We love to end our week with movie night. Have you watched For Love and Life: No Ordinary Campaign yet? If not, you can stream it on Amazon Prime! This inspiring film tells the story of the founding of I AM ALS, as well as the caregiving journey our co-founders Brian and Sandra are on. Don’t forget to grab the tissues! #callingallcaregivers https://lnkd.in/gm3JZ6em

ALS volunteers help organize thousands of flags in preparation for our May 2025 installation. Have you honored a loved one at our annual event in Washington, D.C.? Do you plan on honoring someone this year? Let us know.

#CallingAllCaregivers and members of the Cures Collective: We launched the Cures Collective this year to increase awareness, and accelerate treatments and cures for all neurodegenerative diseases through collective action. Members of this Collective are advocates and organizations that are committed to ending neurodegenerative diseases (NDs). Can you help advance this collaborative work by donating to support National Caregivers Month? The fundraising efforts of I AM ALS go toward wrap-around support to caregivers and more collaborative, action-based work like the founding of Cures Collective. Learn more and donate online: https://lnkd.in/ebTk89tX

Mitsubishi Tanabe is hosting a webinar featuring people living with ALS as they discuss their personal experiences with ALS and with the ALS drug Radicava ORS. Sign up to join tomorrow (Nov. 21) at 4pm ET: https://lnkd.in/gT5NPQ72

Last chance to sign up for tomorrow's author talk with Dr. Dylan Shanahan! Dr. Shanahan is living with ALS and wrote a book about his journey. Join the Scribes of Strength tomorrow (November 21st) at 5pm ET: https://lnkd.in/euYXsg7W