#BlackFriday is here! Enjoy up to 40% off everything in our Hydrocephalus Association online store! ?? Get a head start on holiday shopping while supporting a great cause. Every purchase fuels our mission to improve lives through research, advocacy, and education. ?? Shop now at www.hydroassoc.org/store and make your Black Friday meaningful! ??
Hydrocephalus Association
非盈利组织
Bethesda,MD 2,852 位关注者
Our mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition.
关于我们
Founded in 1983 as a family support group, the Hydrocephalus Association has grown to become the largest patient advocacy group for hydrocephalus in the United States. The mission of the Hydrocephalus Association is to promote a cure for hydrocephalus and improve the lives of those affected by the condition.
- 网站
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https://www.hydroassoc.org
Hydrocephalus Association的外部链接
- 所属行业
- 非盈利组织
- 规模
- 11-50 人
- 总部
- Bethesda,MD
- 类型
- 非营利机构
- 创立
- 1983
地点
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主要
4340 East West Highway
Suite 905
US,MD,Bethesda,20814
Hydrocephalus Association员工
动态
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Happy #Thanksgiving from all of us at the HA! We’re so thankful for this incredible community and the unwavering support you give in our shared journey. Today, let’s spread gratitude—tell us in the comments who or what you’re thankful for this year! And don’t forget to enjoy some turkey, stuffing, and pumpkin pie! #hydrofamily #givethanks #turkeyday
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Congratulations to our 2024 Hydrocephalus Association Scholarship recipients! Since 1994, we’ve proudly awarded 266 scholarships to outstanding students who exemplify leadership and resilience in our community. These remarkable individuals not only manage their #hydrocephalus but also excel academically and give back through volunteering and community service. Their determination inspires us all, proving that hydrocephalus is not a barrier to achieving one’s goals. Meet our scholarship recipients here: https://ow.ly/h1B650UasZP
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Giving Tuesday is next week and we have an amazing opportunity to raise $200,000 in just ONE day! This Giving Tuesday, a generous anonymous donor has stepped up with a $100,000 matching gift—the largest match we’ve ever had. Every dollar you give will be doubled, making an even greater impact for the hydrocephalus community. Join us and help turn $100,000 into $200,000 in just 24 hours. Let’s make this Giving Tuesday unforgettable! https://lnkd.in/eduwBrWH
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Join us on December 10th for the next webinar in our Transition of Care series! This is part two of a collaboration with the Spina Bifida Association of America exploring the challenges of living with #hydrocephalus and #spinabifida. This session will focus on navigating adulthood with these conditions, covering topics like tips for independent living, employment resources, and understanding SSI and SSDI. Don’t miss out—learn more and register here: https://ow.ly/xj5z50Uamog
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Are you a man with hydrocephalus and want to chat with others like you? Are you a parent of a young adult with this condition? Either way, we have connection opportunities for you this week! You’ll have opportunities to share stories, talk about challenges you face, and offer each other support. Click here to learn more: https://ow.ly/A0SF50UaiKT #SupportGroup #HydrocephalusSupport
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New updates on endoscopic third ventriculostomy (ETV) and endoscopic third ventriculostomy with choroid plexus cauterization (ETV/CPC) are live on our website! Get a deeper understanding of these treatments and what to expect. Click to learn more: https://lnkd.in/edUKEbm3
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Medicare Open Enrollment can be confusing for patients trying choose a new plan. To help those navigate through this time, the Hydrocephalus Association has published an overview of the recent changes taking place in Medicare for 2025. Read the full article here: https://ow.ly/rbgP50U9jwE #medicareopenenrollment
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In a monumental step for brain injury survivors, the Centers for Medicare and Medicaid (CMS) have recently delegated traumatic brain injury (TBI) as a chronic condition. This will have major coverage implications for Medicare beneficiaries. Read our full article detailing these new changes: https://lnkd.in/guuNpNku
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November is Alzheimer’s Awareness Month, a time to raise awareness for conditions affecting memory and cognition. Normal Pressure Hydrocephalus (#NPH) is often mistaken for Alzheimer’s or dementia, but it can be treated. An estimated 800,000 Americans live with NPH, yet fewer than 20% are properly diagnosed. Early detection is key. Let's advocate for better understanding and care. Learn more about NPH: https://ow.ly/P4qi50U8fTP #AlzheimersAwareness #MentalHealthMatters #DementiaAwareness