Hydrocephalus Association

Meet Ayana ?? After years of unexplained symptoms like ringing in her ears, severe headaches, and multiple ER visits, Ayana was diagnosed with #hydrocephalus at age 12. Her journey has included 15 brain surgeries, life-threatening complications, and unexpected challenges. Ayana’s strength and determination have kept her moving forward, and she shares her story to give hope and strength to other hydrocephalus warriors near and afar. ?? Read more about her healthy journey here: https://lnkd.in/eCYbauAz #VPShunt #BrainSurgery #HeartArrhythmia #CardiacClot #AcutePeritonitis #AbdominalPseudocyst #ShuntMalfunction #BrainShunt #OpenHeartSurgery #Neurology #ENT #EnlargedVentricles

Registration is now open for Camp Head Strong! This unique summer camp offers children and teens with #hydrocephalus a week of fun, education, and connection. Campers learn from peers and mentors who live well with hydrocephalus, build lasting friendships, and gain skills to become confident self-advocates. Plus, parents can rest easy knowing campers are supported by expert medical staff. Learn more and register today ?? https://lnkd.in/e-yAxhmj Melwood

Today is Cerebral Palsy Awareness Day ?? At the Hydrocephalus Association, we are proud to support and recognize the individuals within our community who also live with cerebral palsy (CP). As the most common motor disability in childhood, CP affects movement, posture, and coordination—and no two experiences are the same. Today, we invite our professional network to join us in raising awareness, fostering inclusion, and supporting the CP community. Wearing green today is a simple yet powerful way to show solidarity and spark conversations that lead to greater understanding and advocacy. Learn more about cerebral palsy and its impact: https://lnkd.in/gMMYzSjq #GoGreen4CP #CerebralPalsyAwarenessDay #CPAwareness #CerebralPalsy #DisabilityAwareness #InclusionMatters #HydrocephalusCommunity

Madison Scientific Inc, secured $7M to expand preclinical testing and advance prototype development of the company's innovative SmartShunt??Hydrocephalus Management System. It is exciting to see the commitment and progress in bringing new #hydrocephalus treatments to patients that will dramatically improve their treatment and quality of life. https://lnkd.in/gmBSrVNX

Support can make all the difference. ?? This week, we’re offering four virtual support group meetings designed to connect individuals impacted by hydrocephalus. Whether you’re a parent, an adult living with hydrocephalus, part of the NPH community, or looking to connect with other men navigating this condition, there is a space for you. ??? View this week’s events: www.hydroassoc.org/events/ ?? Looking for a group that aligns with your experience? Explore additional options here: https://lnkd.in/eAgF2BaE

Spring is here, and it’s the perfect time to start planning how you’ll use your well-earned PTO. Whether you’re traveling for spring break or looking ahead to summer vacations, preparation can make all the difference—especially when navigating the unique challenges of #hydrocephalus and spina bifida. From booking transportation to navigating airports and train stations, these must-know tips can help you feel more prepared, minimize disruptions, and focus on enjoying your time away. https://lnkd.in/eE7gtuka #SpinaBifida

Congratulations to Anuncia Medical, Inc. on their FDA Breakthrough Device designation for the ReFlow External Ventricular Drains! We are grateful to our industry partners for continually working to improve treatments for #hydrocephalus patients.

We were glad to be back at the annual AANN: American Association of Neuroscience Nurses meeting! ?? Our team had the opportunity to connect with incredible neuroscience nurses and share resources to support the #hydrocephalus community. Thank you to our COO, Amanda Garzon, and Education Manager, Jennifer Bechard, for representing the Hydrocephalus Association and raising awareness for patients and families living with hydrocephalus. #AANN25 #NeuroscienceNursing #PatientCare #HydrocephalusAssociation #AANN #Neuroscience #NeuroNurses

Registration for the 2025 WALK To End Hydrocephalus season is now OPEN! Find a WALK near you and get registered today! https://lnkd.in/e5QdMskE

Planning to attend HA CONNECT 2026? We’ve got you covered with practical tips to help make it more affordable! Tap the link for more tips to help you plan ahead: https://lnkd.in/gj4CS8vB #HACONNECT #Hydrocephalus?#HydrocephalusAssociation #HydrocephalusConference