Hydrocephalus Association

Join us on December 10th for the next webinar in our Transition of Care series! This is part two of a collaboration with the Spina Bifida Association of America exploring the challenges of living with #hydrocephalus and #spinabifida. This session will focus on navigating adulthood with these conditions, covering topics like tips for independent living, employment resources, and understanding SSI and SSDI. Don’t miss out—learn more and register here: https://ow.ly/xj5z50Uamog

Are you a man with hydrocephalus and want to chat with others like you? Are you a parent of a young adult with this condition? Either way, we have connection opportunities for you this week! You’ll have opportunities to share stories, talk about challenges you face, and offer each other support. Click here to learn more: https://ow.ly/A0SF50UaiKT #SupportGroup #HydrocephalusSupport

New updates on endoscopic third ventriculostomy (ETV) and endoscopic third ventriculostomy with choroid plexus cauterization (ETV/CPC) are live on our website! Get a deeper understanding of these treatments and what to expect. Click to learn more: https://lnkd.in/edUKEbm3

Medicare Open Enrollment can be confusing for patients trying choose a new plan. To help those navigate through this time, the Hydrocephalus Association has published an overview of the recent changes taking place in Medicare for 2025. Read the full article here: https://ow.ly/rbgP50U9jwE #medicareopenenrollment

In a monumental step for brain injury survivors, the Centers for Medicare and Medicaid (CMS) have recently delegated traumatic brain injury (TBI) as a chronic condition. This will have major coverage implications for Medicare beneficiaries. Read our full article detailing these new changes: https://lnkd.in/guuNpNku

November is Alzheimer’s Awareness Month, a time to raise awareness for conditions affecting memory and cognition. Normal Pressure Hydrocephalus (#NPH) is often mistaken for Alzheimer’s or dementia, but it can be treated. An estimated 800,000 Americans live with NPH, yet fewer than 20% are properly diagnosed. Early detection is key. Let's advocate for better understanding and care. Learn more about NPH: https://ow.ly/P4qi50U8fTP #AlzheimersAwareness #MentalHealthMatters #DementiaAwareness

Join us Tonight! At 7 PM ET, we’re teaming up with the Spina Bifida Association of America to share valuable insights on transitioning from pediatric to adult care with #hydrocephalus or #SpinaBifida. Learn when to start, how providers can guide you, essential tools, and ways to tackle common challenges. Register now: https://ow.ly/6qwM50U7jfL

Join us tomorrow! Transitioning from pediatric to adult care with #hydrocephalus or #SpinaBifida can be overwhelming. We're partnering with the Spina Bifida Association of America to bring you expert insights on making this transition smoother. Join us tomorrow, November 19, at 7 PM ET as we discuss when to start, how doctors can guide your care, key tools, managing challenges, and more. Register today! https://ow.ly/ho5Z50U6CY0

This week, we’re offering FIVE opportunities to connect with your #hydrocephalus community! Whether you’re in Colorado or Wyoming, have NPH, are a young adult, live in the Mid-Atlantic, or simply want to talk about life with hydrocephalus—there’s a group for you. Join in to de-stress, share stories, have fun, and more! Click here to learn more and register: https://ow.ly/XFJl50U7p1O

Meet Duke, the “Duke of Clubs”—a five-year-old #HydroWarrior and golf prodigy from Argyle, TX, who started swinging at just two years old! Born prematurely and facing hydrocephalus along with other health challenges, Duke has defied the odds and is now pursuing his dream of becoming a golf pro—all while passionately championing hydrocephalus awareness with his family. Check out his inspiring story: https://lnkd.in/eqYvVyBc