Huntington's Disease Society of America

As we gather with our loved ones this Thanksgiving, our hearts are full of gratitude—for YOU, our HDSA family. In the face of Huntington’s disease, we are more than just a community; we are a family. And in times of struggle, family is everything. This #GivingTuesday, you have the power to make an even greater impact. Thanks to a $10,000 Matching Challenge grant, your donation will be doubled, giving hope to those fighting HD. Whether you give, volunteer, or spread the word, your support means the world to families who need us now more than ever. Please take a moment to watch this special message from Teresa Srajer, Chair of the HDSA Board of Trustees. Together, we can change lives, bring hope, and move closer to a cure. Thank you for being the light for HD families—today, and every day.

Check out the latest post to the Disability Tips Blog! The topic: Understanding the 2025 Cost of Living Adjustment. Written by Allison Bartlett, Esq. Senior Manager, Disability Programs. Click the link below to review: https://lnkd.in/gpiuQHNs or by using the link in the bio

This Thanksgiving share the gift of beauty, strength, and hope with Amaryllis! ???? Each Amaryllis kit you purchase donates $11 to HDSA, supporting families in the Huntington’s disease community. This year, choose from 20 stunning options, including our NEW Variety Kit featuring six unique bulbs in charming pots—perfect for anyone on your list! ??? Premium quality is guaranteed, so you can enjoy watching these gorgeous blooms flourish. Order today at HDSA.fpfundraising.com and make this holiday season truly special. ?? Spread gratitude, joy, and hope with every Amaryllis! #Huntingtonsdisease #familyiseverything #LetsTalkAboutHD

We have a great HDSA event taking place this Black Friday! 2024 Omaha Tailgate Party - Omaha, NE - Friday 11/29 To learn more about an upcoming event near you and view the event schedule for the remainder of the year go to: https://ow.ly/tYnK50Uf8SK

???? This holiday season, give the gift of strength and hope with Amaryllis! ?? These stunning flowers not only brighten up any space but also make a meaningful impact. ?? Every kit you purchase donates $11 to HDSA, supporting the Huntington's disease community! ?? Don't forget to select a Chapter/Affiliate or Region from the drop down to credit your purchase! With 20 fabulous options, including our NEW Variety Kit featuring 6 unique bulbs in adorable pots, there's something for everyone! ???? Premium quality is guaranteed - watch them bloom beautifully! ?? Order today at https://lnkd.in/gYxcC4wy and spread joy while making a difference! #AmaryllisForACause #GiftHope

As fall fades into winter and the holiday season draws near, give a gift that keeps on giving! Order your Amaryllis today and choose from 20 stunning products, including 6 vibrant amaryllis varieties and fragrant paperwhites—perfect for spreading seasonal cheer. Plus, when you place your order, don’t forget to select the chapter or affiliate you support from the dropdown menu. Let's Bloom Together and make this holiday season truly unforgettable!

We are thrilled to announce that, as of January 1, 2025, the HDSA South Carolina Affiliate will officially become the HDSA South Carolina Chapter! This achievement is a testament to the dedication and hard work of the Affiliate committees, whose vision and perseverance made this possible. We are incredibly proud of all they’ve accomplished. Please join us in congratulating the HDSA South Carolina Affiliate on this milestone. We look forward to seeing the Chapter continue to grow and support even more families affected by Huntington’s Disease in South Carolina and beyond. #HDSASouthCarolinaChapter #HDSAFamily #FamilyIsEverything

??? A Huge Thank You! ??? Last week, our amazing HD Advocates had the incredible opportunity to connect with Senator Durbin's dedicated staff team! ???? We shared vital insights and experiences in the fight against Huntington's disease, amplifying our collective voice. ???? Your support makes a difference! Let’s keep this momentum going: ?? Join us in advocating for essential healthcare policies that impact lives. ?? **Take action today**: Share this post to raise awareness! Let's stand together for change! ??? #HDFighters #AdvocacyInAction

?? **Gratitude in Action: A Meeting that Matters!** ?? Last week, our HD Advocates had the incredible opportunity to meet with Senator Duckworth's dedicated staff team. ?? Their commitment to understanding and addressing Huntington's disease is inspiring! Together, we're building a brighter future for those affected by HD. ?? ? **Why does this matter?** Every conversation brings us closer to solutions, support, and awareness. Your voice matters in this fight against HD! ?? **Join us in continuing the momentum! Like & share #ThankYouSenatorDuckworth #HDAdvocacy #TogetherWeCan

Did you know that HDSA hosts monthly support groups, which are both virtual and in person? Here are some support groups taking place in the coming days: Northeast Ohio Huntington's Disease Online Group - Thursday 11/21 6:30 PM EST South Dakota Huntington's Disease Group - Thursday 11/21 8:00 PM EST. Greater Los Angeles, CA HDSA Support Group - Sunday 11/24 5:00 EST. Washington State HDSA Caregivers ONLY Support Group - Monday 11/25 9:30 PM EST California HD Bereavement Support Group - Tuesday 11/26 3:00 PM EST Virtual HDSA Caregiver Support Group - Tuesday 11/26 7:00 PM EST Rocky Mountain Chapter HD OPEN Support Group - Tuesday 11/26 8:30 PM EST East Bay, California Caregivers ONLY HD Support Meeting - Tuesday 11/26 10:00 PM EST Washington State Huntington's Disease Support Meeting- For all - Wednesday 11/27 1:00 PM EST To learn more about joining a group near you go to: https://lnkd.in/erbDcann