Huntington's Disease Society of America

Learn more about how to join POWER HD with a new YouTube video! Hosted by Arik Johnson, HDSA's Interim CEO/Chief Mission Officer and Katie Jackson, Help4HD's President/CEO. This is one recording you won't want to miss! https://lnkd.in/e253mgQd

Support Samantha Cox, Whitney Mann, and Marie Elena Howe, three members of our NYC Marathon Team! On November 3rd the team will take on 26.2 miles to help raise awareness for Huntington's disease and raise funds to support all of HDSA's Mission Programs. Support Samantha by visiting her fundraising page: https://lnkd.in/e7Ut3uF8 Support Whitney by visiting her fundraising page: https://lnkd.in/ejivhgc9 Support Marie Elena Howe by visiting her fundraising page: https://lnkd.in/ezGYQ5DT

Check out the latest installment to the Disability Tips Blog! The Topic: Social Security Administration’s Annual Cost of Living Adjustment Press release link below: https://lnkd.in/dqfF_ahM Click the link below to read more tips: https://lnkd.in/gpiuQHNs

We have an amazing collection of upcoming Team Hope Walks to choose from! Find an event near you this weekend! Team Hope Walks taking place this weekend: Boise, ID - Saturday 10/19 Los Angeles, CA - Saturday 10/19 Grand Prairie, TX - Saturday 10/19 Philadelphia, PA - Sunday 10/20 Orange County, CA - Sunday 10/20 To learn more about an event near you go to: https://hdsa.org/events/

Our hearts are with all the families who have been impacted by Hurricane Helene and Hurricane Milton. In these overwhelming moments, please remember that you are not alone. There are resources available to offer support, comfort, and practical assistance. Whether you need shelter, food, or emotional support, help is just a call or click away. Below is a list of disaster relief services that can provide the assistance you need: Disaster Relief Support and Resource List: - 211: Available 24/7 to connect you with local services for shelter, food, and other immediate needs. Website: [https://lnkd.in/eTgxqhS3 recovery) ?Call: 211 (available nationally) - American Red Cross: Find loved ones and locate shelters specific to Hurricanes Helene and Milton. Website: [https://lnkd.in/eWUZ5Ff7) Call: 1-800-RED-CROSS (1-800-733-2767) - Shelters and Disaster Relief Services: Locate nearby shelters and disaster relief services. Website: [https://lnkd.in/eqCe6t3A) - Disaster Assistance: Access local disaster assistance and recovery services. Website: [https://lnkd.in/e-K26g7D) Call: 800-621-3362 - FEMA: Find assistance programs, temporary shelter options, and disaster recovery centers. Website: [https://lnkd.in/eSwiVn-M) FEMA Helpline: 1-800-621-3362 Transitional Shelter Assistance (TSA) Program Hotel Locator: Requires a submitted FEMA application. Disaster Recovery Center Locator: [https://lnkd.in/ezCp7AAQ) - Disaster Distress Helpline: Offering counseling, crisis support, and mental health services. Call or text: 1-800-985-5990 Website: [https://lnkd.in/epXJEANX) Our HD Advocacy Partner Help4HD may also be able to provide some assistance. For more information please contact: [email protected] or [email protected]. We hope these resources bring you some comfort and relief. Please reach out if you need help. We stand with you in this difficult time. If you have any questions please contact us at [email protected].

Celebrate your special day (and other anniversaries!) by making a difference in the world and helping to make a difference in the fight against Huntington's disease. Create a Facebook/Instagram Fundraiser and join us in our mission. Let’s stand together to raise awareness and support those affected by HD.

Support Marie Elena Howe, a member of our NYC Marathon Team! On November 3rd the team will take on 26.2 miles to help raise awareness for Huntington's disease and raise funds to support all of HDSA's Mission Programs. Support Marie Elena Howe by visiting her fundraising page: https://lnkd.in/ezGYQ5DT Together, we can make a difference!

Support Samantha Cox, a member of our NYC Marathon Team! On November 3rd the team will take on 26.2 miles to help raise awareness for Huntington's disease and raise funds to support all of HDSA's Mission Programs. Support Samantha by visiting her fundraising page: https://lnkd.in/e7Ut3uF8 Together, we can make a difference!

The October 2024 Edition of the HDSA Monthly Newsletter, HDSAToday, is now available! Use the link below to read: https://lnkd.in/ehMfGAyE

ADVOCACY UPDATE!!! ?? Join Us for the HDSA Externally-led Patient Focused Drug Development Meeting! ?? ?? Date: November 13, 2024 ?? Location: Virtual ?? How to Participate: Submit an application to attend the meeting virtually. All Virtual Participants must submit an application. Apply Today! https://lnkd.in/eYS6vsN5 Don't miss this opportunity to make your voice heard and contribute to the future of HD treatment!