Hunter's Hope Foundation

Hunter’s Hope Foundation was established to address the acute need for information and research with respect to Krabbe Disease and related Leukodystrophies. In addition, our mission is to strive to support and encourage those afflicted and their families as they struggle to endure, adjust and cope with the demands of these fatal illnesses. Accordingly, our mission is four-fold: - To broaden public awareness of Krabbe Disease and other Leukodystrophies thus increasing the probability of early detection and treatment. - To gather and provide current, functional information and service linkages to families of children with Leukodystrophies. - To support research efforts that will identify new treatments, therapies and ultimately, a cure for Krabbe Disease and other Leukodystrophies. - To establish an alliance of hope that will nourish, affirm and confront the urgent need for medical, financial, and emotional support of family members and those afflicted with Leukodystrophies. Among the essential goals, founders Jim and Jill Kelly, seek to inspire an appreciation of all children and express a thankful heart towards God for these precious gifts of life. These bedrock values are categorically and vigilantly expressed throughout all of the Foundation’s programs and activities.

网站

https://huntershope.org

Hunter's Hope Foundation的外部链接

所属行业

非盈利组织

规模

2-10 人

总部

Orchard Park，New York

类型

非营利机构

创立

1947

领域

Leukodystrophy、Krabbe、Hope in Christ和Newborn Screening