Hope for HIE (Hypoxic Ischemic Encephalopathy)

That's a WRAP on 2024! There's still time to make your 2024 gift count at Hopeforhie.org/donate

Join Hope for HIE on Tuesday, April 29, at 12:00 PM ET for our video support group session for parents and legal guardians of children with HIE to discuss helpful ways to navigate and cope with additional diagnoses that arise after an HIE diagnosis. ?? This closed Zoom meeting, led by Hope for HIE's certified social worker, Jen, and peer support mentor, Megan, will provide a safe, supportive space for discussions, healing, and hope. ?? Register: https://lnkd.in/g_t_SJQC #HopeforHIE #HypoxicIschemicEncephalopathy #HIE #HIEsupport #NICU #NICUsupport #PICU #NICUsupport #PICUsupport #ConnectedbyHope #Neonatology #ChildNeurology #NewbornBrains #HIEawareness #Diagnosisloop #HIEImpacts #HIEOutcomes

Join Hope for HIE on Monday, April 14, at 12:00 PM ET for our video support group designated for extended family members of children impacted by HIE. ?? This closed Zoom meeting, led by our certified social worker, Jen, and facilitated by Peer Support Mentor, Carol, provides a supportive space for grandparents, aunts, uncles, and other family members to connect, learn, and discuss ways to best support their loved ones on the HIE journey. ?? Register: https://lnkd.in/gwvVBSRM #HopeforHIE #HIEsupport #ExtendedFamilySupport #HIEAwareness #ConnectedByHope #FamilySupport #HIE #HypoxicIschemicEncephalopathy?

Join Hope for HIE on Thursday, April 10, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE, either at birth or in childhood, are invited to participate in this support group. ?? In this closed Zoom meeting led by our certified social worker, Jen, and facilitated by one of Hope’s Peer Support Mentors, Kate, families will be engaged in a space of healing and hope, talking with others to build connections and support. ?? Register: Tinyurl.com/HIELossSupport #HopeforHIE #HypoxicIschemicEncephalopathy #HIEsupport #NICUloss #NICUlosssupport #PICUloss #NICUsupport #PICUlosssupport #ConnectedbyHope #Neonatology #ChildNeurology #NewbornBrains #HIEawareness #HIEloss #NeonatalLoss?

Join Hope for HIE on Thursday, April 3, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). ?? In this closed Zoom meeting experience, led by our certified social worker, Jen, and facilitated by two of Hope’s Peer Support Mentors, Lynn and Kara, families will be engaged in a space of healing and hope, no matter where their journey may take them, talking with others to build connections and support. ?? Register: Tinyurl.com/NewtoHIE #HopeforHIE #HypoxicIschemicEncephalopathy #HIE #HIEsupport #NICU #NICUsupport #PICU #NICUsupport #PICUsupport #ConnectedbyHope #Neonatology #ChildNeurology #NewbornBrains #HIEawareness #NewtoHIE

It's #Neurodiversity Celebration Week, and we celebrate that ALL BRAINS ARE BEAUTIFUL! ???????? At Hope for HIE, we believe that every brain is unique, powerful, and worthy of understanding and support. Whether thinking, learning, moving, or communicating in different ways, every journey with #HIE is valuable and meaningful. Let’s embrace neurodiversity, champion #inclusion, and celebrate the incredible minds that make our community so special. Because #AllBrainsareBeautiful. ???????? #NeurodiversityCelebrationWeek #HopeForHIE #InclusionMatters #HypoxicIschemicEncephalopathy #HIEawareness #HopeinAction #Neurodiverse #Neonatology #NewbornBrains #NICU #ChildNeurology #PediatricNeurology

? SOAR Registration is Open for 2025! ? Our SOAR (Support, Ownership, Advocacy, Resilience) program has a new online platform with bimonthly content drops, engaging activities, and expanded opportunities for peer connection. Designed and led by Annie Gunning, Hope for HIE's Child Life Specialist, SOAR is designed for kids with HIE ages 7-12 and 13-17 and provides a space to: ?? Build confidence ?? Meet and interact with peers via interactive and interest-based virtual sessions offered?throughout the year ?? Develop self-advocacy skills? ?? Connect with others in an inclusive and supportive environment ?? Find support in a community that understands their journey. If you've signed up before, we've got you, and you'll hear from us soon! ??? Register: Tinyurl.com/SOARforHIE #SOAR #SOARforHIE #HIEAwareness #HIEPeerSupport #Confidence #SelfAdvocacy #ResilienceInHIE #HopeforHIE #HIEJourney #ChildLifeSpecialist #HIE #HypoxicIschemicEncephalpathy?

?? Put HOPE INTO ACTION - VOLUNTEER AT A LOCAL HUSTLE FOR HOPE 5K! Whether you're cheering on participants, helping with registration, or supporting event logistics, your time will make a big impact! And don’t worry – even as a volunteer, you’ll still have a chance to walk, run, or roll at the event! Fill out this form at least one week before your local event date, and one of our staff members will connect you with that local host. ?? https://lnkd.in/gcX85_T3 #HustleForHope #HIEAwareness #5K #5KYourWay #HopeforHIE #WalkRunRoll #HIEAwarenessMonth #HIESupport #ConnectedbyHope #NICUSupport #PICUSupport #ChildNeurology #NICU #PICU #HIE #HopeforHIE #HypoxicIschemicEncephalopathy #CharitableGiving #Nonprofit #Volunteer

Join Hope for HIE on Monday, March 24th, at 1:00 PM ET for a LIVE Q&A with David Ford, Hope for HIE’s Board President, on engaging elected officials for HIE change. In this session, he will: ?? Share strategies for effectively engaging and building relationships with elected officials ?? Discuss how families can advocate for HIE at the local, national, and international levels ?? Provide actionable steps for HIE families to craft key messaging to make their voices heard Tune in LIVE on our Facebook, Instagram, or YouTube channels: ?? Facebook.com/HopeforHIE ?? Instagram.com/HopeforHIE ?? YouTube.com/HopeforHIE #HIEAdvocacy #HIEChange #HopeforHIE #HopeinAction #AdvocacyInAction #HIEAwareness #HIEAwarenessMonth #HopeforHIE #HIE #HypoxicIschemicEncephalopathy

This weekend I had the absolute privilege of attending the Epilepsy Foundation research ambassador bootcamp and national walk on behalf of Hope for HIE (Hypoxic Ischemic Encephalopathy). Back in November I applied to the advocacy bootcamp which was a rigorous process, only 30 people were chosen. I was able to learn all about the research process and how important patient advocacy is in the research process. I’m excited to take the skills I have learned and bring them back to our community while continuing to partner with the epilepsy foundation. #epilepsyawareness #epilepsyadvocate #research #hopeforhie #medicalmom #patientadvocacy