February 28th is Rare Disease Day! To celebrate and bring awareness to many people living with various types of rare blood disorders, Jonathan James interviews several guests who are affected by rare and ultra-rare diseases to better understand the challenges they face day in and day out.
?? RARE but RESILIENT! ?? Factor X Deficiency is one of the rarest inherited bleeding disorders, affecting only 1 in 500,000 to 1,000,000 people. But behind the numbers are real stories of strength, survival, and hope. ??? On this special Rare Disease Day 2025 episode of the Hope Podcast, we sit down with Carly Magee, a mother of two incredible children with Factor X Deficiency who has defied the odds. Their journey is one of courage, determination, and the relentless fight for a better future. Join us as we shine a light on the rare disease community and the unstoppable spirit of those living with these conditions. ??? ?? Listen now & share to spread awareness! ?? www.hope-charities.org Do you have a rare disease story to share? We’d love to hear from you! Post in the comments below or email us at [email protected]. ?? #RareDiseaseDay #HopePodcast #FactorXDeficiency #FactorX #RareButResilient #Hemophilia #BleedingDisorders