Histiocytosis Association

Exciting News for our community! A Phase 2 study has just started evaluating ulixertinib, a first-in-class ERK 1/2 inhibitor being developed by Biomed Valley Discoveries, for treating histiocytosis. This rare disorder causes abnormal white blood cell growth, leading to serious health issues. Dr. Eli Diamond from Memorial Sloan Kettering Cancer Center leads this study, building on promising results from patients who previously tried ulixertinib. This new approach could offer a breakthrough for those who don't respond to current treatments. We are hopeful that ulixertinib will bring a much-needed new treatment option for histiocytosis patients! Learn more about this exciting development by clicking this link: https://lnkd.in/enPPCnBT #Histiocytosis #Ulixertinib #BiomedValleyDiscoveries #NewHope #CancerResearch #ClinicalTrials #PatientCare #MedicalBreakthrough

When you go through a rebranding, it’s more than just a project—it’s a continuous process. And the true impact is often seen long after the initial launch. When we rebranded the Histiocytosis Association a decade ago, we focused on their core mission: bringing physicians, patients, and parents together for the best resources and funding the search for a cure. Today, they haven’t rebranded again but have evolved while staying true to their value positioning. Executive Director, Deanna Fournier shared the story of their evolution over the last ten years. Valuable Outcomes from a Rebrand ? A unique brand identity that differentiates them in a competitive environment ? Increased donor understanding of the interconnection of services ? A recognizable color palette that builds brand awareness over time ? Consistent messaging that reinforces their mission across all platforms ? Internal cohesion with staff orientation centered around the brand’s core cycle ? A foundation that supports ongoing strategic growth and adaptation The Histiocytosis Association’s journey shows how a well-executed rebrand can support marketing, fundraising, and strategic goals over time. Read our new Vision digital magazine to learn more about how they leveraged their rebrand to create lasting impact and growth.

We recently had the honor of hosting patient advocates Teresita Macias, Hernan Lara, and Dominque Boko who shared?incredibly moving stories of their loved one’s journeys with #sHLH. Our team was inspired by their passion and dedication to raising awareness and finding a treatment. Together, we are committed to driving transformation change to those affected by this?life-threatening inflammatory disorder. ? Special thanks to Deanna Fournier, Director of the Histiocyte Organization, for connecting us with these inspiring voices. #raredisease