#Gout's growing burden stems from: ??Changes in diets and lifestyles ??Patients not seeking treatment for gout ??Growing prevalence of kidney disease ??Lack of gout awareness Learn more: https://bit.ly/4bDwHNm
关于我们
The Global Alliance for Patient Access brings together physicians and patient advocates from across the globe to advocate for policies that protect patients’ access to advanced medicine.
- 网站
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https://gafpa.org
Global Alliance For Patient Access的外部链接
- 所属行业
- 公共政策办公室
- 规模
- 2-10 人
- 总部
- Washington,District of Columbia
- 类型
- 非营利机构
- 创立
- 2014
地点
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主要
1275 Pennsylvania Ave NW
US,District of Columbia,Washington,20004
Global Alliance For Patient Access员工
动态
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#ChronicKidneyDisease can be brought on by several factors such as: ?? Genetic predisposition ?? Cardiometabolic conditions ?? Lifestyle and diet ?? Social determinants of health Learn more this #KidneyMonth: https://bit.ly/4kpBSEA
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70% dos casos de bronquiolite s?o causados pelo vírus sincicial respiratório! Todas as crian?as menores de 2 anos est?o suscetíveis à contamina??o. Assista à história da pediatra Larissa de Carvalho e seu filho Ant?nio, internado aos 5 meses por uma bronquiolite causada por VSR. #Informa??oéProte??o
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DYK? While inflammatory #rheumatic conditions are treatable, they are one of the key factors of long-term decreased productivity and quality of life! #Rheumatology stakeholders convened in Brussels this week to exchange good practices and discuss the key barriers and possible solutions needed to improve patient care in #inflammatory conditions. Health care systems should prioritize the pursuit of #remission to: ? Reduce the stress on overburdened health care systems ? Improve patients’ outcomes and quality of life ? Preserve socio-economic activity GAfPA would like to thank all participants for their invaluable contributions and reaffirms it's commitment to support the rheumatic community in Europe and globally to advocate for earlier diagnosis of at-risk patients, improving access to specialized care and available treatments. Read more about the #ValueOfRemission in inflammatory rheumatic conditions and follow us for future developments: https://bit.ly/4cVxdVV
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Join GAfPA and the Axial Spondyloarthritis International Federation on April 3 at 3 pm BST for a webinar to discuss the value of pursuing remission in rheumatic and musculoskeletal diseases such as #axSpA. Register NOW: https://bit.ly/4kvkhuZ
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Global Alliance For Patient Access转发了
During the session "#PatientSafety throughout the entire patient journey" at the FOKUS Patient Conference #FutureDays, we heard HCPs, industry and patient perspectives on the challenges, risks, gaps and possible solutions. Some key insights were: ?? #HCPs and #patients need to be involved both at the development and implementation of healthcare innovation to reduce patient risks; ?? Lower productivity of HCPs leads to reduced quality of care and, therefore, patient risks; ?? Patient safety is not only about not doing the wrong thing, but also doing the right thing, i.e. when patients don't have access to available innovation, they are exposed to risk; ?? Safety ensures that we have a #healthcare system, which is patient-centered; ? The Global Alliance For Patient Access (GAfPA) Executive Director, Brian Kennedy, brought the patient perspective and highlighted a few important points: ?? Patient-centered healthcare systems are about prioritizing prevention; treating patients, not diseases; healing and not just managing diseases; ensuring equitability; ?? Patient safety needs to be part of healthcare culture and all patient-clinician discussions; ?? There are very high levels of healthcare #misinformation, and we need trusted sources to ensure patient safety - one of the key missions of GAfPA; ?? #BloodHealth is one topic which is central for patient safety - we need to look at Blood Health and patient blood management in its totality, especially given the impact that Blood Health has on various #NCDs e.g. #CVD, #Diabetes, #Cancer, #ChronicKidneyDisease; You can learn more about it through GAfPA's fast facts on Blood Health here https://lnkd.in/efkHTA4y ? Thank you, Mirka Cikkelova, European Patient Safety Foundation (EUPSF), for the great moderation! Brian Kennedy, Global Alliance For Patient Access, Mirka Cikkelova, European Patient Safety Foundation (EUPSF), Marit Lindberg MD, Sofia Wallstr?m, Anna Mezzacasa, Javier López Pa?os, Dr. Axel Hofmann, ME , WFSA (World Federation of Societies of Anaesthesiologists), Pieter-Jan Mattheus
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#DYK? #CKD affects more than 10% of the world’s population, around 850 million people. But despite prevalence, it often goes unrecognized or undiagnosed. Read more this #KidneyMonth: https://bit.ly/4cXnf7c
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Global Alliance For Patient Access转发了
DYK? Most patients with #CKD are unaware of their condition, so screening strategies are essential to identify those affected. This #WorldKidneyDay, learn more in GloPAKH's policy brief: https://bit.ly/3YdVeCk
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Global Alliance For Patient Access转发了
Today is #WorldKidneyDay! Policymakers worldwide have an opportunity to reduce the burden of #CKD by ensuring greater access to screening and earlier treatment. Read more in GloPAKH's policy brief: https://bit.ly/3YdVeCk
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#DYK? Untreated #CKD can progress to end-stage kidney disease, ultimately requiring renal replacement therapy to maintain life. Learn more this #WorldKidneyDay: https://bit.ly/3DbgXUV
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