Today is Latin Pulmonary Hypertension Day! ???? This day is dedicated to raising awareness about pulmonary hypertension (PH), a condition that affects the blood vessels in the lungs. ?? We are please to announce that there is a new resource available to help patients, caregivers, and patient association leaders on their journeys with PH. Aura, a virtual assistant on pulmonesvitales.com, can provide guidance and support. ?? ?? Let's work together to raise awareness about PH and support people living with it. Global Allergy & Airways Patient Platform Sociedad Latina de Hipertensión Pulmonar LATIN HEALTH LEADERS (LHL) #LatinPulmoaryHypertensionDay #DíaLatinoDeHipertensiónPulmonar #PulmonaryHypertension
Global Allergy & Airways Patient Platform
非盈利组织
Empowering patients with allergies, airways, and atopic diseases around the world.
关于我们
GAAPP Mission: To globally support and empower patients with allergies, airways and atopic diseases by protecting their rights and insisting on the duties of governments, healthcare professionals and the general public. GAAPP Objectives: To establish a global network to empower patients with allergies, airways and atopic diseases by: - Working together with governmental and health-care organizations to minimize the impact of allergies, asthma, COPD, atopic dermatitis and urticaria - Being an equal partner involved in the decision-making from inception to conclusion with global health-care organizations - Facilitating the founding of patient organizations in emerging countries fighting for best-practice therapy To support the worldwide community managing allergies, airways and atopic diseases by: - Assisting patients to take an active role in managing their disease and empowering those who support them in the process - Demanding unpolluted healthy air for patients - Collaborating with member organizations to help with health and social policy concerns -Aid emerging countries with the necessary diagnostic and therapeutic remedies for patients
- 网站
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https://gaapp.org
Global Allergy & Airways Patient Platform的外部链接
- 所属行业
- 非盈利组织
- 规模
- 2-10 人
- 总部
- Vienna
- 类型
- 非营利机构
- 创立
- 2009
- 领域
- asthma、allergies、urticaria、COPD、atopic dermatitis、patient advocacy、NGO、non-profit、eczema、empowerment、patient rights、capacity building、education、respiratory、representation of the interests of self-help organizations、best-practice sharing、establishment and strengthening of information, networking and cooperation structur和health and social policy development
地点
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主要
获取路线
AT，Vienna
Global Allergy & Airways Patient Platform员工
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Migdalia Denis (Dr.hc CMLC PGDip Lic)
My passion is to help individuals enhance their well-being.
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Kristen Willard
Global patient health advocate
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Prof. Dr. Ghulam Mustafa Mian
Consultant Pediatrician and Professor of Pediatrics at College of Medicine-Shaqra, CEO-Helping Hands Foundation, AAP's I-CATCH grant reviewer
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Vildana Mujkic
Medical and Healthcare Communication Specialist. Healthcare and Patient Advocate. MBA. Founder of AAA Association and Telemedicine platform klinika.ba
动态
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We are thrilled to announce that Sociedad Latina de Hipertensión Pulmonar has joined our global alliance! They’re committed to supporting patient associations of people with pulmonary hypertension in Latin America. Together, we'll drive positive change for patients. Welcome aboard! #PulmonaryHypertension #WelcomeToGAAPP #GlobalHealth
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?? Seeking insights from those living with chronic atopic and/or airways diseases. If you're in the US, Bosnia and Herzegovina, Slovenia, Croatia, Poland, Serbia, Malta, or Ukraine, your experience can greatly aid our educational initiatives. Share your journey in our survey. #GAAPP #PatientEducation #HealthcareSurvey ?? Participate here: https://lnkd.in/gAi59aRa
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GAAPP member organizations have exciting events lined up for the coming weeks! Mark your calendars and join us for: 1?????? Did you know latex allergies are a growing global health concern, especially for mothers and newborns? Learn about "Primary prevention in perinatology and congenital anomalies" and "Care of the pregnant woman-newborn dyad" in a free webinar by @saludsinlatex.?? ? Nov 25 | 7 PM (Buenos Aires time) | Spanish only ?? Register: https://lnkd.in/dMJV3nTD 2?????? An aquatic challenge to raise awareness about asthma? Count us in! ?? Join our friends @somosapad for a fun pool fundraiser and learn how to manage your child's symptoms.?? ? Nov 24 | 8 to 11:30 AM EST | Complejo Deportivo Los Andes, Panama | Spanish only ?? Register: https://lnkd.in/dhfzccfe 3?????? @cfsisterdalila_phurda is hosting the International Conference on Pulmonary Hypertension in Lviv, Ukraine! Learn from experts like Prof. Marc Humbert, President of the European Respiratory Society. Victor Gascon Moreno and Vildana Mujkic from GAAPP will open the patient panel discussion.?? GAAPP proudly sponsors this important conference, another great example of patient organizations stepping up to provide medical and patient education, even in the most challenging times. ???? ? Dec 14 | 10 AM EET | English translation available ?? Register: https://lnkd.in/dF92bMAZ 4???? @globalskin_iadpo is hosting a webinar about a World Health Assembly resolution to develop a Global Action Plan for All Skin Diseases. ???????????????????? ? Dec 5 | 2 PM CET ?? Register: https://lnkd.in/dYTfreKj #SupportedByGAAPP #LatexAllergy #Asthma #PulmonaryHypertension #ResolutionForAllSkin
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In recognition of Alpha-1 Awareness Month, we're excited to announce the launch of our comprehensive resource page on Alpha-1 Antitrypsin Deficiency (AATD). This valuable resource, developed by our dedicated Education and Research teams, provides healthcare professionals and patients with a wealth of information on: ? Identifying AATD symptoms ? Guiding the diagnosis journey ? Exploring available treatment options ? Offering additional support resources We encourage you to visit the page and share it with your network: https://lnkd.in/dz_ganYi #Alpha-1AwarenessMonth #AATD #RareDisease
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We made a big impact for #WorldCOPDDay this year! Here are some highlights: ?? We went to the US Capitol Hill to advocate for people with COPD! Our VP of Education spoke in a lunch briefing titled “Fighting for Air: Reducing the Burden of COPD through Policy” with @COPDaction and our member organizations @COPDFoundation and @Right_2_Breathe. ?? Keep an eye out for all the Speak Up for COPD content we prepared for you. We are calling for more political attention and funding proportionate to the burden COPD implies on people living with it, societies, and healthcare systems. You can also share it on your social media and raise awareness. Go to speakupforcopd.com/#lend ?? Our CEO & President and our VP of Education joined a 24-hour virtual event called #COPDBatonPass to share information about Speak Up for COPD and our educational initiatives. #WorldCOPDDay #SpeakUpforCOPD
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Today is #WorldCOPDDay2024 & I am speaking up. Are you?
COPD affects 391 million people worldwide—that’s equivalent to the population of 47 New York Cities 44 Londons, 10 Tokyos, or 28 Rio De Janeiros. Yet despite its massive impact, COPD continues to be underprioritised, underfunded, and undertreated across healthcare systems globally. This #COPDAwarenessMonth, we are urging healthcare providers and policymakers to take decisive action by implementing standardized quality measures for COPD diagnosis and management. Consistent care is a core element in improving patient outcomes and ensuring that everyone, regardless of location, age, gender, or economic background, has access to the right care plan and support. COPD should no longer be sidelined. With increased attention, funding, and systemic changes, we can reshape how this disease is managed and elevate it to the public health priority it deserves to be. Join us in the movement to empower patients, advocate for change, and act to improve care. Lend your voice and #SpeakUpforCOPD by visiting speakupforcopd.com/#lend to learn how you can make a difference in advancing the future of COPD care. @gaapporg #WorldCOPDday
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We are in Mexico! Migdalia Denis (Dr.hc CMLC PGDip Lic), SAREAL leader and board member of GAAPP, is attending the 11th International Congress on COPD in Mexico City. Migdalia will deliver a lecture titled "COPD Beyond Diagnosis: The Patient's Perspective On Their Daily Life." If you are here, come say hello! ?? #WorldCOPDDay
Feliz y honrada de recibir esta invitación al XI Congreso Interamericano de EPOC en México. Estaré allí dando lo mejor de mí por los pacientes de EPOC. ?Vamos juntos por una mejor calidad de vida! ?? #epoc #calidaddevida #mexico #pacientesepoc #congresoepoc
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Let’s celebrate #WorldCOPDDay together! This Wednesday, join the 24-hour virtual COPD Baton Pass event. Learn from respiratory experts worldwide and get insights on pulmonary rehab, spirometry, and more. Tune in for: ?? Speak Up for COPD with GAAPP CEO & President Tonya Winders and a Q&A with Dr. Ruth Barker at 5:20 AM EST. ?? GAAPP's educational initiatives with VP of Education Kristen Willard at 1:40 PM EST. Take charge of your lung health! Watch live at https://copdbatonpass.org #COPD #WorldCOPDDay #COPDBatonPass
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Watch our VP of Education Kristen Willard on #COPDBatonPass this #WorldCOPDDay at 1:40 PM EST! ?? https://copdbatonpass.org
We go live in 48 hours! #COPD #COPDBatonPass #WorldCOPDDay