Glioblastoma Research Organization

#WARRIORWEDNESDAY: Your journey with?#glioblastoma. Today we share Mohammed’s story– “His Hypology - Hyping up Mohammed so he may continue his brave fight. Mohammed is a dreamer and wanted to be a movie star as a child. Instead he grew up to be a real-life hero - Always trying to build people up, seeing the best in them. Devoted best friend to many, hopeless romantic to others. Always up for an adventure and never saying no to a friend. Was living his best life travelling across the world – loved travelling to exotic destinations and trying the local KFC. It all came crashing down when he was diagnosed with GBM – stage 4 Post diagnosis he moved back home to focus on the treatment and spend quality time with family. Currently he is spreading his infectious energy and helping people when he may. Despite the aggressive treatment, his positive spirit and witty sense of humour continues to brighten up the lives of those around him. We request everyone to remember him your prayers so he may bounce back and continue globe trotting.” This story was shared with the written consent of Saroash Khurram. We’d love to hear your story and share it with our supportive GBM community. To be featured, email us at?[email protected]?or send us a direct message. #CancerStory?#CancerWarrior?#GBM?#BrainCancer?#CancerResearch?#GBMRO

Neurosurgery remains one of the most male-dominated medical fields in the United States. However, the number of women entering the field is steadily growing, and their impact is undeniable. Every day, women are breaking barriers and transforming neurosurgery into a space where innovation, leadership, and compassion thrive. We are especially grateful for the strides women have made in research, particularly in the search for treatments and a cure for Glioblastoma. A huge congratulations to all the women who matched into a neurosurgery residency this past week. Your hard work, dedication, and passion have earned you a place in one of the most challenging and rewarding specialties in medicine. Thank you for continuing to pave the way for others! To all the women dreaming of a career in neurosurgery: the future is in your hands, and we are cheering you on every step of the way. #GBMRO #MatchDay2025 #WomensHistoryMonth #Neurosurgery Source: National Institute of Health

We are deeply saddened to hear of the passing of Mia Love, a trailblazer and the first Black Republican woman in Congress, who valiantly battled #glioblastoma. Born in Brooklyn to Haitian parents, Mia's journey from Saratoga Springs' city council to the U.S. Congress was fueled by her dedication to fiscal responsibility and community unity. Her legacy is a beacon of hope and determination, reminding us of the urgent need to support research and find a cure for brain cancer. Our thoughts are with her loved ones during this difficult time. Let's honor Mia's memory by continuing to fight for progress in brain tumor research. "You can make excuses or you can make progress, but you cannot make both." In Loving Memory of #MiaLove (December 6, 1975 - March 23, 2025)

It’s Instagram official! We are 20,000 people strong, fighting for hope, for change, for a cure for glioblastoma. Reaching this milestone is more than just a number—it’s a testament to the incredible community we’ve built together. Every like, comment, share, and donation move our shared mission forward and we are eternally grateful for your support. To celebrate this amazing milestone, we’re giving away TWO tickets to the 2025 Glioblastoma Summit in Miami, FL (November 7-9, 2025)—a transformative three-day gathering where patients, caregivers, advocates, and researchers come together to connect, learn, and push for progress. Here’s how to enter: ?? Follow us on Instagram - @glioblastomaresearch ?? Like our Instagram post https://lnkd.in/e3xfS_3U ?? Tag who you would bring to the Summit (each tag = 1 entry) The winner will be announced on April 4th on Instagram. #glioblastoma #GBMAwareness #braincancer #GBMRO #giveaway

#WARRIORWEDNESDAY: Your journey with?#glioblastoma. Today, we share John’s story. ”In late Feb. 2021,?my dad suddenly developed a severe headache & had to leave work due to the excruciating pain. Later in the day my mom & I took him to the emergency room where they performed a CT scan, which was clear. They sent him home & determined that he could possibly just be having a migraine. Days later, he experienced another excruciating headache. His doctor told us that if it kept repeating then he needed to go to the hospital. When it occurred, yet again, we took him to Roanoke Memorial Hospital where they performed an MRI & discovered that he had a large tumor. Surgery was scheduled & he went in 2 days later to have the tumor removed. He was then in surgery for 8 hrs in which the doctors were hopeful that they had removed all of the tumor. This was all during covid & no one was able to go in & see my dad before or after his surgery. He was alone when they revealed the news that his tumor came back as glioblastoma multiforme & learned what that meant. They then called my mom & gave her the news as well. She is a nurse & knew that the prognosis was not going to be good. We set up appointments for him to undergo clinical trials. About a month after my dad had surgery he developed an infection & had to undergo surgery again. This was a setback for his recovery. Unfortunately, his cancer was coming back in multiple areas of the brain. He lost vision in his left eye during all of this, which further affected his ability to walk. He ended up in the hospital yet again on July 4th. They did another MRI & that is when they told us that his cancer had spread more over the brain & he had developed hydrophephalus, which is fluid in the brain. His doctors finally told us that they had done all that they were able to do. My dad was then sent home on hospice in mid-July. We made him as comfortable as possible until he passed on August 5th. Until this point I had never heard of glioblastoma. I never realized what a cruel disease that this cancer was. It took so much away from us in such a short time. I am glad to be able to share his story & to help spread awareness for others out there who are going through the same thing.” This story was shared with the written consent of Kelley Olinger. We’d love to hear your story and share it with our supportive GBM community. To be featured, email us at?[email protected]?or send us a direct message. #CancerStory?#CancerWarrior?#GBM?#BrainCancer?#CancerResearch #GBMRO

Glioblastoma (GBM) is a grade 4 astrocytoma, the most aggressive form of malignant brain tumor. It primarily affects the brain but can, in rare cases, impact the spinal cord. GBM is the most common malignant primary brain tumor in adults, known for its rapid growth and ability to infiltrate surrounding brain tissue. You can learn more about this and other frequently asked questions on our Glioblastoma 101 page on our website. https://lnkd.in/efjGR9qj #GBM?#BrainTumor?#GBMRO?#BrainCancer

We’re so excited to launch Project Build On?? – an innovative research initiative funded by the Glioblastoma Research Organization. Led by Steven Millward, from MD Anderson Cancer Center, this project is diving deep into the metabolic vulnerabilities of glioblastoma, targeting a critical weakness in cancer cells' energy supply. When glioblastoma loses PTEN—a key tumor suppressor—cancer cells scramble to find alternative ways to fuel their relentless growth. Dr. Millward and his team are exploring how blocking ENO2, a metabolic backup system, could cut off that energy source entirely. By combining ENO2 inhibitors with existing treatments, like those used for arthritis and leukemia, Project Build On is working to outsmart glioblastoma at its core. This is the second innovative research project we’ve funded in 2025 and TENTH project overall in the fight against glioblastoma. Special thanks to the Hopkins Family, who rowed the 4,702-meter course at the Head of the Charles Regatta to raise funds in loving memory of their father, who loved rowing and passed away from GBM. Stay tuned as we continue to highlight these groundbreaking studies that are driving progress, pushing boundaries, and bringing us closer to better treatments—and ultimately, A CURE!!! Visit?https://lnkd.in/eKvHM42N?for more details on Project Build On and each of the research studies we’re funding. #GlioblastomaResearch?#GBMResearch?#FuelingGBMResearch

#WARRIORWEDNESDAY: Your journey with #glioblastoma. Today, we share Karen’s story. ”In August 2023, our mother was diagnosed with glioblastoma after experiencing some puzzling physical symptoms. Extensive testing at Memorial Sloan Kettering revealed the worst-case scenario: four tumors, one of which required two emergency surgeries. While one tumor turned out to be operable, the other three are not. Since that time, she has undergone rehab learning to walk again, chemotherapy, and radiation. As of February 2025, she is still working on physical therapy but is home and continuing to fight and live this new normal. Despite the initial prognosis, she has remained stable and resilient, while making more and more progress every day. Our lives have undoubtedly changed, and we are navigating the ups and downs that come with this life changing diagnosis. We are learning how to live with this disease without letting it define us. While it has been a challenging journey, we are so incredibly proud of her strength and determination.” This story was shared with the written consent of Vanessa Palmese. We’d love to hear your story and share it with our supportive GBM community. To be featured, email us at [email protected] or send us a direct message. #CancerStory #CancerWarrior #GBM #BrainCancer #CancerResearch #GBMRO

#GBMNews?? | Game-changing research from NYU Langone Health has led to the development of Ultra-Rapid droplet digital PCR (UR-ddPCR). The study shows that Ultra-Rapid droplet digital PCR could be a fast and efficient tool for making a molecular diagnosis during surgery for glioblastoma, IDH-mutant glioma and cancers outside the brain. This breakthrough test provides results in just 15 minutes, allowing surgeons to make more precise, data-driven decisions while operating. By breaking down tumor samples into thousands of tiny droplets, scientists can pinpoint even the smallest traces of glioblastoma DNA, ensuring that more cancerous cells are identified and removed safely. In a study involving over 75 tissue samples from brain tumor patients, including those with glioblastoma, UR-ddPCR proved to be just as accurate as traditional ddPCR and genetic sequencing—but in a fraction of the time. This innovation could transform glioblastoma surgery, giving neurosurgeons the ability to assess tumor genetics on the spot and tailor their approach with unprecedented accuracy. As researchers refine and automate the process, this tool could pave the way for more effective, personalized treatment strategies for glioblastoma patients. ?? Learn more by visiting: https://lnkd.in/dVzXsAEN Source: NYU Langone Health

At the GBMRO, women aren’t just a part of the story—we are the story. From our internal team to our supporting teams, we are driven by women who bring passion, innovation, and resilience to the fight against glioblastoma. But did you know that while 75% of nonprofit workers are women, only 22% of nonprofits are led by a female executive director or CEO? It’s time for more seats at the table. ? This #InternationalWomensDay, we celebrate the women breaking barriers, leading with purpose, and driving change in the nonprofit space and beyond. The future is brighter because of you!? ? Source: American Association of University Women