Registration is now OPEN for our Los Angeles NMO Patient Day!??? June 27-28, 2025 ? Secure your spot NOW! You?will?not?want?to?miss?these?opportunities: ??Meet?Victoria?Jackson ??Connect?with?other?patients,?families?&?caregivers ??Support?Groups?for?all ??Learn?about?the?latest?information?&?research?on?NMOSD ??Ask?the?Docs? ??Have?your?questions?answered?by?the?world’s?leading?NMOSD experts ??Breakout?Sessions? ??Attend?the?presentations?you?want?to?learn?more?about ??Learn?how?you?can?get?involved?with?advocacy and?much?more! ? Register and find more information at the link below! https://lnkd.in/e4vKHjrk #myNMOfamily?#theGJCF?#love?#hope?#community?#family?#dogood?#nonprofit?#NMO?#NMOSD?#raredisease?#activism?#advocacy?#science?#research?#patientadvocacy
The Guthy-Jackson Charitable Foundation
非盈利组织
Beverly Hills，California 689 位关注者
Through research, technology and collaboration, we make medical breakthroughs for those with NMOSD. Next up: CURES.
关于我们
The Guthy-Jackson Charitable Foundation is dedicated to funding research in the quest to understand the pathophysiology and biochemistry of Neuromyelitis Optica (NMO) Spectrum Disorder. Our Foundation is passionate in its support of programs and opportunities aimed at elevating the clinical paradigm for NMO patients and improving options for treatment, prevention, and an eventual cure for this disease. We have invested over $80,000,000 into research.
- 网站
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https://guthyjacksonfoundation.org/
The Guthy-Jackson Charitable Foundation的外部链接
- 所属行业
- 非盈利组织
- 规模
- 2-10 人
- 总部
- Beverly Hills，California
- 类型
- 非营利机构
- 创立
- 2008
- 领域
- Neuromyelitis Optica Research、International Research Collaboration、Biosamples Collection & Storage、Medical Health Data Collection & Storage、Research Funding、Family Foundation、Patient Advocacy、Neuromyelitis Optica、NMOSD、NMO、Patient and Care Partner Perspectives、MOGAD、MOG、Collaboration、Advocacy、DEI、Accessibility、Rare Disease Awareness、Education、Community Engagement和Patient Education
地点
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主要
获取路线
PO Box 15185
US，California，Beverly Hills，90210
The Guthy-Jackson Charitable Foundation员工
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Barbara Willekens
Professor of Neurology at University of Antwerp with a passion for MS and rare CNS neuroimmune disorders || Senior Neurologist at Antwerp University…
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Megan Behne
Manager, Research Relations and Contracts at The Guthy-Jackson Charitable Foundation
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Victoria Jackson
Philanthropist and Beauty Industry Pioneer
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Monica Jones
Self motivated individual advocating for patients rights
动态
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Registration is OPEN for our upcoming Regional NMO Patient Day in Salt Lake City! March 22, 2025 9:30 a.m. to 4:00pm? Sheraton Hotel? Salt Lake City Utah Learn from leading experts in the field of NMOSD as they discuss disease management, treatment options, updates on current and emerging research, and strategies for improving quality of life. This event will be offered virtually, no registration is required. Limited travel grants are available. We hope you join us!??? #myNMOfamily #thegjcf #love #hope #commmunity #family #dogood #nonprofit #NMO #NMOSD #patientadvocacy #cureageoustogether #marchisNMOawarenessmonth #universityofcolorado
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You’re invited to join PREVAIL, a live, virtual event featuring an NMOSD specialist and a patient taking UPLIZNA on March 5. NMOSD specialist Barry Hendin, MD and NMOSD patient Veronica will lead the conversation. Register today: https://bit.ly/4kfEAw0 UPLIZNA is a prescription medicine used to treat adults with neuromyelitis optica spectrum disorder (NMOSD) who are anti-aquaporin-4 (AQP4) antibody positive. Please see the Important Safety Information and Medication Guide at UPLIZNA.com.
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Registration is OPEN for our upcoming Regional NMO Patient Day in Salt Lake City! March 22, 2025 9:30 a.m. to 4:00pm Sheraton Hotel Salt Lake City Utah Learn from leading experts in the field of NMOSD as they discuss disease management, treatment options, updates on current and emerging research, and strategies for improving quality of life. This event will be offered virtually, no registration is required. Limited travel grants are available. Click the link below for more information. https://lnkd.in/eB-JnfqA We hope you join us!??? #myNMOfamily #thegjcf #love #hope #commmunity #family #dogood #nonprofit #NMO #NMOSD #patientadvocacy #cureageoustogether #marchisNMOawarenessmonth #mayoclinic
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The Guthy-Jackson Charitable Foundation转发了
We are so excited to offer our first international MOGAD patient summit! Streamed live from San Diego, California during the American Academy of Neurology 2025 conference, we are lucky to have many of our experts in attendance to share their insight on the latest in MOGAD diagnosis and disease management. Many thanks to her MC, Michael Levy, MD PhD and event organizers Jim Broutman and Amy Ednie among other others for their hard work in putting this together. Please share as anyone can join this virtual event!
Join us for our Inaugural International MOGAD Patient Summit! What a way to bring in #MOGADAwarenessMonth! This virtual event, hosted by #TheMOGProject with Master of Ceremonies, Michael Levy, MD, PhD, is streamed live from San Diego, CA on April 5th, 2025 from 10AM to 4PM PST. You can't miss this full day of MOGAD delivered by experts along with opportunity for Q&A, moderated by MOGAD patients and caregivers! You must register to join: https://bit.ly/IMPS2025 We have some of the most knowledgeable experts in the field internationally providing up-to-date information on diagnosis, disease management and clinical challenges for both adults and pediatrics. Tune in to be the first to hear about our EXCITING announcements! If you can't come, please register anyway to get early access to the recordings! Thanks to our sponsors UCB for their generosity, making this day, a reality! #IMPS2025 #InternationalMOGADPatientSummit #MOGADExperts #MOGAD #MOG #raredisease #rare #rarediseases #chronicillness #neurology #neuroophthalmology #neuroimmunology #rareneuroimmunedisorders #MOGAD #RareDiseaseAwareness #ChronicIllnessSupport #NeurologyCommunity #MOGADPatients #PatientSummit2025
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You're invited to join Cleveland Clinic for IN-PERSON and VIRTUAL presentations on Rare Disease Day!?? A day to focus on rare disease and learn more. Thursday February 27, 2025 8 A.M. - 1:30 P.M. Cleveland Clinic Administrative campus 3175 Science Park Drive Building #4, 4th floor Beachwood, OH 44122 Register at the link below! https://lnkd.in/geSUSBd9
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Happy National Caregivers Day! Click the link below to listen to the stories of Jesus, RayAnna, Tyrone, and Cynthia.?We are grateful for these dedicated individuals and their valuable advice. https://lnkd.in/eV2Xb5Sj All caregivers and parents are invited to join our monthly support groups (https://linktr.ee/thegjcf). We appreciate you and your dedication! ?? #thegjcf?#caregivers?#nmosd?#mogad?#advocacy?#together?#raredisease?#awareness
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Save the date for an upcoming Online Educational Breakout Session presented by Dr. Barry Singer, Director at the MS Center for Innovations in Care! You’re invited to view a featured webinar on Friday, February 28 at 12PM PT/3PM ET to learn more about the latest FDA-approved treatment in #NMOSD. Special thanks to Alexion Pharmaceuticals, Inc. for sponsoring this session! This session will be live streamed on our Facebook and YouTube. ??
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The Guthy-Jackson Charitable Foundation转发了
Managing a rare disease diagnosis for your child takes all the support you can get. Thanks to The Guthy-Jackson Charitable Foundation, Trey’s father found the guidance needed to navigate his son’s NMO diagnosis. "Without the Guthy-Jackson Foundation, Trey wouldn’t be where he is today—receiving the treatment that will give him a completely normal life." If you’re searching for support and answers, connecting with a support system can make all the difference. ?? #BehindTheMystery #TheGuthyJacksonCharitableFoundation #NMO #NmoAwareness #RareDiseaseAwareness
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Registration is still open for our Salt Lake City NMOSD Regional Patient Day! ?? What to expect: ? ? Expert-led discussions on disease management and treatment options. ? Updates on current and emerging research. ? Direct interaction with experts. ? Strategies for improving quality of life. ? Access to resources and support programs. ? Opportunities to connect with others sharing similar experiences. Register today. https://lnkd.in/eB-JnfqA We can’t wait to see you!
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