Genetic Cardiomyopathy Awareness

?? Do You Have PKP2 or Know Someone Who Does? ?? #PKP2 is genetic, but many people with hereditary heart disease may have it—or know someone who does. The Genetic Cardiomyopathy Awareness Consortium and Citizen Health are connecting patients to clinical trials, secure medical record management, and active research programs working on potential new therapies. ?? Signing up can: ? Advance PKP2 treatments by contributing to active research programs. ? Connect you to upcoming #clinicaltrials and research opportunities. ? Securely store all your medical records in one place. ? Get recognized for your participation—eligible participants receive a minimum of $400 if their de-identified data is included in research. ?? If you or someone you know has PKP2, sign up today to be part of the future of PKP2 care. ?? Sign Up Today: https://lnkd.in/g652D5ah #GeneticHeartDisease #InheritedHeartConditions #Cardiomyopathy #RareHeartDisease #AccelerateCures

https://lnkd.in/gKG-2Z6R

You can make a difference in the Genetic Cardiomyopathy community! Sign up today for the GENETIC CARDIOMYOPATHY REGISTRY at https://lnkd.in/gm4DS8-M #geneticscardiomyopathyawareness #heartdisease #cardiomyopathy #heartfailure #cardiomyopathyawareness #hearthealth #genetics

Dilated Cardiomyopathy Research Study (up to $100) From Home In partnership with/on behalf of Sanguine Biosciences, we’re sharing a new at-home research opportunity for those diagnosed with dilated cardiomyopathy. You can help advance research from the comfort of your own home. To learn more or sign up, visit https://lnkd.in/gCyr_DgN or call (818)-477-4542 to speak with a research coordinator and see if you qualify.

Register for tomorrow night's webinar! Wednesday, March 19 at 6pm ET Can't attend live? Registrants will receive a follow-up email with the webinar recording. We'll share more information on the Genetic Cardiomyopathy Registry, gene specific groups, getting better care, and how you can help support the efforts of the Genetic Cardiomyopathy Awareness Consortium. Register now at: https://lnkd.in/gQrwUYrb #geneticscardiomyopathyawareness #heartdisease #cardiomyopathy #heartfailure #cardiomyopathyawareness #hearthealth #genetics

?? PKP2 Runs in Families—Let’s Keep Research Moving ?? #PKP2 research is not just about today—it is about the future of families and generations to come. That is why The Genetic Cardiomyopathy Awareness Consortium and Citizen Health are working to keep PKP2 a priority in genetic heart disease research. ?? Sign up today to: ? Power active research programs exploring new PKP2 therapies. ? Be first in line for clinical trials and research opportunities. ? Securely store and access all your medical records in one place. ? Get recognized for your participation—eligible participants receive a minimum of $400 if their de-identified data is included in research. ? Stay in control—your data is private, secure, and shared only with your consent. ?? Sign up today and help shape the future of PKP2 research: https://lnkd.in/g652D5ah #GeneticHeartDisease #InheritedHeartConditions #Cardiomyopathy #RareHeartDisease #AccelerateCures

Former NBA player Scot Pollard, who played at Kansas University from 1993 to 1997 before embarking on an 11-year NBA career, needed a heart transplant due to a genetic condition, cardiomyopathy, which was likely triggered by a non-COVID virus he contracted in 2021. He shares his journey. #cardiomyopathy #geneticcardiomypathy #geneticscardiomyopathyawareness

Are you interested in participating in research from home? You can help advance research from the comfort of your own home. In partnership with/on behalf of Sanguine Biosciences, we’re sharing a new at-home research opportunity for those diagnosed with dilated cardiomyopathy. To learn more or sign up, visit https://lnkd.in/gCyr_DgN or call (818)-477-4542 to speak with a research coordinator and see if you qualify.

Register now for our webinar! Learn more about the Genetic Cardiomyopathy Registry, gene specific groups, getting better care, and how you can help support the efforts of the Genetic Cardiomyopathy Awareness Consortium. Register now at: https://lnkd.in/gQrwUYrb #geneticscardiomyopathyawareness #heartdisease #cardiomyopathy #heartfailure #cardiomyopathyawareness #hearthealth #genetics

“Genetics counts for up to half of the risk of cardiovascular disease,” says Dr. Jessica Hennessey, a cardiologist at NewYork-Presbyterian/Columbia University Irving Medical Center. “It’s one of many factors, but it’s significant and oftentimes the first clue.” Read the full story here: https://lnkd.in/gVkFSm9K