Genomic Data Infrastructure (GDI)

???? GDI project partners gather in Lisbon to discuss project progress! Yesterday, the partners ? highlighted the achievements in the past two years. Today, we will focus on the future of the GDI project and the aim ?? for year three of the project. #1MGenomes

?? How to better communicate #1MGenomes initiative’s outputs and impact to the public? Today’s #GDI_Deliverables provides ?? guidelines for creating a national 1+MG communications and outreach strategy for citizens and healthcare professionals. ?? The guidelines are targeted at communications and #engagement professionals who require help understanding the aims of the 1+Million Genomes initiative and guidance on how best to focus their efforts. The deliverable was presented in the #GDIStakeholderForum in October where fruitful discussions and comments were provided to integrate into the guidelines. Read more ?? https://loom.ly/8Kcfusc

In October, Genomic Data Infrastructure (GDI) held a ?? Stakeholder Forum focusing on patient and citizen engagement for the 1+Million Genomes Framework ??. ?? Here’s the special newsletter issue summarising highlights of the Forum https://loom.ly/XauUcMg #1MGenomes

?? Today, we are halfway through the GDI project! The GDI project aims to realise the vision of the 1+Million Genomes initiative (#1MGenomes) of creating a data infrastructure that will enable secure access to genomics data across Europe ??. ?? During November, we share selected project deliverables and milestones. Today’s #GDI_Deliverable focuses on progress towards understanding ?? data needs in the 1+MG infrastructure, especially the requirements for data quality and analysis. The deliverable flags the importance of considering ?? the different ethical and legal landscapes in each country Read the deliverable ?? https://loom.ly/qlswyjw

Genomic Data Infrastructure (GDI) focuses on enabling access to ?? genomic and related phenotypic and clinical data across ?? Europe by establishing a federated, sustainable and secure infrastructure to access the data. ?? More about the project ?? https://lnkd.in/ez38DnZN

?? This week we’re celebrating #OpenAccess week! This year’s theme continues to focus on ? “Community” to raise awareness around the importance of community control of knowledge-sharing systems. ?? ELIXIR has been working on building a community for #bioinformaticians, from data management tools to workflow space, we’ve created an open community for researchers to share their knowledge and open up discussion. #opendata #OAWeek

The Genomic Data Infrastructure (GDI) held its second Stakeholders Forum today. ?? A total of 140 participants joined us online to discuss elements of patient and citizen engagement for the #1MGenomes Framework. The slide and summary of the meeting will be disseminated through the GDI newsletter by the end of October. Subscribe to the newsletter now ?? https://lnkd.in/e7CThGC8

?? A new service for publishing sensitive biomedical research data has now been launched! ?? The FEGA service (Federated European Genome-phenome Archive) stands apart from other services in that the data are not exported from the service, but analysed within a protected internal cloud service. FEGA is part of CSC's sensitive data services, which enable the use of sensitive data for research. Research teams now have a reliable solution to store and analyse sensitive data while complying with FAIR principles. This is especially crucial for cancer research and other sensitive fields. ????? Thanks to FEGA, Finnish research data will be internationally findable and reuse of data will be more manageable. The data controller can truly control access to the data throughout its life cycle. University of Helsinki, HUS Helsinki University Hospital and CSC – IT Center for Science carried out a FEGA pilot, marking the first submission of Finnish research data to the national FEGA service. ?? ? “This pilot was the first time that Finnish research data were submitted to the national FEGA service, where the data are also findable internationally. Thanks to FEGA, data need not be transferred across borders. Instead, they remain securely encrypted on CSC servers in Finland,” said Director of Sensitive Research Data Services Ilkka Lappalainen at CSC. Read more about FEGA and the pilot ?? https://lnkd.in/g_9DU39m #FEGA #SensitiveData #BiomedicalResearch #FAIRData #DataSecurity #DataManagement

?? #ELIXIR will be at #ECCB2024 holding two workshops and an ELIXIR Communities track programme focusing on ?? priority areas in ELIXIR Scientific Programme 2024-28! We also have a dedicated booth during the conference! Don’t miss the chance to learn more about ELIXIR! More information: https://loom.ly/2dYMFks

Health research collaborations mean sharing data – we can deliver faster if we identify and remove obstacles early. Capturing the experience of scientists who have travelled this road, IHI and EFPIA have put together a #Data #Sharing #Playbook. It offers practical solutions to common data sharing challenges, enabling researchers to focus on what matters most – advancing medical science. Explore the Playbook and join us on 4 September for a masterclass on how to facilitate data sharing ? https://bit.ly/46hVGmp #IHITransformingHealth #WeWontRest